Posts belonging to Category 'Detox Centers'

Last Chapter

Question:

Daniel,     would really like to have something to say, but I can’t even think and transalte into words what I’m feeling now. Moreover, English is not my language. My heart, thoughts and prayers are for you. jeeb

Response:

On Wed, 27 Oct 2004 11:42:02 -0400, Thomas Wagner <t…@capecod.com

,

in message ID <tbfvn0h407p0bul996htb2af8tkimei…@4ax.com

, in the

newsgroup alt.support.hepatitis-c wrote:

Maybe it’s beyond hope, but you’ve already shown that you have the willpower to go through quite a lot (and losing weight isn’t really as bad as tx), so if there’s even a small chance, it may well be worth it. In any case, don’t be a stranger. This group isn’t just for the success cases.

Thank you for saying it a lot better than I could manage Thomas. — Paul Use the reply by email facility in your newsreader to send email

Response:

Give every day your best, Daniel.  You got my email and know how I feel. I"ll be with you every inch of the way.  Keep your head up! Elmo ///////////   Thanks Elmo, Actually that’s what my Doc does. He’s an HIV and infectous disease specialist. They told me 15 years ago I had about 5 years at best. So I can’t complain. I just want to concentrate on what life I have instead of battling for more time, clinical trials, hassles etc. I truly feel better than I have for decades. I just want it to stop. I’m tired, so tired. You know what I mean. Thanks Daniel <elmoemer…@webtv.net

wrote in message

news:29063-41800CC1-217@storefull-3254.bay.webtv.net… Shit, Daniel! I’m not sure what to say. Part of me is saying to ’stand and fight’, the other part of me agrees with you. Wish I could climb into your shoes to fully grap what you’re going thru, but I can’t. All I can do is let you know that I’m behind you emotionally and spiritually. Please don’t go into lurk mode. Have you consulted anyone who specializes in both HIV and hepc? The nurse practitioner that was treating me does and I can hook you up with her if you’re interested. Elmo http://community.webtv.net/elmoemerson/DocElmosHepFile http://community.webtv.net/elmoemerson/TheFamilyAlbum

Response:

Daniel, When I first read your post earlier today, I was stunned speechless, and did not know to react. I only hope that when my time comes that I can deal it as gracefully as you apparently are. May I come over and borrow a cup of backbone. I’m truly impressed by your concept of quality of life, as opposed to quantity.At the very least, you are lucky to have found somebody who loves and cares for you, and have spent years together.You have a beautiful attitude. John "Daniel" <Tai…@netscape.com

wrote in message

news:4RUfd.58497$CT6.7361@sam.nntpserver.com… – Hide quoted text — Show quoted text -> Thanks Elmo, > Actually that’s what my Doc does.  He’s an HIV and > infectous disease specialist.  They told me 15 years ago I had > about 5 years at best.  So I can’t complain.  I just want to concentrate > on what life I have instead of battling for more time, clinical trials, > hassles etc.  I truly feel better than I have for decades.  I just want > it to stop.  I’m tired, so tired.  You know what I mean. > Thanks > Daniel > <elmoemer…@webtv.net

wrote in message

> news:29063-41800CC1-217@storefull-3254.bay.webtv.net… > > Shit, Daniel!  I’m not sure what to say.  Part of me is saying to ’stand > > and fight’, the other part of me agrees with you.  Wish I could climb > > into your shoes to fully grap what you’re going thru, but I can’t.  All > > I can do is let you know that I’m behind you emotionally and > > spiritually.  Please don’t go into lurk mode.  Have you consulted anyone > > who specializes in both HIV and hepc?  The nurse practitioner that was > > treating me does and I can hook you up with her if you’re interested. > > Elmo > > http://community.webtv.net/elmoemerson/DocElmosHepFile > > http://community.webtv.net/elmoemerson/TheFamilyAlbum

Response:

Thanks Elmo, Actually that’s what my Doc does.  He’s an HIV and infectous disease specialist.  They told me 15 years ago I had about 5 years at best.  So I can’t complain.  I just want to concentrate on what life I have instead of battling for more time, clinical trials, hassles etc.  I truly feel better than I have for decades.  I just want it to stop.  I’m tired, so tired.  You know what I mean. Thanks Daniel <elmoemer…@webtv.net

wrote in message

news:29063-41800CC1-217@storefull-3254.bay.webtv.net… – Hide quoted text — Show quoted text -

Shit, Daniel!  I’m not sure what to say.  Part of me is saying to ’stand and fight’, the other part of me agrees with you.  Wish I could climb into your shoes to fully grap what you’re going thru, but I can’t.  All I can do is let you know that I’m behind you emotionally and spiritually.  Please don’t go into lurk mode.  Have you consulted anyone who specializes in both HIV and hepc?  The nurse practitioner that was treating me does and I can hook you up with her if you’re interested. Elmo http://community.webtv.net/elmoemerson/DocElmosHepFile http://community.webtv.net/elmoemerson/TheFamilyAlbum

Response:

On Wed, 27 Oct 2004 07:54:53 -0700, "Daniel" <Tai…@netscape.com

wrote:

Well I have some good and bad news. The good news is I don’t have to take any more shots! The bad news is that after 38 shots I found out yesterday that the virus is not responding to tx.  The numbers are actually going up instead of down. I want to thank the group for being here. It really helped me.  And I know you help others also. I’ll be decloaking into lurk mode now, but I’ll be around. Thanks again all. Daniel

Daniel, I don’t know what to say except the best of luck to you.  And keep optimistic about the future.  It makes life more enjoyable to keep that ray of hope.  Gets you through those tough times so you can get back on track to the good.

Response:

Daniel, I wish you all the peace and joy that there is!! Your attitude will see you through this! hc "Daniel" <Tai…@netscape.com

wrote in message

news:lFOfd.57652$CT6.23590@sam.nntpserver.com… – Hide quoted text — Show quoted text -

Well I have some good and bad news. The good news is I don’t have to take any more shots! The bad news is that after 38 shots I found out yesterday that the virus is not responding to tx.  The numbers are actually going up instead of down. Strangely I was almost releived to get the news.  I have been sort of sitting back since yesterday watching myself in a detached objective way.  Observing my reactions.  I immediately ran the whole gamut of feelings.  Though I had tried to prepare myself for this, I don’t think you can until it actually happens. I even took a long walk by myself by the river, even though it was so cliche.(read: like an ABC family movie). I have so many other issues going on.  The deafness, the AIDS, the diabetes.  I needed for my own peace of mind to KNOW that I had at least done what I could do.  When you walk a road like I am walking there IS going to come a time when even though your doing all you can you are still going downhill.  I have spent the better part of a year fighting tooth and nail with beaurocracies, the Govt, State medical insurance companies, Dr’s, labs etc.  It had actually become my life. I feel now that I would more than anything else just like to live this last chapter of my life on MY terms.  I truly feel that I would rather live 2 or 3 years happy doing what I want, when I want, than fight, fight, fight to get another extra month or a year and be miserable. Bottom line, even if the tx had worked and I cleared,  I’m still looking

at

all the other things.  I’m not being morbid, I’m truly trying to be practical. I’m fortunate enough to have found that there is not going to be several more chapters to my life, this is the last one.  Many people don’t get

that

opportunity. When you reach the point where it is all going to be

downhill,

you can spend your remaining time fighting gravity, hopelessly trying to garner more time, or you can just kick back, remove all the stress and

just

enjoy the ride. The hardest part for me yesterday was telling my partner.  We’ve been together for 25 years.  He was always there for me throughout all the boozing, the detox centers, jails, the hospitals.  I had tried to

temper

him to the fact that the tx might not work.  But I had to watch as his

face

fell, he looked so helpless, so all alone, I amost wept.  It was then that

I

REALLY realized that this tx wasn’t just about me. I’m sorry to have to bring bad news to the group, I even debated just not saying anything, but I think you all have the right to honesty and the honest truth is this tx doesn’t allways work.  The honest truth is that we ALL

are

going to have a last chapter.  But try to arrange it so when yours comes your calling the shots (pun intended).  For me passing is going to be like

a

graduation, I’ll be going to a different level.  I am pleased with that,

but

aware that my passing will be painful for others who may not share my spiritual outlook. So folks for me it’s full steam ahead.  Were going to go places and do things and write this last chapter our way.  I feel like I have a

repreive!

I want to thank the group for being here. It really helped me.  And I know you help others also. I’ll be decloaking into lurk mode now, but I’ll be around. Thanks again all. Daniel

Response:

Shit, Daniel!  I’m not sure what to say.  Part of me is saying to ’stand and fight’, the other part of me agrees with you.  Wish I could climb into your shoes to fully grap what you’re going thru, but I can’t.  All I can do is let you know that I’m behind you emotionally and spiritually.  Please don’t go into lurk mode.  Have you consulted anyone who specializes in both HIV and hepc?  The nurse practitioner that was treating me does and I can hook you up with her if you’re interested.   Elmo   http://community.webtv.net/elmoemerson/DocElmosHepFile http://community.webtv.net/elmoemerson/TheFamilyAlbum

Response:

I only weigh about 120 and I’m six feet tall!   Ha! how much weight should I lose? Just kidding.  And your correct of course. Daniel

Live each day Daniel, there are a few of us around here where treatment is not an option. Take care of yourself. eileen

Response:

Daniel, the last time I had to give up tx and throw in the towel, I was about ready to go ahead and shoot myself.  Then a co-worker said to me, "Maybe it’s time to focus on quality of life rather than quantity."  She is SO right.  I’m taking each day as a gift.  When it’s over, it’s over, and I’m ok with that, but meanwhile I’m smelling every rose I find. Enjoy what you’ve got.  Stay with us here so we can be here for you if and when you need us though, will you? "Daniel" <Tai…@netscape.com

wrote in message

news:xqPfd.57751$CT6.40666@sam.nntpserver.com… – Hide quoted text — Show quoted text -

Well I have some good and bad news. The good news is I don’t have to take any more shots! The bad news is that after 38 shots I found out yesterday that the virus is not responding to tx.  The numbers are actually going up instead of down. Strangely I was almost releived to get the news.  I have been sort of sitting back since yesterday watching myself in a detached objective way.  Observing my reactions.  I immediately ran the whole gamut of feelings.  Though I had tried to prepare myself for this, I don’t think you can until it actually happens. I even took a long walk by myself by the river, even though it was so cliche.(read: like an ABC family movie). I have so many other issues going on.  The deafness, the AIDS, the diabetes.  I needed for my own peace of mind to KNOW that I had at least done what I could do.  When you walk a road like I am walking there IS going to come a time when even though your doing all you can you are still going downhill.  I have spent the better part of a year fighting tooth and nail with beaurocracies, the Govt, State medical insurance companies, Dr’s, labs etc.  It had actually become my life. I feel now that I would more than anything else just like to live this last chapter of my life on MY terms.  I truly feel that I would rather live 2 or 3 years happy doing what I want, when I want, than fight, fight, fight to get another extra month or a year and be miserable. Bottom line, even if the tx had worked and I cleared,  I’m still looking

at

all the other things.  I’m not being morbid, I’m truly trying to be practical. I’m fortunate enough to have found that there is not going to be several more chapters to my life, this is the last one.  Many people don’t get

that

opportunity. When you reach the point where it is all going to be

downhill,

you can spend your remaining time fighting gravity, hopelessly trying to garner more time, or you can just kick back, remove all the stress and

just

enjoy the ride. The hardest part for me yesterday was telling my partner.  We’ve been together for 25 years.  He was always there for me throughout all the boozing, the detox centers, jails, the hospitals.  I had tried to

temper

him to the fact that the tx might not work.  But I had to watch as his

face

fell, he looked so helpless, so all alone, I amost wept.  It was then that

I

REALLY realized that this tx wasn’t just about me. I’m sorry to have to bring bad news to the group, I even debated just not saying anything, but I think you all have the right to honesty and the honest truth is this tx doesn’t allways work.  The honest truth is that we ALL

are

going to have a last chapter.  But try to arrange it so when yours comes your calling the shots (pun intended).  For me passing is going to be like

a

graduation, I’ll be going to a different level.  I am pleased with that,

but

aware that my passing will be painful for others who may not share my spiritual outlook. So folks for me it’s full steam ahead.  Were going to go places and do things and write this last chapter our way.  I feel like I have a

repreive!

I want to thank the group for being here. It really helped me.  And I know you help others also. I’ll be decloaking into lurk mode now, but I’ll be around. Thanks again all. Daniel

Response:

Maybe it’s beyond hope, but you’ve already shown that you have the willpower to go through quite a lot (and losing weight isn’t really as bad as tx), so if there’s even a small chance, it may well be worth it. In any case, don’t be a stranger. This group isn’t just for the success cases.

///////////////////////////////////// I only weigh about 120 and I’m six feet tall!   Ha! how much weight should I lose? Just kidding.  And your correct of course. Daniel

Response:

On Wed, 27 Oct 2004 07:54:53 -0700, "Daniel" <Tai…@netscape.com

wrote:

Well I have some good and bad news. The good news is I don’t have to take any more shots! The bad news is that after 38 shots I found out yesterday that the virus is not responding to tx.  The numbers are actually going up instead of down.

I’m sorry to read this, Daniel. After all you’ve been through, this is not what you wanted to hear. But I’m reading so much fatalism in your post – is your liver that badly damaged? I know co-infection with HIV can increase the problems, but a lot of folks live more than just 2-3 years even with cirrhosis. I hope this is just a dark cloud that will pass, ask your doc for more details on how you can help your liver without going through another round of tx. Maybe a change in lifestyle, some weight loss, can give you both a renewed vigor and a few more years to enjoy. Maybe it’s beyond hope, but you’ve already shown that you have the willpower to go through quite a lot (and losing weight isn’t really as bad as tx), so if there’s even a small chance, it may well be worth it. In any case, don’t be a stranger. This group isn’t just for the success cases. Thomas — To reach me, complete my last name in the address.

Response:

Well I have some good and bad news. The good news is I don’t have to take any more shots! The bad news is that after 38 shots I found out yesterday that the virus is not responding to tx.  The numbers are actually going up instead of down. Strangely I was almost releived to get the news.  I have been sort of sitting back since yesterday watching myself in a detached objective way.  Observing my reactions.  I immediately ran the whole gamut of feelings.  Though I had tried to prepare myself for this, I don’t think you can until it actually happens. I even took a long walk by myself by the river, even though it was so cliche.(read: like an ABC family movie). I have so many other issues going on.  The deafness, the AIDS, the diabetes.  I needed for my own peace of mind to KNOW that I had at least done what I could do.  When you walk a road like I am walking there IS going to come a time when even though your doing all you can you are still going downhill.  I have spent the better part of a year fighting tooth and nail with beaurocracies, the Govt, State medical insurance companies, Dr’s, labs etc.  It had actually become my life. I feel now that I would more than anything else just like to live this last chapter of my life on MY terms.  I truly feel that I would rather live 2 or 3 years happy doing what I want, when I want, than fight, fight, fight to get another extra month or a year and be miserable. Bottom line, even if the tx had worked and I cleared,  I’m still looking at all the other things.  I’m not being morbid, I’m truly trying to be practical. I’m fortunate enough to have found that there is not going to be several more chapters to my life, this is the last one.  Many people don’t get that opportunity. When you reach the point where it is all going to be downhill, you can spend your remaining time fighting gravity, hopelessly trying to garner more time, or you can just kick back, remove all the stress and just enjoy the ride. The hardest part for me yesterday was telling my partner.  We’ve been together for 25 years.  He was always there for me throughout all the boozing, the detox centers, jails, the hospitals.  I had tried to temper him to the fact that the tx might not work.  But I had to watch as his face fell, he looked so helpless, so all alone, I amost wept.  It was then that I REALLY realized that this tx wasn’t just about me. I’m sorry to have to bring bad news to the group, I even debated just not saying anything, but I think you all have the right to honesty and the honest truth is this tx doesn’t allways work.  The honest truth is that we ALL are going to have a last chapter.  But try to arrange it so when yours comes your calling the shots (pun intended).  For me passing is going to be like a graduation, I’ll be going to a different level.  I am pleased with that, but aware that my passing will be painful for others who may not share my spiritual outlook. So folks for me it’s full steam ahead.  Were going to go places and do things and write this last chapter our way.  I feel like I have a repreive! I want to thank the group for being here. It really helped me.  And I know you help others also. I’ll be decloaking into lurk mode now, but I’ll be around. Thanks again all. Daniel

Response:

Stone Soul City

Question:

Posted on Fri, Feb. 14, 2003 Doty blasts plan to cut state aid SENATE:The Duluth mayor tells a Senate committee that a plan to cut state aid would devastate the city. BY SCOTT THISTLE NEWS TRIBUNE STAFF WRITER ST. PAUL – A report by State Auditor Pat Awada, recommending big reductions in the amount of state aid sent to Northland cities, came under heavy criticism Thursday during a hearing before a Senate tax committee. Local officials and lawmakers are concerned a $4.2 billion budget fix for the state’s 2004-05 budget, to be announced Tuesday by Gov. Tim Pawlenty, will closely mirror the recommendations in Awada’s report. "It’s a disaster if this happens," said Duluth Mayor Gary Doty told listeners in the Senate Tax Committee hearing at the Capitol. "It’s a disaster if anything close to this happens." The proposed cut takes nearly $14 million of Duluth’s annual budget and would devastate the city, Doty said. City officials could close the zoo and the library, cut park and street maintenance by 20 percent, cut general government costs by 10 per- cent and cut police and fire department budgets by 5 percent and still not cover the loss, Doty said. "You may as well just close the doors," he said. Also critical of the report was Sen. David Tomassoni, DFL-Chisholm, who likened it to "geographical genocide." Awada clearly targeted Northeastern Minnesota with a politically motivated study, he said. Under the proposal, Virginia would lose $2.68 million, Eveleth would lose$1.8 million, Grand Rapids would lose $1.2 million and Hibbing would lose $2.8 million from their annual budgets. Tomassoni then questioned why Awada would commission such a report. "I have no idea why the state auditor would even do a report like this," he said. "I don’t believe it’s the duty of the state auditor to set tax policy." Awada defended the report, saying she was elected by the people of Minnesota to serve as a watchdog for taxpayers. She said looking at the relationship between state money and local government finances was an appropriate role, "especially in these budget times," she said. Also challenged were Awada’s definitions for essential and nonessential services. Her report shows that cities getting the most local government aid spend far more per capita on "nonessential services" than cities that receive less aid. Libraries, parks and economic development programs are some things Awada considered nonessential, while emergency services, street maintenance and elections were considered essential services. The report also doesn’t consider the costs cities incur for providing services to people who aren’t necessarily city residents but use city services. The added expense of providing police and fire protection for college campuses was an example Doty used. While the city collects no property tax from colleges, it spends money on services to campus residents. Tax capacity, or the total property value a city has available for local property tax levies, also wasn’t factored into the report. Minnetonka Mayor Karen Anderson also testified against the report, even though her city receives very little local government aid. That aid serves as an important equalizer and helps cities that don’t have a large tax capacity provide the same level of services as cities that do. "We need strong cities throughout this state, not just in the rings of our suburban areas," Anderson said.

Response:

Posted on Fri, Feb. 14, 2003 Letters to the Editor State aid enables Duluth to be frivolous Duluth needs tough love. The political atmosphere here is one of unreformed socialism. Half the City Council and perhaps more than half the voters cannot get enough government to suit them. The fault lies more with the state of Minnesota than with Duluth. By subsidizing Duluth through state aid, the government in St. Paul has enabled Duluth’s fiscally irresponsible behavior for decades. It is easy to demand more and more government while discouraging business when half the money the city spends comes from the more business-friendly communities in the southern part of the state. It is something yet again when all the money for local services must come from local taxpayers. Gov. Tim Pawlenty should halt state aid for the same reason parents should not allow grown children with no jobs and less ambition to live at home without paying their own way. Perhaps is it a good idea to have an aquarium, the Omnimax and a $250,000 per year Human Rights Commission. The debate would be more interesting if Duluth taxpayers were footing the entire cost of local policy. If property taxes need to double to pay for the level of city spending, then let the council sell that idea to the taxpayers on its own merit. DON MILLER DULUTH

Response:

February 15, 2003 Shelter, as Distinct From Tax Shelter There is one impressive quality to President Bush’s budgeting plan, with its outsized tax cuts and deficits: His social planners still manage to keep their eye on the sparrow out there, aiming to squeeze a rent rise from some of the poorest Americans who live in public housing. The proposed increase amounts to mere budgetary breakage in comparison with the big numbers for the rolling red ink and the second wave of upper-bracket tax cuts at the heart of the Bush plan. But it is a striking example of the administration’s range of priorities: to be further easing the tax burden at the high end while pointedly ratcheting up the revenue for shelter required from the least of us. Under the proposal, present local options for charging the lowest-income residents zero to $25 a month rent would be replaced by a mandated minimum of $50, or higher in some cases. The poor will not be able to seek an exemption from local authorities as they now can when threatened by illness, job loss or eviction. Instead, in an outrageous case of federalization by an administration that preaches the virtues of state control, the poor could seek a hardship exemption only by appealing to the secretary of housing and urban development. Thousands of families now paying an average of 30 percent of their income in rent would face the danger of eviction, and local housing authorities who try at all costs to avoid an increase in homelessness could do nothing to help. The housing proposal has the same retrogressive edge as the president’s welfare renewal bill approved this week by the Republican House. This requires that welfare mothers work 40 hours a week instead of the present 30, even as available aid shrinks for transportation and child care. The House bill does have $300 million for "marriage promotion" and $50 million to encourage sexual abstinence. This is budgeting theory for the poor rooted in President Bush’s recent observation before a conference of religious broadcasters: "Welfare policy will not solve the deepest problems of the spirit." Of course not, but that is hardly reason to retreat from the problems of the body. We can only hope that the Senate has enough spirit to defeat the welfare renewal bill, as it did last year, and kill this mean-spirited public housing rule.

Response:

February 14, 2003 State G.O.P. Legislators Think the Unthinkable By MICHAEL JANOFSKY SALT LAKE CITY, Feb. 13 – The corridors of the Capitol here, where Republicans control everything, are abuzz with talk about taxes. Not about cutting them. Raising them. "It’s killing us," Senator John L. Valentine, the majority whip, said of the party leadership. "We don’t want to have tax increases on our watch." They might have no choice. Lawmakers here and elsewhere have reached a point where they say they can no longer cut their way out of crippling deficits that have put states in the worst financial shape since World War II. Faced with rising costs in health care and education, new domestic security programs and a slow economy, at least 24 states – 13 with Republican governors – are now considering ways to raise taxes even as President Bush is pushing for permanent federal income tax cuts to stimulate the economy. And much of the talk around the states is coming from Republicans, for whom raising taxes is anathema to their political souls. Among them, Gov. Dirk Kempthorne of Idaho, who has cut taxes 48 times, has proposed increasing sales and cigarette taxes for three years, calling it "one of the toughest decisions of my career." Gov. Kenny Guinn of Nevada wants new business taxes, property taxes, amusement taxes, gambling taxes and gross receipts taxes, telling Nevada residents, "The state of our state is fragile." Gov. Mike Huckabee of Arkansas told residents that without new taxes there would no money for teacher raises, scholarships, prescription drugs for the elderly and that "we’ll have to have a massive early release of thousands of inmates." Not that Democratic-led states have it any easier. In California, where the projected deficit is $35 billion, the highest of any state, lawmakers are considering higher income taxes. Gov. Bob Holden of Missouri has proposed eliminating tax loopholes, raising gambling taxes and adding a tax surcharge on households earning more than $200,000 a year to help close a projected $1 billion shortfall. Gov. Bob Wise of West Virginia, where the gap may reach $200 million next year, wants to triple the state cigarette tax. "We’re all in the same boat," Gov. Bob Taft of Ohio, vice chairman of the Republican Governors Association, said of states like his, where tax increases are all but certain. "It’s not part of what we want to do, and we take these steps very reluctantly, only as a last resort. We’ve cut as deeply as we can and we’ll cut some more. We’re pretty much at the end of the line, but we don’t want to jeopardize public health and safety." "The risk we run," Mr. Taft added, "is that we may entirely negate the effect of the federal stimulus." Nearly every state is careening toward high deficits as the 2004 fiscal year approaches, in June for most states. By then, the National Conference of State Legislatures predicts, the cumulative gap of the states will reach $70 billion or more. All states have been cutting spending. Some are reducing benefits for the poor, elderly and disabled. Some are releasing prisoners early. Some are shortening the school year. With much wrangling ahead, it remains uncertain whether any of the states will actually take the fateful step of raising taxes. But it seems inevitable in many, especially with the rising costs of federal programs and little federal money to help pay for them. Officials in many states blame Washington for making their situation worse. A recent survey found higher taxes on cigarettes or alcohol products under study in 15 states, higher income taxes in 7 and higher sales taxes in 6. In Utah, where 78 of 104 lawmakers are Republican, as is the three-term governor, Michael O. Leavitt, talk of raising taxes began only recently with the looming certainty that the state will be unable to meet urgent needs in public education. Utah has the highest birth rate of any state and spends the least per pupil in public schools, and that combination has created what a blue ribbon panel appointed by Mr. Leavitt called "an impending crisis" that could leave the state as much as $100 million short with a growing number of overcrowded classrooms, overworked teachers and a projected enrollment increase of 100,000 children over the next decade. Utah has raised taxes before. In the last eight years, lawmakers have passed 15 tax increases, raising $201 million. But they have also cut taxes 37 times over the same period, saving $1.6 billion. Mr. Leavitt and another leading Republican, Representative Martin R. Stephens, the House speaker, say they are not yet convinced it is time to raise taxes again. Mr. Leavitt has proposed raising the education money by adjusting water rates and delaying road construction. Mr. Stephens said, "I choose to be an optimist," insisting that "raising taxes should be the last thing we should do." But other Republicans dismiss those positions as political posturing. Mr. Leavitt has not ruled out running for a fourth term in 2004, and Mr. Stephens, an eight-term member of the House, is widely known to be considering a run for governor. While Mr. Leavitt conceded that even members of his own party "do not like my ideas" and Mr. Stephens said "it’s very unusual to hear talk in these hallways" about tax increases, lawmakers are floating at least three plans that would cover the education needs by raising taxes. It is too soon to know their prospects for passage, but lawmakers say the discussion reflects a quantum shift in thinking, especially among Republicans. "I know this is terribly wrenching for them," Representative Patricia W. Jones, a Democrat, said of her Republican colleagues. "It’s like trying to convert the pope to Mormonism." The most ambitious plan comes from Ms. Jones and a Republican lawmaker, Representative Steve Mascaro, who are sponsoring a bill that would remove tax exemptions for children, eliminate deductions for federal taxes and overhaul all the state’s tax brackets, changes that Mr. Mascaro said would generate about $90 million in new revenues for education. "The idea that Republicans and Democrats would get together is a little extraordinary," Mr. Mascaro said. "We’re having a hard time getting the Republican leadership to listen. But we’ll see what happens." He and Ms. Jones discussed their ideas with Mr. Leavitt on Monday. "He listened intently," Ms. Jones said. "He didn’t commit to anything, but I didn’t expect him to." A second plan involves raising the state sales tax. A third would increase income and corporate taxes. Senator Leonard Blackham, a Republican who is chairman of the Senate Appropriations Committee, said he was "very concerned about raising taxes" for the effect it would have on families. "But we’re there now," Mr. Blackham said. "Cuts are getting very difficult. I don’t see raising taxes if it were not for our education needs, and I believe most Republicans somewhat agree with that." While Governor Leavitt said he was sticking with his plan, he did not slam the door on the possibility that he would sign a tax increase if it reached his desk. "Nothing’s off the table, I guess," he said.

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THE NATION A Homeless ‘Summit’ in the Keys Civic and business leaders meet with Key West’s poorest to solve both sides’ problems. By John-Thor Dahlburg Times Staff Writer February 13, 2003 KEY WEST, Fla. — It’s 5 p.m., and tourists are thronging Mallory Square, awaiting the flame-hued nightly spectacle of sunset over the Gulf of Mexico. Michael Stanier, who is jobless and sleeps in a parking lot, is here too, unsure if he will be eating tonight. A new local law bans panhandling, so the man with the long ginger beard and scabby feet who calls himself "Gypsie" has outfitted his dog in sunglasses and a sailor hat, parked him in a chair, and posted a sign asking appreciative spectators to leave a "tip." If he nets $14, Stanier says, he and J.J. will have dinner. "I don’t get a welfare check and I don’t go to a church for a handout," said Stanier, 54, who walked more than 300 miles to get here from Daytona Beach, and who moves around with all his belongings piled on a bicycle and small trailer. "All I want to do is live my life out in peace, and I depend on the Lord for what he gives us." A flash of the local eccentricity that gives famously laid-back Key West its reputation for live-and-let-live tolerance, or an example of creeping social blight in the southernmost town in the continental United States? The question of what to do about the small army of panhandlers, vagrants and homeless men and women who now live here has been roiling this island city of 28,000 for months, and on Wednesday, Mayor Jimmy Weekley, other civic leaders and some of the homeless held a "summit," or a collective and cathartic brainstorming session, in a Holiday Inn ballroom to decide what action to take. "We can no longer turn our backs on the homeless in this city," Weekley said. "We have to come together as a city to help those less fortunate than we are." Her hair wrapped in a red kerchief, Angela Yvette Bland-Delaney, 39, attended the meeting after spending the night outdoors on a piece of cardboard. She pointed to the city’s official motto, "One Human Family," on a wall, and asked the other participants: "How about one humane family?" Last month, in an effort to check vagrancy and keep beggars from bothering cruise ship passengers and the other tourists who are Key West’s main source of revenue, city commissioners banned panhandling in much of the historic downtown, an area that includes Mallory Square and bar-studded Duval Street, where writer Ernest Hemingway, a former Key West resident, once slaked his thirst. Anyone caught begging in that area now can be sentenced to 60 days in jail and fined $500. "We have to send the message that we don’t want these people to come to our city and control our streets," said Commissioner Tom Oosterhoudt, the measure’s sponsor. "We control our streets." However, a colleague on the commission, Carmen Turner, objected that a ban on panhandling "just pushes people from one area of town to another." City officials have also offered to pay shelters in Miami-Dade County, about 150 miles to the northeast, to take Key West’s homeless, but so far have had no takers. A recent survey by the Southernmost Homeless Assistance League, an advocacy group, found 600 people living outdoors in Key West, in abandoned boats and cars, under bridges, in mangrove swamps and on nearby islands. According to league chairman Nelson Read, no Florida city has a greater share of homeless people in its total population. The reason, Read said, is exactly what draws tourists: a laid-back lifestyle and clement weather 12 months a year. "If you’re without a home, you’re not going to freeze to death here in the winter like you would in New York, Chicago or even San Francisco," he said. Though they protest that there is no more generous community in the United States, some Key Westers have grown exasperated by the in-your-face panhandling style of some of the homeless, their use of yards and business premises as alfresco toilets and the negative image they may give visitors. "I’m tired of picking up excrement outside my office," said Brian Carman, executive director of the Key West Innkeeper’s Assn. "These dirtbags, bums and panhandlers on Duval Street — I’d sweep them up and put them in the ocean." Sitting on a milk crate on Duval Street and holding a sign reading: "Why lie? I need beer!" Chuck Williams, 40, protested that there is no toilet accessible to the homeless downtown until the Burger King opens at 7 a.m. An Army veteran, Williams scours the pavement for discarded cigarette butts and sleeps on a fire escape. "They’re trying to push us out," said the shaggy-headed man in a camouflage jacket. "I just sit here, work my sign, don’t bother anyone." Dan Dombrowski, an official with the Boys & Girls Club of the Florida Keys Area, said some of his youngsters have become afraid to use toilets in city parks because they think homeless people may be washing or making drug deals inside. One morning, employees of the Key West YMCA found vagrants camped out in their facility. "We don’t really have the available services for homeless people," lawyer Sam Kaufman told the conference. "There is not a bed available in Key West today for a person striving to get his life together." The summit, a Key West-style variation on the New England town hall meeting, assembled more than 200 political leaders, business people, social workers, ministers, law enforcement officials and other concerned parties. In the afternoon, participants broke into small groups to devise concrete suggestions. All attendees then voted on which proposals they liked best. According to Weekley, his staff will tabulate the returns and study how to implement the four or five most popular ideas. One of the clear favorites was a proposal to convert a former Army Hawk missile base, out of sight of tourists and residents alike, to a shelter where people in need can sleep, use toilets, take showers and receive mail and telephone calls while they seek a job. Even if they want to work, some of the city’s homeless said at the summit, there is nowhere for them to shower or shave before a job interview. "I think it’s all excellent," said Bland-Delaney before returning to the streets. "I’m glad I came, and I’ll have a lot to tell people when I get back."

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State auditor recommends 42% cut in aid to cities Mark Brunswick Star Tribune Published Feb. 11, 2003 LGA11 State Auditor Pat Awada on Monday called for dramatic reductions in the amount of money sent out to cities from a statewide fund called Local Government Aid (LGA), calling it "free money" that rewards and encourages spending. "The more Local Government Aid you get, the more you spend," said Awada, a Republican whose report is likely to be used by Gov. Tim Pawlenty to support cuts in LGA in his upcoming budget proposal. The report contends that the state’s larger cities could afford to lose 51 percent of the aid and still not have to raise property taxes to provide the same level of essential services, such as police and fire protection, and many discretionary ones. The overall impact would be to reduce LGA by about 42 percent, or about $244 million a year. Critics of the report challenged its assumptions about what might be considered an essential service. They also said Awada’s finding would likely result in an increase in property taxes and be disastrous to inner cities, such as St. Paul and Minneapolis, and to regional centers, such as Rochester and St. Cloud, where such things as airports and hospitals could be defined as nonessential. "It’s bogus. It’s comparing apples and oranges," said Jeff Van Wychen, a tax policy analyst for the Coalition of Greater Minnesota Cities. With an expected pricetag of $1.2 billion for the 2004-05 biennium, LGA presents an appetizing target for budget cutters facing a $4.2 billion shortfall. Both during his campaign for governor and in the early days of his administration, Pawlenty has hinted strongly that he will look at revising the LGA formula because of what he sees as disparities in how it is distributed. But reining in LGA, which represents about 4 percent of the state’s general fund budget, has proven politically elusive almost from the program’s inception more than 30 years ago. Legislators and cities they represent have aggressively fought changes. The battle lines have traditionally split between the high-growth suburbs, which often receive little of the aid, and core cities and outstate Minnesota, which receive the bulk of the funding. Both Minneapolis and St. Paul could be stung by any changes in the formula. They receive more than 38 percent of the aid but represent about 19 percent of the population. Outstate Minnesota cities receive about 50 percent of the aid and represent 29 percent of the population. Suburban cities represent about 52 percent of the population but get about 10 1/2 percent of the aid. Cities such as Deephaven, Maple Grove and Edina, for instance, receive no LGA. The report received high marks from the Taxpayers League of Minnesota, which has advocated that LGA be abolished. "Unfortunately, it has evolved into a spoils system, where some cities get more state money and spend with abandon, while others get little or nothing and are forced to be more responsible with their tax dollars," said David Strom, the league’s legislative director. LGA’s inception LGA was born as part of what became known as "The Minnesota Miracle." It was devised as a way to ensure that basic services were provided to all cities. A "needs" formula was developed that took into account a city’s size, the age of its housing stock, population declines and its commercial/industrial base. Awada, a former mayor of Eagan, a Twin Cities suburb where LGA represents 0.2 percent of its total revenues, said the formula must be revised and a provision allowing the grandfathering in of previous amounts a city receives needs to be reformed. The grandfathered funds represent about 80 percent of the total. "Frankly, dollars should be flowing where there’s need, not where there’s some historical spending pattern," Awada said. The proposal would cut aid to 103 cities. While the state does not distinguish how a city spends its LGA funding, Awada separated funding between what she called essential spending, including general government operation, public safety, and street and highway maintenance; and nonessential services, which would include such things as parks, libraries and homeless shelters. Eric Willette, policy research manager for the League of Minnesota Cities, called Awada’s assumptions "problematic" because they did not take into account the needs of various cities. In suburban areas, transit and road services are provided by the Metropolitan Council, airports are serviced by the Metropolitan Airports Commission, and parks and libraries are funded by counties or the regional park system. In the core cities and in outstate Minnesota, cities often provide those services, Willette said. Alexandria, for instance, spends $500,000 a year on fire services, but $200,000 of that is for serving neighboring townships. "I wouldn’t say whether it was conscious or not, but this report certainly does have a suburban perspective to it," he said. John Sundvor, a lobbyist who represents the Coalition of Greater Minnesota Cities, said cities have kept spending down, citing figures that he said showed city spending in real dollars increased per capita an average of 2.4 percent from 1990 to 2000. "Cities aren’t running out there and spending a lot of money," he said. He said the Awada plan would "gut" regional centers that provide services such as libraries, airports and health services. "Is the municipal hospital in Ada an essential service? How about the regional airport down in Rochester? You have to define what essential services are," Sundvor said. "We don’t believe that you can reform local government aid and simultaneously cut funding for it at the same time. That’s a double stroke for any city." Awada said local city councils could decide if they wanted to pay for more nonessential services. "If there are cities out there that want to raise property taxes dramatically to provide nonessential services to citizens, which I highly doubt, I don’t believe in stopping them," she said.

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Raising the roof for workers who are homeless Chuck Haga Star Tribune Published Feb. 11, 2003 One drives a bus for DeLaSalle High School in Minneapolis. Another makes Krispy Kreme doughnuts in New Brighton. One works in an animal testing lab at the University of Minnesota and one is a grave-digger at Fort Snelling. All are homeless. Monica Nilsson, director of Simpson Housing Services, maintains the informal employment record at Simpson’s two Minneapolis shelters, where people who signed in last year included office clerks, counter attendants, laborers and caregivers. Many reported working full-time and earning between $7 and $11 an hour. "It says to me that society’s impression of a homeless person as some inebriated, dirty cast-off is wrong," Nilsson said. "The people driving your kids to school, making your food and cutting your hair may be homeless, at least for the period of life they’re in now." The list of employers reads like a metro business directory: a nursing home, a car wash, a child-care center, Target, Lunds, Hamline University, the U.S. Postal Service, The Gap. Gas stations, salvage yards and fast-food restaurants made the list. So did manufacturing companies and the Hennepin County Department of Corrections. Nilsson will have her list in hand as she and other advocates for the homeless converge on the Capitol in St. Paul today to warn legislators that deep budget cuts could throw hundreds more Minnesotans on the street — including many who are working but can’t afford housing. Rally for homeless Advocates for affordable housing planned to join shelter operators and homeless people to meet with individual legislators this morning, then they will gather for a rally at 12:30 p.m. in the Capitol rotunda. Some already have had to rework budgets after cuts ordered Friday by Gov. Tim Pawlenty, whose "unallotments" were necessary to erase a $281 million state budget deficit for 2003. And at the Dorothy Day Center in St. Paul, director Darrell Cox said he had had to cut his budgets for shelter, meals and other programs by more than 10 percent — from $1.8 million to $1.6 million — even before the state budget crisis loomed. "The main impact we had in the past year has been [reduced donations], a result of 9/11 and the scandal in the Catholic Church, and soon I think we’ll be impacted by reductions in what we receive from United Way," he said. "It already was looking sort of bleak. We had to make some staff cuts this year, and if we cut [further] we would be at a dangerous level." It isn’t just cuts in direct state assistance to shelters that have the advocates worried. "It seems a lot of services will be cut, and that will create more barriers for a lot of folks to get away from the shelters and into housing," said Brian Reichert, who works at the St. Stephen’s Catholic Church shelter in south Minneapolis. If general assistance funding is cut, "That would have a really big effect on us," Reichert said. "A lot of guys, that’s their only income — a couple hundred bucks plus food stamps. They can use that for board and lodging." Cutbacks could increase pressure on already crowded shelters. The 40-bed St. Stephen’s shelter is always full, with a lottery held each night for the few beds that may be open. People who don’t win a bed for the night are referred to an "emergency safe-waiting area" maintained by Catholic Charities at 519 Portland Av. Bigger cuts ahead? Simpson Housing Services, which operates about 65 beds in its two shelters, expects to lose $20,000 of $60,000 in state assistance after Friday’s unallotments, Nilsson said. Most of the shelters’ annual budgets — one at $200,000, the other $380,000 — come from grants, private donations and city and county funding, she said. But like all other programs and agencies that receive state funding, shelter providers are worried about much larger cuts when the state deals with a $4.2 billion deficit for the coming biennium. State funding now helps provide more than 400 "emergency overflow" beds in Minneapolis and St. Paul, Nilsson said, including 20 beds reserved for women at Simpson. "Those are funded now through April 15," Nilsson said. "What that means is if those sites close on April 15, we’ll have potentially 400 more people sleeping outside." Homeless advocates estimate that 500 people sleep outside in Minneapolis now, plus about 200 in St. Paul, either because they can’t find shelter space or choose for various reasons to stay outside. "People think, ‘Oh, the homeless won’t freeze in April,’ " Nilsson said. "But it’s not safe for men or women to sleep outside. Besides safety, you’re not clean if you sleep outside. You’re not fed if you sleep outside. You have no storage space. And if you have a job, how productive are you going to be tomorrow at work?" If shelter space is cut back, more people will commit petty offenses to get into a jail cell or seek rooms at hospitals and detox centers, she said, and those solutions all cost more. "The system will pay for these people one way or the other," she said. "By providing them with a mat on the floor, we can cut costs." Cutting shelter assistance to avoid tax increases "is a sham," Nilsson added. "Cities aren’t going to let people freeze to death outside," she said. "At least I hope not. So they will use property taxes somehow to take care of them. "And if a tax increase of 2 percent means people won’t sleep outside, I’ll pay the extra 2 percent. I think a lot of people would."

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NOW SCROLL THE PREVIOUS POST UP AND DOWN VIGOROUSLY!! SEE IF YOU SEE ANY TEETH?!?!

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Judge throws out housing suit againist Met Council, Eagan Steve Brandt Star Tribune Published Feb. 12, 2003 A judge has dismissed a lawsuit by affordable housing groups that sought to force the Metropolitan Council and the suburb of Eagan to plan and take steps to house lower-income people. Ramsey County District Judge Paulette Flynn announced her ruling Tuesday in a major setback for the affordable housing lobby. She also ruled against the groups on the merits of the case. Housing advocates and their attorneys had argued that the defendants failed to follow a 1976 growth-planning law. That law requires that cities take such steps as zoning some parcels to allow for low-and moderate-income housing. Flynn ruled that none of the three affordable housing groups that sued has the legal standing to pursue such a claim. Their alleged injuries were indistinct from those of the general public, and the law doesn’t provide the right to sue for compliance, Flynn said. "We feel very comfortable about that and feel vindicated for the collaborative process we have used with municipalities in recent years," said Peter Bell, Met Council chairman. Representatives of those who sued disagreed. "The judge’s ruling is the kind of policy that continues to make de facto gated communities," said Caty Royce, director of the Community Stabilization Project, one plaintiff. The dispute grows out of differing views of how to encourage the spread of affordable housing in the Twin Cities area. The council has favored an incentive-driven approach that offers development grants to cities that meet affordable housing goals. But critics argue that such an approach has fallen far short of the council’s own definition of the need for affordable housing. Aiming at Eagan After pressuring the council for more than a year, the three advocacy groups filed suit last August. They selected Eagan as a defendant partly because it declined to participate in a key council program that sets community goals for affordable housing. They alleged that city policies violated the state’s human-rights law by disproportionately affecting minorities and people on public assistance. Flynn said the advocacy groups didn’t make the case that they themselves were discriminated against under the human rights law, they didn’t bring this claim in time and the Met Council acted reasonably in adopting lesser housing goals than the groups sought. In picking Eagan as a target, the groups focused on a suburb that even the council found was taking insufficient steps toward setting aside land for the higher-density development that is often required to make housing affordable. But the council concluded that it lacks the legal power to force Eagan to modify its plans. Eagan issued a statement welcoming Tuesday’s ruling, saying the lawsuit might otherwise have forced cities to revise growth plans already approved by the council. Eagan said that it spent $3.1 million on affordable housing in the 1990s and that it has earmarked more this year for an affordable senior housing complex. But critics charge that Eagan has resisted family affordable rental housing that is needed by low-wage tenants. Also suing were the Alliance for Metropolitan Stability and the Metropolitan Interfaith Council on Affordable Housing. "It’s a terrible blow to doing the right thing," said Paul Robinson, the interfaith group’s president. "We’re still looking at all the options that we could pursue," said Russ Adams, the alliance’s executive director. Advocates began their lawsuit with high hopes. They enlisted some of the same legal talent that sued to desegregate Minneapolis family public housing and negotiated a sweeping settlement. They hoped this lawsuit could likewise promote dispersion of subsidized housing into communities that haven’t kept up with other suburbs on that score.

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There are probably quite a few cities like that. To them, Skin color = Quality It’s frustrating, but what can you do? —————– But in paying heed to the reality of statistics, I believe blacks and Hispanics do tend to have higher incidences of violent crimes on average, as well as lower IQs than white people and Asians. I imagine, as far as Hispanics go, the lighter skinned ones are smarter than the darker skinned ones, since they are basically caucasian, racewise. You can’t deny the realities of substance, I guess. Culture plays a big part in how one treats others though.

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February 11, 2003 Renters Receiving U.S. Aid to Pay More Under Budget Proposal By ROBERT PEAR WASHINGTON, Feb. 10 – The Bush administration is proposing to increase rents charged to thousands of poor people who receive federal housing aid. The increase would be accomplished by changing three little words in federal law. The minimum rent for tenants, which is "not more than $50" a month under current law, would have to be "at least $50" a month under President Bush’s plan. In budget documents sent to Congress last week, the administration said the proposal was "intended to promote work" by people who live in federally subsidized housing. Some local authorities have a minimum rent of zero or $25 a month. Under Mr. Bush’s proposal, they would have to charge $50 a month and could set the minimum much higher for some or all tenants. Housing officials in New York, Philadelphia and Tacoma, Wash., said they did not have minimum rents. On average, they said, tenants pay 30 percent of their incomes in rent for their subsidized units. The proposal is the latest example of what critics describe as onerous requirements placed on poor people by Mr. Bush’s budget. Under it, families would face more difficulties in obtaining hardship exemptions from the minimum rent requirement. The existing law lists five situations in which local agencies have to grant exemptions, for example if a tenant has lost a job, suffered a death in the family or lost eligibility for cash assistance because of time limits on paying welfare benefits. The current law, adopted in 1998, also says a family receiving federal housing aid cannot be evicted because of failure to pay the minimum rent. These categories of mandatory exemptions would be repealed under the administration proposal. Exemptions would be granted in rare circumstances, and then only by the federal government. The proposed language says, "A hardship exemption may be granted on a case-by-case basis, as determined by the secretary" of housing and urban development. An assistant secretary of housing and urban development, Michael Liu, said today that the minimum rent proposal was "a reasonable way to promote work and responsibility." Mr. Liu said some people who lived in public housing or received rental aid in the form of Section 8 vouchers could afford to pay much more than $50 a month. "We wanted to provide flexibility to the local housing authorities," he said. The executive director of the Housing Authority of Reno, Nev., David C. Morton, said, "The proposal for a minimum rent, with no cap, would be a major change and could place significant burdens on some low-income people." Moreover, Mr. Morton added, the proposal to require families to obtain federal approval for exemptions is unrealistic. "As a practical matter," he asked, "what low-income family is going to be able to go through that process to get an exemption?" Mr. Morton is president of a national organization of directors of housing agencies. Local agencies might need to raise rents because Washington recently told them that their operating subsidies could be cut by up to 30 percent in the first quarter of this year. Federal officials said the cuts might be necessary because of a $250 million shortfall that resulted from government accounting errors and miscalculations. Housing officials in Boston, Philadelphia, Seattle, Tucson and Tampa, Fla., said they were considering layoffs, hiring freezes and cutbacks in repairs, maintenance, security and other services. After complaints from lawmakers of both parties, the administration said the cut might be 10 percent, if Congress appropriates the full amount that Mr. Bush requested for the current fiscal year. The executive director of the Tacoma Housing Authority, Peter J. Ansara, said: "Public housing residents should not have to pay for HUD’s miscalculations. The proposed cut comes at a time when, because of the economy, the need for public housing is greater than ever." The White House budget director, Mitchell E. Daniels Jr., said local authorities were partly responsible for the problem. "Some," Mr. Daniels said, "have been simply spending money faster than they were supposed to be spending it." Dorinda L. Wider, a lawyer at the Legal Aid Society of Minneapolis, said the local authority had a $50 minimum. "If the ceiling becomes a floor," Ms. Wider said, "we will see minimum rents set at varying levels that will be more burdensome to some tenants. We’ll see more homeless folks. That is not the government’s intent. But it could be the result, because people with very low incomes won’t be able to find affordable housing in our market." Mr. Liu said the minimum rent requirement would not apply to the elderly or the disabled. Government figures show that 128,000 households that receive federal housing aid have no income from welfare or work, even though the head of the household is neither elderly nor disabled. About 53,000 of the households were in public housing. The rest received rental assistance vouchers.

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Boston Busing Case Back in Federal Court By DENISE LAVOIE Associated Press Writer published 12:24 PM – FEBRUARY 10, 2003 Eastern Time   The decades-long, racially charged fight over assignments of thousands of children to Boston’s public schools returned to federal court Monday with plaintiffs saying race is still a consideration. At issue is the district’s three-year-old student-assignment policy, which reserves half the seats in the district’s elementary and middle schools for children who live within the schools’ "walk zones," and half for children from other neighborhoods. It is the city’s first student-assignment policy in 25 years that does not use students’ race to determine where they go to school. The Boston School Committee dropped race as a factor in 1999, reversing policies crafted after U.S. District Judge W. Arthur Garrity Jr. ordered city schools integrated by busing in 1974. However, 10 families are suing the school committee over the policy, said the current student assignment system still considers race in placing students in certain schools. "They have to push children out of the way so they can bring in children of other races," plaintiffs’ attorney Michael Williams said in opening statements Monday. School officials say the current system is race-neutral, incorporating parents’ desire to send their children to nearby schools and their wish to choose from schools in other parts of the city. "In this case, we will show that this plan is about choice _ that it is not about racial balancing," said Frances Cohen, an attorney for the Boston School Committee, said during her opening arguments. School Superintendent Thomas W. Payzant has said a return to all-neighborhood schools could reduce parental options because children would be forced to attend their closest school. In addition, some parents would have as many as 10 schools within walking distance, while others would have just two or three. "We’re defending it vigorously with the expectation that we must prevail to preserve choice as an important component of the way we assign kids to school," he said. The 1974 desegregation order was in response to a lawsuit from black parents, who claimed the city’s neighborhood school system had created two separate systems, one for whites and an inferior one for blacks. Garrity’s remedy, busing students out of their neighborhoods to racially integrate schools in others, sparked violent racial conflict, particularly in the mostly white South Boston and Charlestown sections. Protesters stoned busloads of children and there were riots at South Boston High School, and a bomb destroyed the local NAACP office. The National Guard was called up to keep the peace and the judge was under 24-hour guard by federal marshals for three and a half years after his ruling. Garrity died in 1999.

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Here we go again…

Question:

I don’t know if anyone has mentioned this, but the Charlotte (SC) Observer is doing a series on OxyContin, calling it the "heroin of the century." Other papers are picking up on the series and just like a year and a half ago when the NY Times began the Oxy scourge, we may be looking at a repeat performance. Some links: http://www.charlotte.com/mld/observer/search_results.htm http://www.charlotte.com/mld/charlotte/contact_us/feedback_np1/ The second is for writing to the paper and making an effort to ensure that our side of this b.s. is represented. They are rehashing all of the media reports from last year, and claim that addicts from other states where OxyContin was heavily abused are moving to S Carolinma in order to obtain it there. Give me a break. The series is an obvious attem,pt tom gain readership at the expense of our quality of life and in some cases, our lives. We can’t just sit back and let them bash away. They write that OxyContin is the most prescribed drug of its type. Any idiot can easily assume that the more it is prescribed, the more addicts will have access. Duh. I really think we need to let Debbie Cenziper (author) know that her attempts to be awarded a Pulitzer prize will have to take a bck seat to Barry Miers, the N Y Times reportes who has led the fight to ban OxyContin. This is my opinion only, however, not that of any other organization or company. Thanks Dave L Source: Sun News (SC) Copyright: 2002 Sun Publishing Co Website: http://web.thesunnews.com/ Details: http://www.mapinc.org/media/987 Author: Debbie Cenziper, Knight Ridder Note: Knight Ridder reporters Michael Henry and Cristina C. Breen, Database Editor Ted Mellnik, and researcher Sara Klemmer contributed to this report. OXYCONTIN ABUSE EXPLODES For weeks in 1999, Shana Dunn watched, sickened, as her fiance, Billy Elliott, grew addicted to OxyContin, a narcotic painkiller prescribed by her doctor for chronic discomfort in her arms and wrists. Now, three years later, law enforcement and addiction experts in the Carolinas say abuse of few other prescription drugs has ever struck so quickly, hurt so many or posed so complicated a challenge. Elliott, 35, would borrow a pill for a bad back or a toothache.  He always wanted more. On a spring afternoon in Spartanburg, the man Dunn planned to marry stumbled into the apartment, covered with mud and grass, mumbling words she could barely understand.  Elliott lurched like a drunk, but he didn’t smell of alcohol.  As Dunn, 26, tried to help Elliott into bed, she feared that the prescription drug, so capable of easing the pain that darkened her past, could devastate her future. Introduced in 1996, OxyContin delivered pain relief more powerful and longer-lasting than most other prescription narcotics.  But abusers, from long-time addicts to teens to some chronic pain patients, discovered that crushing OxyContin disables the drug’s patented time-release formula, releasing 12 hours-worth of narcotic at once.  When swallowed, snorted or injected, it produces an immediate, heroinlike high. As Shana Dunn struggled with one of the earliest cases of OxyContin addiction in the Carolinas, drug informants began to warn police of a new pill coursing through groups of mostly white, blue-collar prescription drug abusers. OxyContin was easier to get than heroin.  Cheaper than cocaine.  Gentler on the stomach than alcohol or similar prescription narcotics.  The addicts called it Oxy or OC. Experts suggest abuse hit the Carolinas largely because addicts from some of the hardest-hit states, such as West Virginia and Kentucky, moved to the region after law enforcement there cracked down. Also, two pain clinics in the Carolinas – one in Grover in Cleveland County, N.C., the other in Myrtle Beach – prescribed unusually high numbers of prescriptions for OxyContin and other narcotics to hundreds of people across the region.  Officials believe those clinics helped fuel a thriving and sometimes deadly OxyContin black market. Law enforcement and the medical community have faced a staggering challenge: Crack down on abuse of OxyContin without limiting supply of the drug to people who need it. "We kind of walk a tightrope here," says Richard Seidel, Drug Enforcement Administration deputy chief of the drug operations section.  "No one is saying OxyContin is a bad drug.  It’s a bad drug when it’s abused." An investigation by The Charlotte ( N.C.  ) Observer found: OxyContin abuse may have caused or contributed to at least 97 overdose deaths in the Carolinas in 2000 and 2001.  In most cases, other drugs or alcohol may have played a role.  A majority were accidental overdoses, though 19 were suspected suicides.  In some cases, casual users took the drug and died hours later.  In at least another 104 cases, oxycodone, the main ingredient in OxyContin, played a role in an overdose death.  It was unclear whether OxyContin or another oxycodone-based pain pill was involved. The Carolina death count is far higher than what was reported in a April national study, based on limited data.  The DEA estimated that OxyContin abuse may have played a role in 464 overdose deaths nationwide in the last two years.  But that estimate included only 14 S.C.  cases and none from North Carolina. In some areas in the Carolinas, distribution of OxyContin is among the nation’s heaviest.  DEA reports show those areas include Myrtle Beach and Spartanburg. OxyContin addiction has overwhelmed some drug detox centers already lacking staff and services.  And across the region, law enforcement has arrested hundreds of suppliers and dealers. In some Carolina communities, law enforcement officers fear young people are beginning to abuse OxyContin. The drug has been found at rave parties; some dealers say they’ve sold OxyContin to college students. At least nine doctors in two pain clinics have faced accusations of inappropriately prescribing OxyContin and other narcotic painkillers.  Some pharmacists and law enforcement officers believe OxyContin’s manufacturer, Connecticut-based Purdue Pharma, may have contributed to the problem in the Carolinas, particularly in the Myrtle Beach area, by overpromoting the drug for widespread use despite reports of crime and abuse. Purdue officials say they have responsibly marketed their product according to its approved use by the Food and Drug Administration and do not have regulatory or law enforcement authority over how physicians use it.  Purdue spent about $200 million on OxyContin promotional activities last year.  The company says that’s industry standard.  Purdue did not anticipate the extent of abuse involving OxyContin, and researchers there are now developing an abuse-resistant pill, says spokesman Jim Heins.  Purdue has also strengthened the warnings on the drug’s label. By all accounts, OxyContin is safe when taken as prescribed, though there’s a risk of addiction when taking any narcotic painkiller.  But while other prescription drugs can cause fatal overdoses, OxyContin is more potent than most pain pills because it is delivered in higher doses – making it attractive, and highly dangerous, to abusers.  "There are a number of cases where individuals literally took a single, large dose, and maybe had some alcohol or other drugs, and the next morning, they’re dead," says Dr. Andrew Mason, a forensic toxicologist in Boone who analyzed the Carolinas deaths for the Observer. Abuse of OxyContin has also fueled crime.  In Myrtle Beach, a man in a ski mask held a pharmacist and technician at gunpoint demanding OxyContin – not cash.  In Concord, police caught a former high-school social studies teacher trying to hire a hit man to kill two people who owed him money for OxyContin. And last month in Columbus County, N.C.,which borders Horry County, police sought 32 people accused of selling their Medicaid cards to drug dealers who billed the state for thousands of dollars in OxyContin prescriptions. OxyContin hailed for relief  To people with cancer, debilitating back aches, headaches that never go away, or elusive pain so severe that working, walking or even sleep becomes unmanageable, OxyContin is in every sense a miracle drug. A single pill offers pain patients 12 hours of steady relief.  And while many pain pills contain five milligrams of oxycodone, an opioid similar to morphine, OxyContin comes in strengths up to 16 times higher.  By releasing pain medicine through a patented time-release formula, patients can tolerate larger doses with fewer side effects. OxyContin has become the No.  1 prescribed narcotic of its kind in the United States, with about 2 million people taking the drug.  "The abuse is a tragedy, because the good far outweighs the bad," says Mark Gordon, with the National Foundation for the Treatment of Pain.  "It’s the most remarkable pain medication around, hands down."  By 2000, OxyContin sales in the United States reached almost $1 billion, 22 times more than in 1996, and the number of prescriptions grew to 5.8 million.  In 2000, 189 million prescriptions were dispensed for all opioid drugs, including OxyContin. Drug enforcement agents across the eastern United States worried. Reports from pharmacists, doctors and families described a growing and suspicious interest in OxyContin not only among addicts, but among young people experimenting with drugs and some pain patients who abused their medication either for a quick high or because they thought taking more of the drug would reduce their pain.  There were national reports of prescription forgeries and pharmacy thefts. Other prescription drugs, such as Dilaudid, have posed problems for law enforcement.  But drug enforcement agents say OxyContin abuse struck more swiftly than abuse of any other drug in decades. Rural areas in Maine, Alaska and Appalachia were hit first in the late 1990s, mainly in poor, working-class towns without easy access to illicit … read more »

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Oh Noooooo not again! This Debbie must really be hard up for a story to launch her to her big break..ya think? As soon as this decidedly snarky mood passes, I will write a cogent letter asap.   Thanks very much David, codeee – Hide quoted text — Show quoted text -I don’t know if anyone has mentioned this, but the Charlotte (SC) Observer is doing a series on OxyContin, calling it the "heroin of the century." Other papers are picking up on the series and just like a year and a half ago when the NY Times began the Oxy scourge, we may be looking at a repeat performance. Some links: http://www.charlotte.com/mld/observer/search_results.htm http://www.charlotte.com/mld/charlotte/contact_us/feedback_np1/ The second is for writing to the paper and making an effort to ensure that our side of this b.s. is represented. They are rehashing all of the media reports from last year, and claim that addicts from other states where OxyContin was heavily abused are moving to S Carolinma in order to obtain it there. Give me a break. The series is an obvious attem,pt tom gain readership at the expense of our quality of life and in some cases, our lives. We can’t just sit back and let them bash away. They write that OxyContin is the most prescribed drug of its type. Any idiot can easily assume that the more it is prescribed, the more addicts will have access. Duh. I really think we need to let Debbie Cenziper (author) know that her attempts to be awarded a Pulitzer prize will have to take a bck seat to Barry Miers, the N Y Times reportes who has led the fight to ban OxyContin. This is my opinion only, however, not that of any other organization or company. Thanks Dave L Source: Sun News (SC) Copyright: 2002 Sun Publishing Co Website: http://web.thesunnews.com/ Details: http://www.mapinc.org/media/987 Author: Debbie Cenziper, Knight Ridder Note: Knight Ridder reporters Michael Henry and Cristina C. Breen, Database Editor Ted Mellnik, and researcher Sara Klemmer contributed to this report. OXYCONTIN ABUSE EXPLODES For weeks in 1999, Shana Dunn watched, sickened, as her fiance, Billy Elliott, grew addicted to OxyContin, a narcotic painkiller prescribed by her doctor for chronic discomfort in her arms and wrists. Now, three years later, law enforcement and addiction experts in the Carolinas say abuse of few other prescription drugs has ever struck so quickly, hurt so many or posed so complicated a challenge. Elliott, 35, would borrow a pill for a bad back or a toothache.  He always wanted more. On a spring afternoon in Spartanburg, the man Dunn planned to marry stumbled into the apartment, covered with mud and grass, mumbling words she could barely understand.  Elliott lurched like a drunk, but he didn’t smell of alcohol.  As Dunn, 26, tried to help Elliott into bed, she feared that the prescription drug, so capable of easing the pain that darkened her past, could devastate her future. Introduced in 1996, OxyContin delivered pain relief more powerful and longer-lasting than most other prescription narcotics.  But abusers, from long-time addicts to teens to some chronic pain patients, discovered that crushing OxyContin disables the drug’s patented time-release formula, releasing 12 hours-worth of narcotic at once.  When swallowed, snorted or injected, it produces an immediate, heroinlike high. As Shana Dunn struggled with one of the earliest cases of OxyContin addiction in the Carolinas, drug informants began to warn police of a new pill coursing through groups of mostly white, blue-collar prescription drug abusers. OxyContin was easier to get than heroin.  Cheaper than cocaine.  Gentler on the stomach than alcohol or similar prescription narcotics.  The addicts called it Oxy or OC. Experts suggest abuse hit the Carolinas largely because addicts from some of the hardest-hit states, such as West Virginia and Kentucky, moved to the region after law enforcement there cracked down. Also, two pain clinics in the Carolinas – one in Grover in Cleveland County, N.C., the other in Myrtle Beach – prescribed unusually high numbers of prescriptions for OxyContin and other narcotics to hundreds of people across the region.  Officials believe those clinics helped fuel a thriving and sometimes deadly OxyContin black market. Law enforcement and the medical community have faced a staggering challenge: Crack down on abuse of OxyContin without limiting supply of the drug to people who need it. "We kind of walk a tightrope here," says Richard Seidel, Drug Enforcement Administration deputy chief of the drug operations section.  "No one is saying OxyContin is a bad drug.  It’s a bad drug when it’s abused." An investigation by The Charlotte ( N.C.  ) Observer found: OxyContin abuse may have caused or contributed to at least 97 overdose deaths in the Carolinas in 2000 and 2001.  In most cases, other drugs or alcohol may have played a role.  A majority were accidental overdoses, though 19 were suspected suicides.  In some cases, casual users took the drug and died hours later.  In at least another 104 cases, oxycodone, the main ingredient in OxyContin, played a role in an overdose death.  It was unclear whether OxyContin or another oxycodone-based pain pill was involved. The Carolina death count is far higher than what was reported in a April national study, based on limited data.  The DEA estimated that OxyContin abuse may have played a role in 464 overdose deaths nationwide in the last two years.  But that estimate included only 14 S.C.  cases and none from North Carolina. In some areas in the Carolinas, distribution of OxyContin is among the nation’s heaviest.  DEA reports show those areas include Myrtle Beach and Spartanburg. OxyContin addiction has overwhelmed some drug detox centers already lacking staff and services.  And across the region, law enforcement has arrested hundreds of suppliers and dealers. In some Carolina communities, law enforcement officers fear young people are beginning to abuse OxyContin. The drug has been found at rave parties; some dealers say they’ve sold OxyContin to college students. At least nine doctors in two pain clinics have faced accusations of inappropriately prescribing OxyContin and other narcotic painkillers.  Some pharmacists and law enforcement officers believe OxyContin’s manufacturer, Connecticut-based Purdue Pharma, may have contributed to the problem in the Carolinas, particularly in the Myrtle Beach area, by overpromoting the drug for widespread use despite reports of crime and abuse. Purdue officials say they have responsibly marketed their product according to its approved use by the Food and Drug Administration and do not have regulatory or law enforcement authority over how physicians use it.  Purdue spent about $200 million on OxyContin promotional activities last year.  The company says that’s industry standard.  Purdue did not anticipate the extent of abuse involving OxyContin, and researchers there are now developing an abuse-resistant pill, says spokesman Jim Heins.  Purdue has also strengthened the warnings on the drug’s label. By all accounts, OxyContin is safe when taken as prescribed, though there’s a risk of addiction when taking any narcotic painkiller.  But while other prescription drugs can cause fatal overdoses, OxyContin is more potent than most pain pills because it is delivered in higher doses – making it attractive, and highly dangerous, to abusers.  "There are a number of cases where individuals literally took a single, large dose, and maybe had some alcohol or other drugs, and the next morning, they’re dead," says Dr. Andrew Mason, a forensic toxicologist in Boone who analyzed the Carolinas deaths for the Observer. Abuse of OxyContin has also fueled crime.  In Myrtle Beach, a man in a ski mask held a pharmacist and technician at gunpoint demanding OxyContin – not cash.  In Concord, police caught a former high-school social studies teacher trying to hire a hit man to kill two people who owed him money for OxyContin. And last month in Columbus County, N.C.,which borders Horry County, police sought 32 people accused of selling their Medicaid cards to drug dealers who billed the state for thousands of dollars in OxyContin prescriptions. OxyContin hailed for relief  To people with cancer, debilitating back aches, headaches that never go away, or elusive pain so severe that working, walking or even sleep becomes unmanageable, OxyContin is in every sense a miracle drug. A single pill offers pain patients 12 hours of steady relief.  And while many pain pills contain five milligrams of oxycodone, an opioid similar to morphine, OxyContin comes in strengths up to 16 times higher.  By releasing pain medicine through a patented time-release formula, patients can tolerate larger doses with fewer side effects. OxyContin has become the No.  1 prescribed narcotic of its kind in the United States, with about 2 million people taking the drug.  "The abuse is a tragedy, because the good far outweighs the bad," says Mark Gordon, with the National Foundation for the Treatment of Pain.  "It’s the most remarkable pain medication around, hands down."  By 2000, OxyContin sales in the United States reached almost $1 billion, 22 times more than in 1996, and the number of prescriptions grew to 5.8 million.  In 2000, 189 million prescriptions were dispensed for all opioid drugs, including OxyContin. Drug enforcement agents across the eastern United States worried. Reports from pharmacists, doctors and families described a growing and suspicious interest in OxyContin not only among addicts, but among young people experimenting with drugs and some pain patients who abused their medication either for a quick high or

… read more »

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What a difficult time you’re having.  Surgeons can do some pretty amazing things so keep strong.  My prayers are with you. Marg – Hide quoted text — Show quoted text – {{{{{Steve}}}}} How are her spirits Steve, and yours?  This must be very discouraging. Thanks Walt. She was quite naturally worried last night, between the pain and the worry she wasn’t in good spirits. She’s been sedated since then, they left the respirator in because they are going to operate again around 3 this afternoon. We didn’t get back home until after 1 AM last night, so I was late getting to my accounting class this morning. Just as well, when I did get there it turned out to have been canceled anyway. I went on to my "C" class, and it was canceled also due to the professor being ill. I had already called off work this afternoon so I can be at the hospital, so I have a bit of time to get my head together. On the bright side, I have a friend who had about 3 feet of his large intestine removed due to Crohns about 2 years ago.  He now reports that he feels better than he ever has. That’s encouraging! The doctor that is doing the surgery said that you need at least 2 feet of small intestine to be able to eat. Any shorter and you have to have your food injected. She has 4 foot of good intestine, so that’s cutting it close but it’s still enough. She will have to have a colostomy bag, but just as a temporary measure. That was one of the things she was worried about. Also, her doctor is somewhat of a local legend around the Ashland Ky. area. She is considered the absolute best for these types of surgeries. So overall it could be much worse! And Walt, you have my best wishes for you and your family. I know that you are going through a lot yourself, and I hope that things turn out the very best for you and yours! Steve http://www.zoomnet.net/~steve

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Things took a turn for the worse for my mother yesterday

Steve, what is her first name, please.  I find it easier to pray for a specific person when that person has a name.  I do pray that she makes as complete a recovery as she can and is back home at the earliest possible moment. Best, Larry Try these: http://www.arthritis.org/ http://www.rheumatology.org/index.asp http://www.arthritis.co.za http://www.mayohealth.org/M http://home.earthlink.net/~athleticare/back.html

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- Hide quoted text — Show quoted text – Things took a turn for the worse for my mother yesterday. Her white count went up, and her fever spiked, so they decided to operate. They removed the part of her colon that they had identified as bad without any problem. However, a large section of her small intestine also had to be removed as it was on the verge of turning gangrenous. They are going to go back in this afternoon to see how much of the rest can be salvaged. The doctor said that about 4 foot of it looked really good, part of it was really bad, and they removed that section. Another section was iffy, and that’s the section they are trying to save. This appears to be another symptom of the blood flow restrictions that have caused her strokes. Parts of her body just aren’t getting enough blood to function properly. Steve http://www.zoomnet.net/~steve

(((((((((Steve)))))))))) sorry to hear of your mother’s problems. It hurts to see someone we love so dearly go through these things. My thoughts and prayers are with you and your family.     blondie

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Steve, My best to your mother and you.  Hope these surgeries are successful. — K.C. Washington State in the beautiful Columbia River Gorge

– Hide quoted text — Show quoted text – Things took a turn for the worse for my mother yesterday. Her white count went up, and her fever spiked, so they decided to operate. They removed the part of her colon that they had identified as bad without any problem. However, a large section of her small intestine also had to be removed as it was on the verge of turning gangrenous. They are going to go back in this afternoon to see how much of the rest can be salvaged. The doctor said that about 4 foot of it looked really good, part of it was really bad, and they removed that section. Another section was iffy, and that’s the section they are trying to save. This appears to be another symptom of the blood flow restrictions that have caused her strokes. Parts of her body just aren’t getting enough blood to function properly. Steve http://www.zoomnet.net/~steve

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{{{{{Steve}}}}} How are her spirits Steve, and yours?  This must be very discouraging.

Thanks Walt. She was quite naturally worried last night, between the pain and the worry she wasn’t in good spirits. She’s been sedated since then, they left the respirator in because they are going to operate again around 3 this afternoon. We didn’t get back home until after 1 AM last night, so I was late getting to my accounting class this morning. Just as well, when I did get there it turned out to have been canceled anyway. I went on to my "C" class, and it was canceled also due to the professor being ill. I had already called off work this afternoon so I can be at the hospital, so I have a bit of time to get my head together. On the bright side, I have a friend who had about 3 feet of his large intestine removed due to Crohns about 2 years ago.  He now reports that he feels better than he ever has.

That’s encouraging! The doctor that is doing the surgery said that you need at least 2 feet of small intestine to be able to eat. Any shorter and you have to have your food injected. She has 4 foot of good intestine, so that’s cutting it close but it’s still enough. She will have to have a colostomy bag, but just as a temporary measure. That was one of the things she was worried about. Also, her doctor is somewhat of a local legend around the Ashland Ky. area. She is considered the absolute best for these types of surgeries. So overall it could be much worse! And Walt, you have my best wishes for you and your family. I know that you are going through a lot yourself, and I hope that things turn out the very best for you and yours! Steve http://www.zoomnet.net/~steve

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~Krissy Akron, Ohio Senior Editor http://www.arthritiswebsite.com

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{{{{{Steve}}}}} How are her spirits Steve, and yours?  This must be very discouraging. On the bright side, I have a friend who had about 3 feet of his large intestine removed due to Crohns about 2 years ago.  He now reports that he feels better than he ever has. Hang in there! Walt – Hide quoted text — Show quoted text – Things took a turn for the worse for my mother yesterday. Her white count went up, and her fever spiked, so they decided to operate. They removed the part of her colon that they had identified as bad without any problem. However, a large section of her small intestine also had to be removed as it was on the verge of turning gangrenous. They are going to go back in this afternoon to see how much of the rest can be salvaged. The doctor said that about 4 foot of it looked really good, part of it was really bad, and they removed that section. Another section was iffy, and that’s the section they are trying to save. This appears to be another symptom of the blood flow restrictions that have caused her strokes. Parts of her body just aren’t getting enough blood to function properly. Steve http://www.zoomnet.net/~steve

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Things took a turn for the worse for my mother yesterday. Her white count went up, and her fever spiked, so they decided to operate. They removed the part of her colon that they had identified as bad without any problem. However, a large section of her small intestine also had to be removed as it was on the verge of turning gangrenous. They are going to go back in this afternoon to see how much of the rest can be salvaged. The doctor said that about 4 foot of it looked really good, part of it was really bad, and they removed that section. Another section was iffy, and that’s the section they are trying to save. This appears to be another symptom of the blood flow restrictions that have caused her strokes. Parts of her body just aren’t getting enough blood to function properly. Steve http://www.zoomnet.net/~steve

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– Hide quoted text — Show quoted text – Steve, Hoping and praying for a speedy recovery for your mom. Try to take care of yourself, too.  julie molli

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And I’ll ditto the ditto.  Don’t forget to take care of yourself while you’re facing all this stress.  I’m sorry you have this to deal with! — Barbara Joy If the refrigerator and computer weren’t so far apart, some of us wouldn’t get any exercise at all. – Hide quoted text — Show quoted text – Steve, Hoping and praying for a speedy recovery for your mom. Try to take care of yourself, too.  julie molli

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Thanks! I just got back from the hospital and she is doing well.

good to hear, Steve.  i have a couple aunts and a cousin who’ve had bouts with colitis.  the medications are sometimes pretty similar to what we take for arthritis — prednisone, immunosuppresents.  all of them have eventually been able to get off the meds and live, well, as normal as people in my family can get <g. i agree, doctors are a good thing :) Shelley "and praise will come to those whose kindness/leaves you without debt" — Neil Finn

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Well, we just got my mother home from the hospital last week, and she had to go back in today.

Sorry to read that, Steve.  I do hope she will recover completely. Best, Larry

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Good luck and many prayers for her speedy recovery Steve!                                            Be well,  Patty :) *~A friend is someone who reaches out for your hand, and touches your heart.~*

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Dang, Steve!  But, the odds do sound pretty good.  Hang in there.

Thanks! I just got back from the hospital and she is doing well. Her abdomen is less painful this morning, and they have a tube that removes the bile, so she isn’t throwing up all the time. The doctor was there checking on her, and seemed happy with her progress. They’re monitoring her closely, and she is in the surgical ward so if they do have to operate they can get her in quickly. The most nerve racking part of the whole thing was last night when they did the scope. The doctor told us that because they didn’t have time to prep her properly there was a small but very real chance of perforating the colon, which was life threatening. Fortunately, everything went well, and the doctor came back in to show pictures of the trouble spot. Gross, yet fascinating. <g To the anti-doctor people who seem to be popping up lately, all I can say is that without the intervention of the doctors, it is doubtful that my mother would be alive today. Steve http://www.zoomnet.net/~steve

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Steve Ratliff wrote To the anti-doctor people who seem to be popping up lately, all I can say is that without the intervention of the doctors, it is doubtful that my mother would be alive today.

Glad to hear she is coming through it, Steve.     If you can find the December (?) issue of Discover Magazine (I don’t have it or I’d send it to you), read the blip on the research that showed that installing certain parasites (worms, to be precise ;) into the bowels of colitis victims cured them.    There were only 5 people in the study, but the worms *cured* every one of them, as I recall.    Don’t know if your mom will want to try it :) , but "the more you know . . . " The way I put it is that doctors are nothing but mechanics who fix and maintain people.    BUT, mechanics have always held a special place and esteem in my view.   :)    I don’t like some things that individual docs do, and even some things that most docs do, but anyone who is "anti-doc" needs to have their head examined. Which, of course, some of the docs are glad to do, for a fee.  :) Seems silly to go pay for it when one can get it here for free, though.   <g Cush http://pages.prodigy.net/cushman4/index.htm . . . Fixing OA with G/CS http://pages.prodigy.net/cushman4/badback.htm . . .Bad Backs Page (166 Links) http://www.iso-trac.com . . . Fixing bad backs with traction http://pages.prodigy.net/cushman4/tips.htm . . . Tips for Newbies to ASA

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Sorry to hear about your Mother, Steve.  Hang in there – these ole dolls pull through some amazing stuff.  It is so hard when it is your parent – I’ve been there. You and your mother and your loved ones are in our prayers. Take care. Kathleen

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Steve wrote Thanks! I just got back from the hospital and she is doing well. Her abdomen is less painful this morning, and <snip

Sorry to hear your mother has to go through all this, Steve. As you said, though, she is still here, and that’s what makes it worth going through all the tubes, tests, and the other goodies that go with hospitalization. Tell your mom lots of people are praying for her to get well soon!   Take extra good care of yourself right now, too. Sincerely,  Liz G

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Steve, Hoping and praying for a speedy recovery for your mom. Try to take care of yourself, too.  julie molli

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So sorry to hear of all the troubles your mom is having.  But it sure is good to hear how they are taking care of her in the hospital.  I know that kind of thing is very hard to go through, but most people do quite well with colitis once they get it under control. We’ll be sending our healing thoughts her way. Best regards,

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Praying that the fluids will work.  Again, try to take care of yourself!         :O)  Mary Lynn (mlh)  (O:  :O)  "Of all the things I’ve lost, I miss my mind the most"  :O)                            (remove ma in email address)

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Keep the good thoughts.          Lyn

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Well, we just got my mother home from the hospital last week, and she had to go back in today. She was having bad stomach pains, diarrhea and vomiting. They did a scope and it turns out she has colitis due to lack of blood flow to a section of her colon. She’s on IV fluids and antibiotics in an effort to clear it up. Hopefully that will do the trick, otherwise they will have to operate. The doctor said that in about 90% of the cases the fluids and antibiotics well help it heal itself, so those are good odds. Steve http://www.zoomnet.net/~steve

Dang, Steve!  But, the odds do sound pretty good.  Hang in there. — Di dabell at access1 dot net

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Well, we just got my mother home from the hospital last week, and she had to go back in today. She was having bad stomach pains, diarrhea and vomiting. They did a scope and it turns out she has colitis due to lack of blood flow to a section of her colon. She’s on IV fluids and antibiotics in an effort to clear it up. Hopefully that will do the trick, otherwise they will have to operate. The doctor said that in about 90% of the cases the fluids and antibiotics well help it heal itself, so those are good odds. Steve http://www.zoomnet.net/~steve

Response:

Sorry to hear that Steve.  But, at least they caught it in time.  Hang in there. Walt – Hide quoted text — Show quoted text – Well, we just got my mother home from the hospital last week, and she had to go back in today. She was having bad stomach pains, diarrhea and vomiting. They did a scope and it turns out she has colitis due to lack of blood flow to a section of her colon. She’s on IV fluids and antibiotics in an effort to clear it up. Hopefully that will do the trick, otherwise they will have to operate. The doctor said that in about 90% of the cases the fluids and antibiotics well help it heal itself, so those are good odds. Steve http://www.zoomnet.net/~steve

Response:

Hope your mother improves quickly, Steve. — K.C. Washington State in the beautiful Columbia River Gorge

– Hide quoted text — Show quoted text – Well, we just got my mother home from the hospital last week, and she had to go back in today. She was having bad stomach pains, diarrhea and vomiting. They did a scope and it turns out she has colitis due to lack of blood flow to a section of her colon. She’s on IV fluids and antibiotics in an effort to clear it up. Hopefully that will do the trick, otherwise they will have to operate. The doctor said that in about 90% of the cases the fluids and antibiotics well help it heal itself, so those are good odds. Steve http://www.zoomnet.net/~steve

Response:

What a difficult time you’re having.  Surgeons can do some pretty amazing things so keep strong.  My prayers are with you. Marg – Hide quoted text — Show quoted text – {{{{{Steve}}}}} How are her spirits Steve, and yours?  This must be very discouraging. Thanks Walt. She was quite naturally worried last night, between the pain and the worry she wasn’t in good spirits. She’s been sedated since then, they left the respirator in because they are going to operate again around 3 this afternoon. We didn’t get back home until after 1 AM last night, so I was late getting to my accounting class this morning. Just as well, when I did get there it turned out to have been canceled anyway. I went on to my "C" class, and it was canceled also due to the professor being ill. I had already called off work this afternoon so I can be at the hospital, so I have a bit of time to get my head together. On the bright side, I have a friend who had about 3 feet of his large intestine removed due to Crohns about 2 years ago.  He now reports that he feels better than he ever has. That’s encouraging! The doctor that is doing the surgery said that you need at least 2 feet of small intestine to be able to eat. Any shorter and you have to have your food injected. She has 4 foot of good intestine, so that’s cutting it close but it’s still enough. She will have to have a colostomy bag, but just as a temporary measure. That was one of the things she was worried about. Also, her doctor is somewhat of a local legend around the Ashland Ky. area. She is considered the absolute best for these types of surgeries. So overall it could be much worse! And Walt, you have my best wishes for you and your family. I know that you are going through a lot yourself, and I hope that things turn out the very best for you and yours! Steve http://www.zoomnet.net/~steve

Response:

Things took a turn for the worse for my mother yesterday

Steve, what is her first name, please.  I find it easier to pray for a specific person when that person has a name.  I do pray that she makes as complete a recovery as she can and is back home at the earliest possible moment. Best, Larry Try these: http://www.arthritis.org/ http://www.rheumatology.org/index.asp http://www.arthritis.co.za http://www.mayohealth.org/M http://home.earthlink.net/~athleticare/back.html

Response:

- Hide quoted text — Show quoted text – Things took a turn for the worse for my mother yesterday. Her white count went up, and her fever spiked, so they decided to operate. They removed the part of her colon that they had identified as bad without any problem. However, a large section of her small intestine also had to be removed as it was on the verge of turning gangrenous. They are going to go back in this afternoon to see how much of the rest can be salvaged. The doctor said that about 4 foot of it looked really good, part of it was really bad, and they removed that section. Another section was iffy, and that’s the section they are trying to save. This appears to be another symptom of the blood flow restrictions that have caused her strokes. Parts of her body just aren’t getting enough blood to function properly. Steve http://www.zoomnet.net/~steve

(((((((((Steve)))))))))) sorry to hear of your mother’s problems. It hurts to see someone we love so dearly go through these things. My thoughts and prayers are with you and your family.     blondie

Response:

Steve, My best to your mother and you.  Hope these surgeries are successful. — K.C. Washington State in the beautiful Columbia River Gorge

– Hide quoted text — Show quoted text – Things took a turn for the worse for my mother yesterday. Her white count went up, and her fever spiked, so they decided to operate. They removed the part of her colon that they had identified as bad without any problem. However, a large section of her small intestine also had to be removed as it was on the verge of turning gangrenous. They are going to go back in this afternoon to see how much of the rest can be salvaged. The doctor said that about 4 foot of it looked really good, part of it was really bad, and they removed that section. Another section was iffy, and that’s the section they are trying to save. This appears to be another symptom of the blood flow restrictions that have caused her strokes. Parts of her body just aren’t getting enough blood to function properly. Steve http://www.zoomnet.net/~steve

Response:

{{{{{Steve}}}}} How are her spirits Steve, and yours?  This must be very discouraging.

Thanks Walt. She was quite naturally worried last night, between the pain and the worry she wasn’t in good spirits. She’s been sedated since then, they left the respirator in because they are going to operate again around 3 this afternoon. We didn’t get back home until after 1 AM last night, so I was late getting to my accounting class this morning. Just as well, when I did get there it turned out to have been canceled anyway. I went on to my "C" class, and it was canceled also due to the professor being ill. I had already called off work this afternoon so I can be at the hospital, so I have a bit of time to get my head together. On the bright side, I have a friend who had about 3 feet of his large intestine removed due to Crohns about 2 years ago.  He now reports that he feels better than he ever has.

That’s encouraging! The doctor that is doing the surgery said that you need at least 2 feet of small intestine to be able to eat. Any shorter and you have to have your food injected. She has 4 foot of good intestine, so that’s cutting it close but it’s still enough. She will have to have a colostomy bag, but just as a temporary measure. That was one of the things she was worried about. Also, her doctor is somewhat of a local legend around the Ashland Ky. area. She is considered the absolute best for these types of surgeries. So overall it could be much worse! And Walt, you have my best wishes for you and your family. I know that you are going through a lot yourself, and I hope that things turn out the very best for you and yours! Steve http://www.zoomnet.net/~steve

Response:

~Krissy Akron, Ohio Senior Editor http://www.arthritiswebsite.com

Response:

{{{{{Steve}}}}} How are her spirits Steve, and yours?  This must be very discouraging. On the bright side, I have a friend who had about 3 feet of his large intestine removed due to Crohns about 2 years ago.  He now reports that he feels better than he ever has. Hang in there! Walt – Hide quoted text — Show quoted text – Things took a turn for the worse for my mother yesterday. Her white count went up, and her fever spiked, so they decided to operate. They removed the part of her colon that they had identified as bad without any problem. However, a large section of her small intestine also had to be removed as it was on the verge of turning gangrenous. They are going to go back in this afternoon to see how much of the rest can be salvaged. The doctor said that about 4 foot of it looked really good, part of it was really bad, and they removed that section. Another section was iffy, and that’s the section they are trying to save. This appears to be another symptom of the blood flow restrictions that have caused her strokes. Parts of her body just aren’t getting enough blood to function properly. Steve http://www.zoomnet.net/~steve

Response:

Things took a turn for the worse for my mother yesterday. Her white count went up, and her fever spiked, so they decided to operate. They removed the part of her colon that they had identified as bad without any problem. However, a large section of her small intestine also had to be removed as it was on the verge of turning gangrenous. They are going to go back in this afternoon to see how much of the rest can be salvaged. The doctor said that about 4 foot of it looked really good, part of it was really bad, and they removed that section. Another section was iffy, and that’s the section they are trying to save. This appears to be another symptom of the blood flow restrictions that have caused her strokes. Parts of her body just aren’t getting enough blood to function properly. Steve http://www.zoomnet.net/~steve

Response:

– Hide quoted text — Show quoted text – Steve, Hoping and praying for a speedy recovery for your mom. Try to take care of yourself, too.  julie molli

Response:

And I’ll ditto the ditto.  Don’t forget to take care of yourself while you’re facing all this stress.  I’m sorry you have this to deal with! — Barbara Joy If the refrigerator and computer weren’t so far apart, some of us wouldn’t get any exercise at all. – Hide quoted text — Show quoted text – Steve, Hoping and praying for a speedy recovery for your mom. Try to take care of yourself, too.  julie molli

Response:

Thanks! I just got back from the hospital and she is doing well.

good to hear, Steve.  i have a couple aunts and a cousin who’ve had bouts with colitis.  the medications are sometimes pretty similar to what we take for arthritis — prednisone, immunosuppresents.  all of them have eventually been able to get off the meds and live, well, as normal as people in my family can get <g. i agree, doctors are a good thing :) Shelley "and praise will come to those whose kindness/leaves you without debt" — Neil Finn

Response:

Well, we just got my mother home from the hospital last week, and she had to go back in today.

Sorry to read that, Steve.  I do hope she will recover completely. Best, Larry

Response:

Good luck and many prayers for her speedy recovery Steve!                                            Be well,  Patty :) *~A friend is someone who reaches out for your hand, and touches your heart.~*

Response:

Dang, Steve!  But, the odds do sound pretty good.  Hang in there.

Thanks! I just got back from the hospital and she is doing well. Her abdomen is less painful this morning, and they have a tube that removes the bile, so she isn’t throwing up all the time. The doctor was there checking on her, and seemed happy with her progress. They’re monitoring her closely, and she is in the surgical ward so if they do have to operate they can get her in quickly. The most nerve racking part of the whole thing was last night when they did the scope. The doctor told us that because they didn’t have time to prep her properly there was a small but very real chance of perforating the colon, which was life threatening. Fortunately, everything went well, and the doctor came back in to show pictures of the trouble spot. Gross, yet fascinating. <g To the anti-doctor people who seem to be popping up lately, all I can say is that without the intervention of the doctors, it is doubtful that my mother would be alive today. Steve http://www.zoomnet.net/~steve

Response:

Steve Ratliff wrote To the anti-doctor people who seem to be popping up lately, all I can say is that without the intervention of the doctors, it is doubtful that my mother would be alive today.

Glad to hear she is coming through it, Steve.     If you can find the December (?) issue of Discover Magazine (I don’t have it or I’d send it to you), read the blip on the research that showed that installing certain parasites (worms, to be precise ;) into the bowels of colitis victims cured them.    There were only 5 people in the study, but the worms *cured* every one of them, as I recall.    Don’t know if your mom will want to try it :) , but "the more you know . . . " The way I put it is that doctors are nothing but mechanics who fix and maintain people.    BUT, mechanics have always held a special place and esteem in my view.   :)    I don’t like some things that individual docs do, and even some things that most docs do, but anyone who is "anti-doc" needs to have their head examined. Which, of course, some of the docs are glad to do, for a fee.  :) Seems silly to go pay for it when one can get it here for free, though.   <g Cush http://pages.prodigy.net/cushman4/index.htm . . . Fixing OA with G/CS http://pages.prodigy.net/cushman4/badback.htm . . .Bad Backs Page (166 Links) http://www.iso-trac.com . . . Fixing bad backs with traction http://pages.prodigy.net/cushman4/tips.htm . . . Tips for Newbies to ASA

Response:

Sorry to hear about your Mother, Steve.  Hang in there – these ole dolls pull through some amazing stuff.  It is so hard when it is your parent – I’ve been there. You and your mother and your loved ones are in our prayers. Take care. Kathleen

Response:

Steve wrote Thanks! I just got back from the hospital and she is doing well. Her abdomen is less painful this morning, and <snip

Sorry to hear your mother has to go through all this, Steve. As you said, though, she is still here, and that’s what makes it worth going through all the tubes, tests, and the other goodies that go with hospitalization. Tell your mom lots of people are praying for her to get well soon!   Take extra good care of yourself right now, too. Sincerely,  Liz G

Response:

Steve, Hoping and praying for a speedy recovery for your mom. Try to take care of yourself, too.  julie molli

Response:

So sorry to hear of all the troubles your mom is having.  But it sure is good to hear how they are taking care of her in the hospital.  I know that kind of thing is very hard to go through, but most people do quite well with colitis once they get it under control. We’ll be sending our healing thoughts her way. Best regards,

Response:

Praying that the fluids will work.  Again, try to take care of yourself!         :O)  Mary Lynn (mlh)  (O:  :O)  "Of all the things I’ve lost, I miss my mind the most"  :O)                            (remove ma in email address)

Response:

Keep the good thoughts.          Lyn

Response:

Well, we just got my mother home from the hospital last week, and she had to go back in today. She was having bad stomach pains, diarrhea and vomiting. They did a scope and it turns out she has colitis due to lack of blood flow to a section of her colon. She’s on IV fluids and antibiotics in an effort to clear it up. Hopefully that will do the trick, otherwise they will have to operate. The doctor said that in about 90% of the cases the fluids and antibiotics well help it heal itself, so those are good odds. Steve http://www.zoomnet.net/~steve

Dang, Steve!  But, the odds do sound pretty good.  Hang in there. — Di dabell at access1 dot net

Response:

Well, we just got my mother home from the hospital last week, and she had to go back in today. She was having bad stomach pains, diarrhea and vomiting. They did a scope and it turns out she has colitis due to lack of blood flow to a section of her colon. She’s on IV fluids and antibiotics in an effort to clear it up. Hopefully that will do the trick, otherwise they will have to operate. The doctor said that in about 90% of the cases the fluids and antibiotics well help it heal itself, so those are good odds. Steve http://www.zoomnet.net/~steve

Response:

Sorry to hear that Steve.  But, at least they caught it in time.  Hang in there. Walt – Hide quoted text — Show quoted text – Well, we just got my mother home from the hospital last week, and she had to go back in today. She was having bad stomach pains, diarrhea and vomiting. They did a scope and it turns out she has colitis due to lack of blood flow to a section of her colon. She’s on IV fluids and antibiotics in an effort to clear it up. Hopefully that will do the trick, otherwise they will have to operate. The doctor said that in about 90% of the cases the fluids and antibiotics well help it heal itself, so those are good odds. Steve http://www.zoomnet.net/~steve

Response:

Hope your mother improves quickly, Steve. — K.C. Washington State in the beautiful Columbia River Gorge

– Hide quoted text — Show quoted text – Well, we just got my mother home from the hospital last week, and she had to go back in today. She was having bad stomach pains, diarrhea and vomiting. They did a scope and it turns out she has colitis due to lack of blood flow to a section of her colon. She’s on IV fluids and antibiotics in an effort to clear it up. Hopefully that will do the trick, otherwise they will have to operate. The doctor said that in about 90% of the cases the fluids and antibiotics well help it heal itself, so those are good odds. Steve http://www.zoomnet.net/~steve

Response:

Hey Gregg! Welcome along, and welcome out of lurkville! Posting does help! You know…lurking is all very well, but you are never going to be part of a community by hiding behind your door and peering at the neighbours! Best wishes to you! And who knows…days 2 – 14 might be really easy! Paula

– Hide quoted text — Show quoted text – Hi all, Well, quit No. 3 in my life is about 24 hours old. It got bad earlier today so I decided to try the patch this time and it doesn’t seem too bad. I may actually live. <sacrcasm I’m so looking forward to days 2-14! </sarcasm Wish me luck. I may drop in more often this time to beg for help. I mostly lurked last time and obviously that didn’t work so I’m trying things I didn’t try before. Thanks for the support, I know this is quite a fun and supportive group. Talk to ya soon, g — There are 10 types of people in the world, those who understand binary, and those who don’t — No meter sig yet. I wrote one but haven’t put in a "copy to sig" function yet. At least I can see it.

Response:

Welcome Gregg, ever the Hell ya want to, i do that’s for sure.   If your pissed off come here and RANT LIKE HELL, do what ever it takes to quit.  I will be watching for your posts… :-) Taterbug has Chosen not to smoke for (still CT) Two weeks, three days, 15 hours, 13 minutes and 15 seconds. 529 cigarettes not smoked, saving $132.26. Life saved: 1 day, 20 hours, 5 minutes.

– Hide quoted text — Show quoted text – Hi all, Well, quit No. 3 in my life is about 24 hours old. It got bad earlier today so I decided to try the patch this time and it doesn’t seem too bad. I may actually live. <sacrcasm I’m so looking forward to days 2-14! </sarcasm Wish me luck. I may drop in more often this time to beg for help. I mostly lurked last time and obviously that didn’t work so I’m trying things I didn’t try before. Thanks for the support, I know this is quite a fun and supportive group. Talk to ya soon, g — There are 10 types of people in the world, those who understand binary, and those who don’t — No meter sig yet. I wrote one but haven’t put in a "copy to sig" function yet. At least I can see it.

Response:

Welcome…3rd time is the charm!  You can do it! — Steff Medic1455I have not smoked in :3 Weeks 3 Days 15 Hours 25 Minutes 36 Seconds I have not smoked 788 cigs.    I have saved  $157.71   I have added  5 Days

– Hide quoted text — Show quoted text – Hi all, Well, quit No. 3 in my life is about 24 hours old. It got bad earlier today so I decided to try the patch this time and it doesn’t seem too bad. I may actually live. <sacrcasm I’m so looking forward to days 2-14! </sarcasm Wish me luck. I may drop in more often this time to beg for help. I mostly lurked last time and obviously that didn’t work so I’m trying things I didn’t try before. Thanks for the support, I know this is quite a fun and supportive group. Talk to ya soon, g — There are 10 types of people in the world, those who understand binary, and those who don’t — No meter sig yet. I wrote one but haven’t put in a "copy to sig" function yet. At least I can see it.

Response:

Hey Gregg, nice to see you again chuck, pull up a chair and make yourself comfortable. Are you still riding your bike??? Are you going to use that as a quit aid again??? I remember you would ride away the craves even if it was in the middle of the night lol. There’s a few of us "lost souls" coming back for another go at the moment Gregg so at least we know what to expect eh ;) Nice to have you with us again :) hugs padders (

More than a year of suffering

Question:

I think you deny that benzos can be addicting. And we have given you ample proof of that.

In case there is any doubt. Here is just a small sample of that proof.          —— ADDICTION  -V-   DEPENDENCE —— The claim:  Benzodiazepines are addictive The fact: While some people use addicted and dependent interchangeably, they are not the same thing. An addictive substance is characterized as one that hyper activates dopamine pathways in the brain’s Limbic system and particularly it’s "pleasure/reward" center, the Nucleus accumbens.[1] To quote Dr Roy Baker, a board member of the American Society of Addiction Medicine [2]: :: All drugs with the potential to cause addictions share certain common :: neurobiological characteristics: they activate the mesolimbic system, :: principally the nucleus accumbens, causing increased dopaminergic :: activity in that area of the brain. This results in an increase in hedonic :: tone. and :: "It is important not to confuse physical dependence as evidenced by :: benzodiazepine withdrawal syndromes with addiction or drug dependence :: (DSM-IV). " Benzodiazepine not only don’t excite the N accumbens but have been shown to inhibit cocaine’s affect on dopamine receptors in the N accumbens. [3] They should have the same positive effect on other recreational drugs, for the same physiological reason. Certainly, there is much evidence that benzos do reduce the withdrawal effects of most recreational drugs. Consequently, benzodiazepines are being increasingly used to mediate drug withdrawal in detox centers. [4]   Another common test used to determine whether a drug is addictive is to apply the "3 C" test to its users. The term was coined by Dr David Smith of the Haight Ashbury Free Clinic and San Francisco Medical Center and is widely used by addiction specialists. To meet the addiction criterion, the patient must exhibit all three of the following: 1: Control: when the addicted person starts using their drug they     episodically lose control over their ingestion. This is something that rarely happens to benzodiazepine users. To quote Prof Heather Ashton: :: "Given the number of people who are prescribed benzodiazepines, :: relatively few patients increase their dosage…."                    http://www.a1b2c3.com/drugs/benz02.htm The American Psychiatrists Association made the same point in their "Benzodiazepine Dependence, Toxicity, and Abuse: A Task Force Report"  To quote: :: "There are no data to suggest that long-term therapeutic use of :: benzodiazepines by patients commonly leads to dose escalation or to :: recreational abuse" This is re-enforced by the recommendations in their current Panic Disorder III. Treatment Principles And Alternatives web page: :: "However, benzodiazepines may still be underused because of an :: inappropriate fear of addiction. The studies of long-term alprazolam :: treatment for panic disorder show that the doses patients use at 32 :: weeks of treatment are similar to those used at 8 weeks, indicating :: that, as a group, patients with panic disorder do not escalate :: alprazolam doses or display tolerance to alprazolam’s therapeutic :: effects, at least in the first 8 months of treatment. However, :: studies of dose escalation following longer periods of :: benzodiazepine use are generally lacking."               http://www.psych.org/clin_res/pg_panic_3.cfm If tolerance doesn’t develop within 8 months, then its unlikely to in 1 year, or 10, 20 or 30. The probable reason for this is that most with anxiety disorders (and also common types of epilepsy) have an impaired benzodiazepine/GABA receptor system. [5]  For these patients benzodiazepines only return to the benzo/GABA system to something approaching normal function. 2: Compulsion: getting and using the drug takes on more and more     importance or salience in the person’s life, crowding out     relationships and activities that were once important to them This is far from typical behavior in those taking benzodiazepines. It may occur in poly-drug abusers. However, then the behaviors is generally due to the recreational drug, not the benzodiazepine. 3: Consequences: they continue using the drug despite the drug causing     problems at home, problems in relationships, medical problems,     legal problems, emotional and psychiatric problems and finally     vocational problems. Again, this is not typical behaviors in those taking benzodiazepines in therapeutic doses.  It may occur at very high doses, but epileptics are prescribed benzos in large doses (typically 10-20mg+ Klonopin or equivalent), much higher than are used to treat anxiety disorders, and there is no evidence that epileptics develop these behaviors. Therefore, on all the criteria used to define addiction, benzodiazepines are not addictive drugs. However, they can and very often do cause dependency. Dependence is produced by the presence of a drug causing changes in body systems that then need to time to return to their pre drug state if the drug is withdrawn.  A drug doesn’t have to be active in  the brain for dependency to develop – many cannot pass the blood-brain-barrier, but they must for true addiction to develop. Benzodiazepines do over time produce a small bio-feedback reduction in both benzodiazepine receptors and expression of the neurotransmitter GABA. If the benzodiazepine is discontinued abruptly, this reduction in receptors and neurotransmitter can cause a rebound reaction with symptoms similar to anxiety and panic.  In most cases with a slow taper, withdrawal symptoms can be minimized to a comfortable level. Moreover, not all withdrawal symptoms may be due to these physiological changes. Some, perhaps most, can be produced by psychology, that is the mind. It is well known that benzo withdrawal effects can often be induced simply by making patients believe their benzodiazepine dose has been reduced, even though no reduction actually occurs. This has been shown in a number of studies. [6]   There is also evidence [7] that withdrawal is more intense in some patient groups, notably those who have neurotic personalities, females, former/current alcoholics, the less educated, and those with dependant personalities. Significantly, it appears that the worse the original anxiety disorder, the more severe the withdrawal. Probably the best indication that many of the withdrawal problems experienced by those who were taking benzodiazepines for anxiety disorders  are mostly psychological rather than chemical is the fact that the other main benzo using patient cohort, epileptics, seem to have much fewer problems. Indeed, there are very few reports in the medical literature of epileptics having difficult withdrawals and I’ve been unable to find even one case of "Protracted Withdrawal Syndrome." Yet typical anti seizure benzo doses are much higher than those usually needed to control anxiety, 10mg Klonopin being about average, but 20mg/day or higher is not unusual. It should also be noted that many medications and supplements can produce dependency, even some over the counter ones like vitamin C. This may produce rebound scurvy if stopped suddenly after long term use at high doses (1,000mg+/day). Symptoms may include bleeding gums and nails. Extreme reactions may cause both tooth and hair loss. Other commonly used drugs that can induce dependence include: antibiotics, most heart medications (beta-blockers, ACE inhibitors etc), some cholesterol lowering drugs, antidepressants, most painkillers – including OTC, some cancer drugs, valerian, and St John’s Wort.   References: [1] ::All drugs of abuse have been shown to act either directly or indirectly ::by increasing dopamine neurotransmission within the limbic system. Grace AA "The tonic/phasic model of dopamine system regulation and its implications for understanding alcohol and psycho stimulant craving." Addiction 2000 Aug;95 Suppl 2:S119-28 http://www.ncbi.nlm.nih.gov:80/entrez/query.fcgi?cmd=Retrieve&db=PubM… ::Nicotine, like other psychostimulant drugs of abuse, increases dopamine ::release in the principal terminal field of the mesolimbic system, the ::nucleus accumbens, and there is evidence that this mediates the ‘rewarding’ ::properties of the drug, which reinforce its self-administration. Balfour DJ, Wright AE, Benwell ME, Birrell CE "The putative role of extra-synaptic mesolimbic dopamine in the neurobiology of nicotine dependence." Behav Brain Res 2000 Aug;113(1-2):73-83 http://www.ncbi.nlm.nih.gov:80/entrez/query.fcgi?cmd=Retrieve&db=PubM… ::Addictive drugs share with natural rewards the property of stimulating ::dopamine transmission preferentially in the nucleus accumbens shell. Di Chiara G (2000) "Role of dopamine in the behavioural actions of nicotine related to addiction." Eur J Pharmacol, Mar 30;393(1-3):295-314 http://www.ncbi.nlm.nih.gov:80/entrez/query.fcgi?cmd=Retrieve&db=PubM… Tanda G, Loddo P, Di Chiara G. (1999) "Dependence of mesolimbic dopamine transmission on delta9-tetrahydrocannabinol."       [Cannabis] Eur J Pharmacol, Jul 2;376(1-2):23-6 http://www.ncbi.nlm.nih.gov:80/entrez/query.fcgi?cmd=Retrieve&db=PubM… [2] Quoted by David Woolfe of Yahoo’s Benzo group: http://groups.google.com/groups?q=+%22For+example,+READ+the+following… [3] Leri F, Franklin KB. (2000) "Diazepam in the ventral striatum dissociates dopamine-dependent and dopamine-independent place conditioning." Neuroreport, Aug 3;11(11):2553-7 http://www.ncbi.nlm.nih.gov:80/entrez/query.fcgi?cmd=Retrieve&db=PubM… Giorgetti M, Javaid … read more »

Response:

- Hide quoted text — Show quoted text – Squiggles wrote….. Yes, I am to some extent – to say that you should not go too far in withdrawal from Rivotril or any benzo. See……ASAP is a SUPPORT group, not a place to stand on a soap box, not a place to come to with hidden agendas. Go to benzoland and preach this shit there! I`m sure a few from there read ASAP. I’m not.  How can you tell. See……this is a perfect example of the games you play at ASAP. You just admitted above that you are using ASAP as a soap box to reach benzoland. You know perfectly well that some from benzoland read ASAP otherwise you would have never used ASAP as a soapbox. I’m not a member there for 6 months now. You`ll go back, you always have in the past. Where – are you reading these? UK research in counselling thread. Don`t you remember what you post here? I don’t recall – I doubt that I was serious – I am a kind person when you get to know me. How would you feel if I laughed at your suffering that you spoke about in this thread? Well…..you really did laugh when someone posted how life was for an Agoraphobic. Maybe something is wrong with me that I can`t find humor in others suffering. Why don`t you ask Ian about this incident, he is the one you laughed at……. Well, i have opinions – that does not mean I have knowledge. When your opinions have the potential to scare people from using the most effective medication there is for anxiety, then it is a problem. Bad thing about opinions is that they are frequently  not based in facts or knowledge. As for the hostility – well – I’m human too.  Must I have exactly the same opinions about anxiety and anxiolytics not to be treated like dirt? You state your opinions like they are facts. I could care less about your beliefs about benzo`s, I don`t think anyone here wants to change them. This is just getting so old. Not only do we have to deal with anti-benzo crap…….we seem to be having a influx of anti-SSRI`s posts. I wonder how many people have been scared off "life saving", "life changing for the bette"r medication because of these posts…..what is so sad is that so much of the info is just "OPINIONS" of one person stated like facts and absolute truths. Jackie

I’ll never be accepted here. This is doing wonders for my self esteem – I don’t recall insulting Ian but he seems to wear an alligator hide, so his tears will be of the crocodile species if any are shed at all. If I offended him ( i don’t even remember that ) sorry. Squiggles

Response:

Ian wrote….. She is on a mission as always to sow FUD (fear, uncertainty and doubt) about psych drugs. FUD huh?? I thought it meant ficked up delusions :P ~~~~~ <snipped some really passionate stuff :) Jackie

And I thought it was, "furtive unintelligible drivel". tnx, drr — The second nicest guy on the internet Need the ASAP Mini-FAQ? A copy is at www.drrhodes.org

Response:

and now I’m working for *the drug companies* (all of them?).

I say ol’ man, that’s getting a might greedy, what?!! Better leave one or two for someone else, methinks.   ROTFLMTsO Ian

Response:

Ian wrote….. She is on a mission as always to sow FUD (fear, uncertainty and doubt) about psych drugs.

FUD huh?? I thought it meant ficked up delusions :P ~~~~~ <snipped some really passionate stuff :) Jackie

Response:

are you working for the drug companies?

LOL! One must hand it to you. you *can* be entertaining sometimes. First I am a Scientologist and now I’m working for *the drug companies* (all of them?). Make up your mind, Irene. Anyway, this is my last word for now. Philip – Hide quoted text — Show quoted text –

Response:

- Hide quoted text — Show quoted text – Yes, your the f***wit who thinks we are a bunch of stupid drug pushers. I don’t think you are stupid and I don’t think you are drug pushers. …..    are you working for the drug companies? Squiggles I submit the accused has convicted herself on her own evidence! Ian

We rest our case. P.

Response:

Squiggles wrote….. Yes, I am to some extent – to say that you should not go too far in withdrawal from Rivotril or any benzo.

See……ASAP is a SUPPORT group, not a place to stand on a soap box, not a place to come to with hidden agendas. Go to benzoland and preach this shit there! I`m sure a few from there read ASAP. I’m not.  How can you tell.

See……this is a perfect example of the games you play at ASAP. You just admitted above that you are using ASAP as a soap box to reach benzoland. You know perfectly well that some from benzoland read ASAP otherwise you would have never used ASAP as a soapbox. I’m not a member there for 6 months now.

You`ll go back, you always have in the past. Where – are you reading these?

UK research in counselling thread. Don`t you remember what you post here? I don’t recall – I doubt that I was serious – I am a kind person when you get to know me.

How would you feel if I laughed at your suffering that you spoke about in this thread? Well…..you really did laugh when someone posted how life was for an Agoraphobic. Maybe something is wrong with me that I can`t find humor in others suffering. Why don`t you ask Ian about this incident, he is the one you laughed at……. Well, i have opinions – that does not mean I have knowledge.

When your opinions have the potential to scare people from using the most effective medication there is for anxiety, then it is a problem. Bad thing about opinions is that they are frequently  not based in facts or knowledge. As for the hostility – well – I’m human too.  Must I have exactly the same opinions about anxiety and anxiolytics not to be treated like dirt?

You state your opinions like they are facts. I could care less about your beliefs about benzo`s, I don`t think anyone here wants to change them. This is just getting so old. Not only do we have to deal with anti-benzo crap…….we seem to be having a influx of anti-SSRI`s posts. I wonder how many people have been scared off "life saving", "life changing for the bette"r medication because of these posts…..what is so sad is that so much of the info is just "OPINIONS" of one person stated like facts and absolute truths. Jackie

Response:

Yes, your the f***wit who thinks we are a bunch of stupid drug pushers. I don’t think you are stupid and I don’t think you are drug pushers.  

…..    are you working for the drug companies? Squiggles

I submit the accused has convicted herself on her own evidence! Ian

Response:

Squiggles, why are you at ASAP? Are you here to give support, get support, what? I think many of us are leery and suspicious of you and with very good reason.

She is on a mission as always to sow FUD (fear, uncertainty and doubt) about psych drugs. Here she claims that her "seizure/stroke" was caused by weaning of Klonopin. In another group where Lithium is more commonly used she blames changes to her Lithium doses for it.  And she posts anything negative she can find about antidepressants too. Particularly, SSRIs. And its not as if she’d ever taken one, so it can’t be a personal beef, just part of her ideology. And don’t believe her claims that she is no longer involved with the benzo group. She may no longer post there, but its been pointed out to me a number of times that whenever their ace chump, and I’m sure you know who I mean,  raises a topic, she posts something related in one of the newsgroups. If I remember right the last occasion was her posting a URL for a site about one of the chump’s gurus, Dr David Healy within hours of the prize chump eulogising the good Dr at the benzo group!  It seems they are still a tag-team partnership, probably orchestrated by Ray Nimmo. BTW-for the record, Dr Healy’s real position is not that he is against psych drugs as the prize chump claims (can’t have actually read any of Healy’s books – so what else is new!! SIGH), but mostly against the way the FDA controls the licensing etc. He believes that most meds, including psych ones, should be OTC items with patients allowed to buy whatever they think may help them.  Although I’ve haven’t seen him actually spelt it out in so many words, that would presumably include benzos. Ian

Response:

This is just getting so old. Not only do we have to deal with anti-benzo crap…….we seem to be having a influx of anti-SSRI`s posts. I wonder how many people have been scared off "life saving", "life changing for the bette"r medication because of these posts…

And I wonder about the co-incidence of them appearing at the same time as Irene returns. Judged on what she writes in the depression groups, she is as much anti ADs, and SSRIs in particular, as benzos!!! Ian

Response:

Squiggles wrote….. are you working for the drug companies?

LOL!! Okay, are we Scientologists or runners for drug companies??? You can`t have it both ways so choose one quickly, we haven`t all day :) Jackie

Response:

what the game is – things are not as they appear. You are the game player :) I am sorry for your year of suffering……

Thanks – I felt near death and I could not place my head on the pillow for pain – i fell in and out consciousness/sleep in 3-4 circadian rhythms — (a month). I don`t like to see anyone suffer. However, when I read your first post in this thread where you describe how the last year had been for you with a few comments aimed at soapbox.

Yes, I am to some extent – to say that you should not go too far in withdrawal from Rivotril or any benzo.  I`m sure a few from there read ASAP. I’m not.  How can you tell. My biggest concern is that after a year of peace for the most part between the two groups, that you problems.

I’m not a member there for 6 months now.  I have also seen other comments by you about benzoland in other threads, if you have issues with that group, take it there and leave ASAP out of it.

Where – are you reading these? Squiggles, why are you at ASAP? Are you here to give support, get support, what?

To share what I have learned — to learn why Rivotril is so different from XANAX.  I think many of us are leery and suspicious of you and with very good reason. I will never forget when someone here described to you what life as an agoraphobic was like and you thought it was funny.

I don’t recall – I doubt that I was serious – I am a kind person when you get to know me. You have also stated here that there is no such thing as PD, you don`t believe in therapy but suggested pot as a alternative treatment for anxiety…..the list of things you have said or pulled here goes on, and you wonder why you are treated with such hostility?

Well, i have opinions – that does not mean I have knowledge. As for the hostility – well – I’m human too.  Must I have exactly the same opinions about anxiety and anxiolytics not to be treated like dirt? Anyway, as I said I thought I might share my experiences; I think the benzo groups has some things right and some things not so.  I left mainly because of the reinstatement issue. Squiggles

Response:

what the game is – things are not as they appear.

You are the game player :) I am sorry for your year of suffering……I don`t like to see anyone suffer. However, when I read your first post in this thread where you describe how the last year had been for you with a few comments aimed at soapbox. I`m sure a few from there read ASAP. My biggest concern is that after a year of peace for the most part between the two groups, that you problems. I have also seen other comments by you about benzoland in other threads, if you have issues with that group, take it there and leave ASAP out of it. Squiggles, why are you at ASAP? Are you here to give support, get support, what? I think many of us are leery and suspicious of you and with very good reason. I will never forget when someone here described to you what life as an agoraphobic was like and you thought it was funny. You have also stated here that there is no such thing as PD, you don`t believe in therapy but suggested pot as a alternative treatment for anxiety…..the list of things you have said or pulled here goes on, and you wonder why you are treated with such hostility? Jackie

Response:

- Hide quoted text — Show quoted text – I think you deny that benzos can be addicting. And we have given you ample proof of that.   I am always willing to learn and listen. That will be the day. You are *still* posting misinformation about addiction.   Why is it so hard to get off Rivotril?  Why are the panic attacks of XANAX so much different from the panic attacks of RIVOTRIL? Do you know the answers to all this stuff? YMMV. Many people have stopped Rivotril without much trouble by slowly tapering off. I take at that by *panic attacks of Xanax* you mean *panic attacks caused by stopping Xanax*? Your comparison between *your* PA’s geting off of Xanax and Rivotril have no validity beyond what you seem to have experienced. What *you* experienced cannot be generalized into universal truths. You are not WE.  This is a ng, and if I have anxiety and it is caused from anxiolytics, and I am not throwing around obscenities and insults as you are, I can post if I like. Nobody can stop anybody else from posting whatever they want to post here. But WE *can* and *will* challenge misinformation. Anxiolytics work for anxiety and do not cause it as a rule. The rest of your story is so confused that I can’t make head or tails of it (hm, folx, is this English? ;) ) Once more: we have gone over this time and again with you. Why repeat it all over again? It serves no purpose. WE don’t like it and it can hardly be fun for you. So let’s agree to disagree on benzo addiction and call it a day. Philip

What is "We" – have you cloned or are you voted as representative of this group?  I thought I could share information about anxiety caused by cessation of R and then stabilization by reinstatement of the dose.   The ludicrous arguments and assumptions about a recreational drug user by Liz, and the *uck words by Ian, may be a certain class of English, but hardly the King’s. Do you really want to understand what I am saying? I think I am about the only person on the net who has tried to take an impartial view to discussing this.   BTW I am not the only person who states these drugs can be addicting – you can look at the American Family Physician, you can look at the Merck Manual, you can look at any site on the net and addiction of some sort is mentioned. I overheard my pharmacist telling someone they were getting off too slowly – these drugs are addictive; you know they are – the question is how much, how long, should you get off, should you stay on. I find the personal insults on top of the attempt to state the case, a bit rough — are you working for the drug companies? Squiggles

Response:

I think you deny that benzos can be addicting.

And we have given you ample proof of that.   I am always willing to learn and listen.

That will be the day. You are *still* posting misinformation about addiction.   Why is it so hard to get off Rivotril?  Why are the panic attacks of XANAX so much different from the panic attacks of RIVOTRIL? Do you know the answers to all this stuff?

YMMV. Many people have stopped Rivotril without much trouble by slowly tapering off. I take at that by *panic attacks of Xanax* you mean *panic attacks caused by stopping Xanax*? Your comparison between *your* PA’s geting off of Xanax and Rivotril have no validity beyond what you seem to have experienced. What *you* experienced cannot be generalized into universal truths. You are not WE.  This is a ng, and if I have anxiety and it is caused from anxiolytics, and I am not throwing around obscenities and insults as you are, I can post if I like.

Nobody can stop anybody else from posting whatever they want to post here. But WE *can* and *will* challenge misinformation. Anxiolytics work for anxiety and do not cause it as a rule. The rest of your story is so confused that I can’t make head or tails of it (hm, folx, is this English? ;) ) Once more: we have gone over this time and again with you. Why repeat it all over again? It serves no purpose. WE don’t like it and it can hardly be fun for you. So let’s agree to disagree on benzo addiction and call it a day. Philip – Hide quoted text — Show quoted text –

Response:

Squiggles Now F**** off please. Ian

It doesn’t seem to matter which position one takes on this – this unsympathetic post makes me wonder what the game is – things are not as they appear. Squiggles

Response:

Ian, I’m going to ignore your insults because they stand in the way of discussing the issues – they are infact a means of intimidation: Here goes: Yes, your the f***wit who thinks we are a bunch of stupid drug pushers.

I don’t think you are stupid and I don’t think you are drug pushers.  I think you deny that benzos can be addicting. How we both know that it was neither a stroke or a seizure, don’t we? Because your doctor told you so, didn’t he?

No, we don’t — the EEG which was taken about 2 months after this "boomerang" occurrence could not assusre me that it would show a stroke or seizure (this was said by an external doctor who came to visit my home – not my own family doctor).  I don’t know what it was – it left me sick for a month and it was like no other withdrawal.  I could not walk straight, I had sweats, my head could not touch the pillow from the pain, and I had severe motor and psychological depression.  I was sick. The trouble with you is that you are in denial about your true condition. You don’t want to believe you have any psych disorder, that your just a victim of incompetent doctors. And AFAIC that’s cool. Your the one that is suffering as a result, not anyone else.

That may be so.  However, remember that it was my decision against the doctors’ to get off the XANAX – which did infact end the panic attacks.  The rivotril did not work that way.  My doctor congratulated me on getting off the XANAX – so what do you make of that? My later participation at Benzoland was fraught with discussion over the virtues/necessity of reinstatement in the event that a person reaches a critical state of pain and withdrawal – such as mine.  I quoted material from Addiction Medicine sites (e.g. the American Family Physician, the Merck), but I was quite outnumbered on this topic, the majority opinion being that reinstatement "tweaked the receptors" Yes, well some of us here know that your friends don’t have a clue. This seems to be just another example, in a long line of such crap. Some of which you claim to have written!!

They don’t have a clue about reinstatement – but they have a clue about some things.  How come my doctor allowed me to go on and see how it went?  You see, it’s not something everyone knows about. But, hey, what would we ignorant drug pushers know, huh?

Don’t be so *ucking sensitive.  I am always willing to learn and listen.  Why was I given XANAX when I did not need it? Why was I give Rivotril – is bp part of epilepsy – this is something that is being theorized – not known.  Why is it so hard to get off Rivotril?  Why are the panic attacks of XANAX so much different from the panic attacks of RIVOTRIL? Do you know the answers to all this stuff? I did try to reach David Woolfe whom I assisted in writing the FAQ, regarding the reinstatement (Dr. Ashton says, as I recall, try not to go back as much as possible).  I was not successful in getting through his e-mail. I might have misjudged Counsellor Woolfe. Maybe he isn’t as stupid as I thought!

Counsellor Woolfe is either a coward or a Scientologist, either way he’s reached his limits.  We never did hear how he fared on his Rivotril withdrawal; he just faded away with no answer; rather cowardly. The people at alt.support.depression.medication helped me immensely. Then I suggest you stay there. We’ve heard enough of your bullshit here to last a life time.

You are not WE.  This is a ng, and if I have anxiety and it is caused from anxiolytics, and I am not throwing around obscenities and insults as you are, I can post if I like. Now F**** off please.

As I said, your intimidations won’t work in clouding the issues, because I think that is what you are trying to do.  Smoke and mirrors. Squiggles

Response:

- Hide quoted text — Show quoted text -ubject: More than a year of suffering Hi, Do you remember me?  In the hope that I would finally reach a state of detoxification which would get rid of withdrawal symptoms, I have undergone very painful w/d experiences, including something resembling a seizure or stroke.  This happened in August, when nearing 0.125 clonazepam from an initial 1.0 mg a year before.  The year before, I just had myoclonic fits, but this one was bad.  It left me without memory for a short 20 minutes, migraine headaches in waves, blood pressure fluctuations, inability to walk straight, and an axe feeling in the back of the head, as well as severe motor and phychological depression. I was still at the benzo group, and Ray as well as other members assured me that it would pass, and this had been experienced by many others. I was sick for a month and not able to make any decision. My doctor said it was caused by withdrawal. My husband rather freaked, and gave me 0.250mg (I am talking about clonazepam), and a week later, as the same thing seemed to be happening, took it up to 0.50mg, which made my life liveable. My doctor said to see me in 6 months and keep at that if I can handle it. And I did see my doctor because I was not getting better, I was getting worse, with actual severe panic attacks re-emerging (anohter trip to the Emergency); My doctor doubled the dose to the initial 1.0. I will be reviewed in a month and then in 6 months, the whole thing will be reviewed. My later participation at Benzoland was fraught with discussion over the virtues/necessity of reinstatement in the event that a person reaches a critical state of pain and withdrawal – such as mine.  I quoted material from Addiction Medicine sites (e.g. the American Family Physician, the Merck), but I was quite outnumbered on this topic, the majority opinion being that reinstatement "tweaked the receptors" or it was worse if you got on after getting off, or it would not work because there had been structural brain changes.  I hope I am not being too optimistic in saying (as I did then through experience) that raising the dose, as my doc. has done – seems to be doing me good. I hope I am not being premature in my optimism, after so many months of suffering. I did try to reach David Woolfe whom I assisted in writing the FAQ, regarding the reinstatement (Dr. Ashton says, as I recall, try not to go back as much as possible).  I was not successful in getting through his e-mail. My case may be different because I am bp and I have been taking the K for more than 10 years without much increase. I am uncertain about many things.  The Xanax withdrawal was easy (a small dose) and my doc. thought that was a good thing to do, but not so for the Rivotril. I thought, that after many acrymonious posts in the past, this is something I should do. The people at alt.support.depression.medication helped me immensely. Squiggles

do you take anything for mania?

Response:

Hi, Do you remember me?  

Yes, your the f***wit who thinks we are a bunch of stupid drug pushers. In the hope that I would finally reach a state of detoxification which would get rid of withdrawal symptoms, I have undergone very painful w/d experiences, including something resembling a seizure or stroke.  

How we both know that it was neither a stroke or a seizure, don’t we? Because your doctor told you so, didn’t he? The trouble with you is that you are in denial about your true condition. You don’t want to believe you have any psych disorder, that your just a victim of incompetent doctors. And AFAIC that’s cool. Your the one that is suffering as a result, not anyone else. – Hide quoted text — Show quoted text -This happened in August, when nearing 0.125 clonazepam from an initial 1.0 mg a year before.  The year before, I just had myoclonic fits, but this one was bad.  It left me without memory for a short 20 minutes, migraine headaches in waves, blood pressure fluctuations, inability to walk straight, and an axe feeling in the back of the head, as well as severe motor and phychological depression. I was still at the benzo group, and Ray as well as other members assured me that it would pass, and this had been experienced by many others. I was sick for a month and not able to make any decision. My doctor said it was caused by withdrawal. My husband rather freaked, and gave me 0.250mg (I am talking about clonazepam), and a week later, as the same thing seemed to be happening, took it up to 0.50mg, which made my life liveable. My doctor said to see me in 6 months and keep at that if I can handle it. And I did see my doctor because I was not getting better, I was getting worse, with actual severe panic attacks re-emerging (anohter trip to the Emergency); My doctor doubled the dose to the initial 1.0. I will be reviewed in a month and then in 6 months, the whole thing will be reviewed. My later participation at Benzoland was fraught with discussion over the virtues/necessity of reinstatement in the event that a person reaches a critical state of pain and withdrawal – such as mine.  I quoted material from Addiction Medicine sites (e.g. the American Family Physician, the Merck), but I was quite outnumbered on this topic, the majority opinion being that reinstatement "tweaked the receptors"

Yes, well some of us here know that your friends don’t have a clue. This seems to be just another example, in a long line of such crap. Some of which you claim to have written!! But, hey, what would we ignorant drug pushers know, huh? or it was worse if you got on after getting off, or it would not work because there had been structural brain changes.  I hope I am not being too optimistic in saying (as I did then through experience) that raising the dose, as my doc. has done – seems to be doing me good. I hope I am not being premature in my optimism, after so many months of suffering. I did try to reach David Woolfe whom I assisted in writing the FAQ, regarding the reinstatement (Dr. Ashton says, as I recall, try not to go back as much as possible).  I was not successful in getting through his e-mail.

I might have misjudged Counsellor Woolfe. Maybe he isn’t as stupid as I thought! My case may be different because I am bp and I have been taking the K for more than 10 years without much increase. I am uncertain about many things.  The Xanax withdrawal was easy (a small dose) and my doc. thought that was a good thing to do, but not so for the Rivotril. I thought, that after many acrymonious posts in the past, this is something I should do. The people at alt.support.depression.medication helped me immensely.

Then I suggest you stay there. We’ve heard enough of your bullshit here to last a life time. If you’re suffering because of the crap you believe then try smoking some of that pot you claim is better for us than benzos. Or how about heroin? I’ve read you think that the opiates are pretty good too. SIGH! Squiggles

Now F**** off please. Ian

Response:

do you take anything for mania?

Yes, lithium and Rivotril – I am dx’d bp. Squiggles

Response:

Hi, Do you remember me?  In the hope that I would finally reach a state of detoxification which would get rid of withdrawal symptoms, I have undergone very painful w/d experiences, including something resembling a seizure or stroke.

<snip Hello, Squiggles.  I used to be on meds and had severe w/d when I went off of them two years ago.  It’s scary messing with this powerful of medication, but it’s what some of us must do to improve (I’ll be going back on meds in a few weeks!).  I hope you feel better real soon! Frost

Response:

Hello, Squiggles.  I used to be on meds and had severe w/d when I went off of them two years ago.  It’s scary messing with this powerful of medication, but it’s what some of us must do to improve (I’ll be going back on meds in a few weeks!).  I hope you feel better real soon! Frost

Thanks very much Frost, I know that I need the medication (lithium, Synthroid and some kind of anti-convulsant or benzo) – I just don’t know why – lack of biochemistry in college and physiological psych., not to mention psychopharmacology, psychiatry, and neurology – but I did study sensation and perception and learning (the hardest course in Psych). So this ignorance make me uncertain.   I really appreciate your kind post. tx Squiggles

Response:

Hi, Do you remember me?  In the hope that I would finally reach a state of detoxification which would get rid of withdrawal symptoms, I have undergone very painful w/d experiences, including something resembling a seizure or stroke.  This happened in August, when nearing 0.125 clonazepam from an initial 1.0 mg a year before.  The year before, I just had myoclonic fits, but this one was bad.  It left me without memory for a short 20 minutes, migraine headaches in waves, blood pressure fluctuations, inability to walk straight, and an axe feeling in the back of the head, as well as severe motor and phychological depression. I was still at the benzo group, and Ray as well as other members assured me that it would pass, and this had been experienced by many others. I was sick for a month and not able to make any decision. My doctor said it was caused by withdrawal. My husband rather freaked, and gave me 0.250mg (I am talking about clonazepam), and a week later, as the same thing seemed to be happening, took it up to 0.50mg, which made my life liveable. My doctor said to see me in 6 months and keep at that if I can handle it. And I did see my doctor because I was not getting better, I was getting worse, with actual severe panic attacks re-emerging (anohter trip to the Emergency); My doctor doubled the dose to the initial 1.0. I will be reviewed in a month and then in 6 months, the whole thing will be reviewed. My later participation at Benzoland was fraught with discussion over the virtues/necessity of reinstatement in the event that a person reaches a critical state of pain and withdrawal – such as mine.  I quoted material from Addiction Medicine sites (e.g. the American Family Physician, the Merck), but I was quite outnumbered on this topic, the majority opinion being that reinstatement "tweaked the receptors" or it was worse if you got on after getting off, or it would not work because there had been structural brain changes.  I hope I am not being too optimistic in saying (as I did then through experience) that raising the dose, as my doc. has done – seems to be doing me good. I hope I am not being premature in my optimism, after so many months of suffering. I did try to reach David Woolfe whom I assisted in writing the FAQ, regarding the reinstatement (Dr. Ashton says, as I recall, try not to go back as much as possible).  I was not successful in getting through his e-mail. My case may be different because I am bp and I have been taking the K for more than 10 years without much increase. I am uncertain about many things.  The Xanax withdrawal was easy (a small dose) and my doc. thought that was a good thing to do, but not so for the Rivotril. I thought, that after many acrymonious posts in the past, this is something I should do. The people at alt.support.depression.medication helped me immensely. Squiggles

Response:

The worst SBTX story you ever heard

Question:

I’ve often been told that, to feel better, examine the life of someone worse off. In order to feel less hostile toward my SBTX, I am soliciting your stories about the worst STBX you’ve ever heard of. Drug addicts, murderers, vegetarians, you name it. Tell me your worst, so I don’t feel so bad about mine. The worst I ever heard, I think, was an ex-wife who shopped each of the three kids to various doctors until she could get an deficit-disorder diagnosis for the kid, because she would receive more money from social services if the kid was disabled. The kids, of course, were given a psychologically-damaging label. The father had no input to this, for reasons I never learned. – Gerome

Response:

I’m paying $3000/month to my ex-wife, for child support and alimony ….. how’s that for pain? Even after paying her all this money, she still does everything possible to make my life miserable, and she’s the one that divorced me.   Her bi-polar condition doesn’t help things either ….

Response:

How’s this? 9 years of drug addictions ,  12 + detox centers, 3 suicide attempts, 1 year of prescriptions drug abuse,  2 days on a life support system, and he just left my son and I to live with his counselor from his last detox- who happens to be his new girlfriend. Hey guess what I feel so much better now that he’s gone!

– Hide quoted text — Show quoted text – I’m paying $3000/month to my ex-wife, for child support and alimony ….. how’s that for pain? Even after paying her all this money, she still does everything possible to make my life miserable, and she’s the one that divorced me.   Her bi-polar condition doesn’t help things either ….

Response:

My X-wife gave me herpes.  What a bitch she was!

– Hide quoted text — Show quoted text – I’ve often been told that, to feel better, examine the life of someone worse off. In order to feel less hostile toward my SBTX, I am soliciting your stories about the worst STBX you’ve ever heard of. Drug addicts, murderers, vegetarians, you name it. Tell me your worst, so I don’t feel so bad about mine. The worst I ever heard, I think, was an ex-wife who shopped each of the three kids to various doctors until she could get an deficit-disorder diagnosis for the kid, because she would receive more money from social services if the kid was disabled. The kids, of course, were given a psychologically-damaging label. The father had no input to this, for reasons I never learned. – Gerome

Response:

I’ve often been told that, to feel better, examine the life of someone worse off. In order to feel less hostile toward my SBTX, I am soliciting your stories about the worst STBX you’ve ever heard of. Drug addicts, murderers, vegetarians, you name it. Tell me your worst, so I don’t feel so bad about mine.

I probably could have given you some good ones a couple years back, but i’ve gotten past them and look at them as water under the bridge now.  My ex is being a good Dad to my kids, and when we split that was the one thing i asked of him, and nothing else really.  To please take good care of the kids..   There used to be fighting, resentment and all that negative stuff, but it’s just not there anymore…    Maybe this can offer some hope?

Response:

Back from "hiatus" for the night, killing some time, and this topic caught my eye.  Though I know that other’s have heavier crosses to bear, the latest "gift" I received from the stbx <30 days and counting to change to ex was my arrest (no wolfie, I didn’t do what you might be thinking – grin). I quite naively believed the stbx when he said that he took care of the change of ownerships of our vehicles (he has mine, I have his) and due to other happenings in life, put it in the "done" pile, simply awaiting the registration documents the stbx claimed were "in the mail".  Seems "my" car was recently involved in a hit and run at his favorite drinking hole.  Thank God no one was hurt, and witnesses reported that the driver smashed the side of a parked car then quickly sped off.  Since the car was in my name, the police came ‘aknockin’ at my door, toddler at my side, and asked if I had a lawyer (LOL, had to chuckle —- asking a soon to be divorcee if she has a lawyer).  Fortunately, after proving I was out of town that day and showing the copy of the signed over registration form <yes, I do somethings right :) , the officer dropped all charges and I kindly pointed the way to the stbx’s house. This is but one of many "ruts" I have traveled on the road of divorce.  I am the poster child of what NOT to do during the separation period.  Mind you, this story pails in comparison to last year when he filed a false claim to Children’s Aid (he’s been charged twice for child abuse) against me, had a relationship with the 23 year old worker put in charge of the case  who, for obvious reasons was not fond of me….well, feel free to ask if you want to hear that one <g. Yes, you do heal, and I have many blessings, most of all the love of my children who continue to thrive despite the rocks in the road.  We share the love of a fantastic man who has come into our lives and yes, though I thought I would never say it, I am considering marriage, though wayyyyyyyyyyyyy down the road. :) God bless us all…. Kats *** The only thing that stays the same is change *** — *** The only thing that stays the same is change ***

– Hide quoted text — Show quoted text – I’ve often been told that, to feel better, examine the life of someone worse off. In order to feel less hostile toward my SBTX, I am soliciting your stories about the worst STBX you’ve ever heard of. Drug addicts, murderers, vegetarians, you name it. Tell me your worst, so I don’t feel so bad about mine. The worst I ever heard, I think, was an ex-wife who shopped each of the three kids to various doctors until she could get an deficit-disorder diagnosis for the kid, because she would receive more money from social services if the kid was disabled. The kids, of course, were given a psychologically-damaging label. The father had no input to this, for reasons I never learned. – Gerome

Response:

Back from "hiatus" for the night, killing some time, and this topic caught my eye.  Though I know that other’s have heavier crosses to bear, the latest "gift" I received from the stbx <30 days and counting to change to ex was my arrest (no wolfie, I didn’t do what you might be thinking – grin).

In all honesty Kats, after what he’s been through you do owe him some kind words. Welcome back my friends to the show that never ends Were so glad you could attend come inside come inside Emerson Lake and Palmer To Reply by e-mail remove the number 1 from

Response:

Back from "hiatus" for the night, killing some time, and this topic caught my eye.  Though I know that other’s have heavier crosses to bear, the latest "gift" I received from the stbx <30 days and counting to change to ex was my arrest (no wolfie, I didn’t do what you might be thinking – grin). In all honesty Kats, after what he’s been through you do owe him some kind words.

Errr…ummmmm….huh? As in "Thank you, darling, for giving me the experience of being arrested under false pretense and exposing our toddler to a person who claimed I hit someone then ran"? Wolfie, should I have taken your reply with sarcasim? Kats a tad bit dazed and confused *** The only thing that stays the same is change ***

Response:

Mine has decided after over a decade of being married, that he would rather become a woman, than be married to one.  But, that’s not all, he has been taking female hormones and anti-androgens (testosterone blockers) behind my back for years now, and even took those while I was trying to get pregnant, which led to me having a miscarriage, which also led to me having major surgery, which led to me now being sterile, without having kids. So, is there a prize involved?

Response:

The worst I ever heard, I think, was an ex-wife who shopped each of the three kids to various doctors until she could get an deficit-disorder diagnosis for the kid,

Well, let’s see, who was the bad STBX, the Mom who took her kids to the doctor or the dad who refused to admit that anything was wrong with them?  It definitely sounds like there could be another side to THAT story. Honestly, I don’t know anything about this family, so it may be just as you described. However, I have a child with high-functioning autism and this rankled me a bit because my ex would like people to think exactly what you imply about this mom — that there is nothing really wrong with our son, it’s all in my head, etc. The father has been the biggest impediment to my son getting the services he needs.  And of course the school system just loves to see a parent who doesn’t want to admit that his kid has a disability — if they can get him to sign the papers, they don’t have to provide any services or spend money on him ! My kid is pretty obviously disabled, and even goes to a special school, but even so, it was difficult to jump through all those hoops they put up to get a proper diagnosis and the services he needs.  I know there is a lot of talk about overdiagnosing, but in my experience, it is a lot harder than people realize to get a diagnosis of a disability.  I don’t get any money for getting my kid services, and I’m not sure what you are referring to there.  My motivation is that I want my son to realize his full potential.  My exhusband’s motivation is that he doesn’t want the "stigma" of autism being applied to his son. That’s bullshit.  If my son goes without services, the severe behaviors are going to carry with them a much greater "stigma" than any diagnosis.  Which would you rather people say about your kid, that he’s mildly autistic but quite bright and doing great under the circumstances, or that he is a violent retarded kid with major emotional problems? It’s funny, I’ve met a lot of moms who like me have a hard time getting their husbands to accept their child’s disability, but I’ve never heard of it the other way around.  I don’t know if there really is a difference in genders there, but I’ve heard anecdotal evidence that dads have a harder time with this.  Perhaps that is really what’s going on with this friend.

Response:

hydrocodone refills

Question:

Caroline: We can’t ever forget the child in ourselves.  It needs nurturing too.  I understand where you are coming from and the confused state of mind.  What ever choice you make, you have no idea what the outcome will be. It is like shooting an arrow in the dark.  Good Luck and as always, I am thinking of you. Jeannette

Response:

This shit is really starting to suck big time! -bg- Kitty

— "There are some people that if they  don’t know, you can’t tell ‘em." — Louis Armstrong http://www.geocities.com/SoHo/Nook/9300

Response:

Thanks Jeannette :) Caroline – Hide quoted text — Show quoted text – Caroline: We can’t ever forget the child in ourselves.  It needs nurturing too.  I understand where you are coming from and the confused state of mind.  What ever choice you make, you have no idea what the outcome will be. It is like shooting an arrow in the dark.  Good Luck and as always, I am thinking of you. Jeannette

Response:

The acronym for Disease Modifying Anti-Rheumatic Drug… in some cases it can mean Doing Marijuana And Really Dreaming.

A cool dude came through my drive through a couple of weeks ago, when he rolled down his window smoke poured out. He pulled this fat slimy looking dubie out of his mouth & asked me what did I want!!! I threw the pen I had to give him away & washed my hands about 100 times. He was so yucky!!! Belinda

Response:

Kitty: So sorry you are having such a rough time. I knew something must be wrong because we had not heard much from you.  I hope there is something they can do for your pain.  My thoughts and prayers are with you. Jeannette

Response:

LOL  What button did I touch?  Thanks for the info on Arava. I am so not sure that is the drug I want to start but not sure what else to do. Here I stand, a women who usually can make snap decisions, thinks on her feet well, ran my own business during the height of the 80’s recession and at the moment feel like a small child lost in a large department store. When I look up everyone is taller and none of them are my mommy. How stupid does that sound?  Think I am going to call for info on the Anakinra study.  I will let everyone know what I find out. Caroline – Hide quoted text — Show quoted text – Harv: When you were on Arava [maybe you still are], did you have to come off of it when you had a cold or flu or some other common illness? Caroline Hi Caroline,  I am not taking Arava anymore.  No, I guess I am lucky with cold and flu in that I just dont have them anymore.  TeeHee, I will have it next week now, LOL.  Arava worked very well for me but I had a bout with acid reflux and my stomach itself got inflammed.  I have not had ulcers, when scoped the stomach itself was all red and I finally had to just stop taking Arava.  It controlled by RA just fine but I cut back on the amount of Arava I was taking to ease my stomach and went into a full blown full body flare.  My RD and I decided that a major change was needed.  I started Enbrel and had a blessed steroid shot which worked so well that I could not believe that it was the Enbrel that shut down my RA.  I also found out that having the flu can cause your liver enzymes to go up when taking a blood test.  I had the flu at the end of last summer.  Arava can be hard on your liver like Methx is and requires a person to have regular blood tests.     All of the above can be what give RDs night mares.  Look at all that was involved in deciding to stop one dmard and start another one. The flu, stomach inflammed, higher liver enzyme readings, acid reflux, and the most important one, a flare that even got into my neck to the point that a neck brace considered.  The thing is that an RD has to deal with any number of people that are going through much more than I did.  I consider myself very lucky in that a dmard works very well in stopping the actual dammage going on in my joints.  I agree with Krissy that what we call RA and PA may involve different causes and different medicines effect all of us in different ways–another RD nightmare. Then we have people like Kitty that nothing works.  I am so thankful that we have todays medicines because If We didnt,,,,we would all be like Kitty.  If my RA is not treated, it continues to build on itself until I am bed ridden and unable to function and during that time the worst damage to my joints and organs is being done.    Having said all that, when you add the depression of going though this and slowly sliding into diabetes a person can let it get the best of em.  I read what it does to people like Walt, Kitty, Andy and sooo many more and they continue to live their lives and do the best they can to live as full a life as they can and I know that tomorrow will be better as long as people like Larry make it that way.  Whew, did I say all that.  What a rant. Harv

Response:

Thanks, Kitty, for your helpful info.  (But what’s a DMARD?)

The acronym for Disease Modifying Anti-Rheumatic Drug… in some cases it can mean Doing Marijuana And Really Dreaming. Best, Larry Before you buy.

Response:

Harv: When you were on Arava [maybe you still are], did you have to come off of it when you had a cold or flu or some other common illness? Caroline

Hi Caroline,  I am not taking Arava anymore.  No, I guess I am lucky with cold and flu in that I just dont have them anymore.  TeeHee, I will have it next week now, LOL.  Arava worked very well for me but I had a bout with acid reflux and my stomach itself got inflammed.  I have not had ulcers, when scoped the stomach itself was all red and I finally had to just stop taking Arava.  It controlled by RA just fine but I cut back on the amount of Arava I was taking to ease my stomach and went into a full blown full body flare.  My RD and I decided that a major change was needed.  I started Enbrel and had a blessed steroid shot which worked so well that I could not believe that it was the Enbrel that shut down my RA.  I also found out that having the flu can cause your liver enzymes to go up when taking a blood test.  I had the flu at the end of last summer.  Arava can be hard on your liver like Methx is and requires a person to have regular blood tests.     All of the above can be what give RDs night mares.  Look at all that was involved in deciding to stop one dmard and start another one. The flu, stomach inflammed, higher liver enzyme readings, acid reflux, and the most important one, a flare that even got into my neck to the point that a neck brace considered.  The thing is that an RD has to deal with any number of people that are going through much more than I did.  I consider myself very lucky in that a dmard works very well in stopping the actual dammage going on in my joints.  I agree with Krissy that what we call RA and PA may involve different causes and different medicines effect all of us in different ways–another RD nightmare. Then we have people like Kitty that nothing works.  I am so thankful that we have todays medicines because If We didnt,,,,we would all be like Kitty.  If my RA is not treated, it continues to build on itself until I am bed ridden and unable to function and during that time the worst damage to my joints and organs is being done.    Having said all that, when you add the depression of going though this and slowly sliding into diabetes a person can let it get the best of em.  I read what it does to people like Walt, Kitty, Andy and sooo many more and they continue to live their lives and do the best they can to live as full a life as they can and I know that tomorrow will be better as long as people like Larry make it that way.  Whew, did I say all that.  What a rant. Harv

Response:

Kitty Kelly writes: I gotta find something for break through pain though. Something that doesn’t cause projectile vomiting,

Hi Kitty!   If Duragesic isn’t giving you any bad side effects (such as above mentioned projectile vomiting ughh lol) and you are tolerating it fairly well, you might want to ask your doc about Actiq for breakthru pain. Actiq is fentanyl (same drug that’s in the patch) in a lollipop form. It was approved not too long ago to treat cancer pain and is very fast acting. I know many people with chronic pain (not from cancer) whose doctors have prescribed this for them. It really seems to help. Hope you find something soon :)                                            Be well,  Patty :) *~A friend is someone who reaches out for your hand, and touches your heart.~*                                    http://www.paincentral.com

Response:

~~~~~So, uh, you, like, wanna do a line? ~~~~~Larry Last week I got changed from my 9 year presciption of Demerol to the Duragesic patch.  I gotta find something for break through pain though. Something that doesn’t cause projectile vomiting, as fun as that is, I must refuse! This shit is really starting to suck big time! -bg- Kitty  

Response:

Harv: When you were on Arava [maybe you still are], did you have to come off of it when you had a cold or flu or some other common illness? Caroline – Hide quoted text — Show quoted text – Sad but true and that is what pain meds are for.  Everyday you will see someone being told to please see an RD to get started in a dmard program.  I still have hopes that you get into a stemcell program and that it will stop your RA in its tracks.  I know that you will still need several operations but we can only hope for stopping what is on going for now.  We can say all the ifs in the world but Prosorba just didnt come along soon enough so that your system could stand the procedure.  That was like Arava for me. I knew they had it in Europe a couple of years before it became available to us in the USA.   When I think of pain medicine, I think of people with DDD and AS.  I had lower back trouble for about two years and that was nothing compaired to full blown DDD or AS and it was just about more than I could stand when RA got into full bloom.   So it goes. Harv

Response:

Harv said that a good DMARD is better than a pain med.  That’s true if you find your DMARD early enough.  If I were cured tomorrow, I still wouldn’t be able to walk.  You have to remember residual irreversible

damage.  I’ve been on narcotics for 9 years now and will be on them the rest of my life.  Blech. -g- Kitty

Sad but true and that is what pain meds are for.  Everyday you will see someone being told to please see an RD to get started in a dmard program.  I still have hopes that you get into a stemcell program and that it will stop your RA in its tracks.  I know that you will still need several operations but we can only hope for stopping what is on going for now.  We can say all the ifs in the world but Prosorba just didnt come along soon enough so that your system could stand the procedure.  That was like Arava for me. I knew they had it in Europe a couple of years before it became available to us in the USA.   When I think of pain medicine, I think of people with DDD and AS.  I had lower back trouble for about two years and that was nothing compaired to full blown DDD or AS and it was just about more than I could stand when RA got into full bloom.   So it goes. Harv

Response:

I’ve been on narcotics for 9 years now and will be on them the rest of my life.  Blech.

So, uh, you, like, wanna do a line?  I saw how it is properly done in a movie about this fellow from Australia.  Guy named Dundee.  He poured this white powder in a bowl of very hot water and had this other fellow put a towel over his head and breathe in the steam vapors from the bowl. Best, Larry Before you buy.

Response:

Thanks, Kitty, for your helpful info.  (But what’s a DMARD?) turbowiz ** I have a Living Hope**

– Hide quoted text — Show quoted text – Remember, most MD’s today had an average of 3 days pain training in med school.  Not a typo – 3 days! i’ve read articles that mention they’re getting 3 – 4 weeks now! YIKES!!! You have to be your own  best advocate.  By using a search engine, you can find buckets of articles advocating their use for moderate to severe arthritis pain.  Find the articles and print them out for your next visit.  Print reputable articles, not Billy Bob advocating morphine for hangnails LOL!!! You have to educate your Dr’s, as strange as that sounds.  And some Dr’s will never use them.  They don’t want to deal with learning how to prescribe them and some envision masses of patient’s turning into drug addicts and ruining their practice. Someone mentioned a pain management clinic.  Ask around before you use one.  Some clinics are on a crusade to stop narcotic use and are essentially ‘detox’ centers more than pain management centers. Harv said that a good DMARD is better than a pain med.  That’s true if you find your DMARD early enough.  If I were cured tomorrow, I still wouldn’t be able to walk.  You have to remember residual irreversible damage.  I’ve been on narcotics for 9 years now and will be on them the rest of my life.  Blech. -g- Kitty

Response:

I know for myself, my RA Dr is the only one in a 250+mile radius. Unfortunately I am stuck with him due to the mileage and insurance area restrictions. I also hate the idea that this Dr is treating soooo many people in "his way" and only "his way" — which I can tell you is not always up to snuff. Him and I will continue to go round/round over medication and treatment. Not to mention getting an appt – hahaha – my come back in 3 weeks was scheduled tanya TACHANKA SIBERIANS "All Four Paws Rolling" Wenatchee, WA

Response:

Remember, most MD’s today had an average of 3 days pain training in med school.  Not a typo – 3 days! i’ve read articles that mention they’re getting 3 – 4 weeks now! YIKES!!! You have to be your own  best advocate.  By using a search engine, you can find buckets of articles advocating their use for moderate to severe arthritis pain.  Find the articles and print them out for your next visit.  Print reputable articles, not Billy Bob advocating morphine for hangnails LOL!!! You have to educate your Dr’s, as strange as that sounds.  And some Dr’s will never use them.  They don’t want to deal with learning how to prescribe them and some envision masses of patient’s turning into drug addicts and ruining their practice. Someone mentioned a pain management clinic.  Ask around before you use one.  Some clinics are on a crusade to stop narcotic use and are essentially ‘detox’ centers more than pain management centers. Harv said that a good DMARD is better than a pain med.  That’s true if you find your DMARD early enough.  If I were cured tomorrow, I still wouldn’t be able to walk.  You have to remember residual irreversible damage.  I’ve been on narcotics for 9 years now and will be on them the rest of my life.  Blech. -g- Kitty

Response:

- Hide quoted text — Show quoted text – Sorry to hear that your Dr. doesn’t believe in pain meds.  Personally I would start looking for another DR. and discuss is pain managment with you. You need a DR. that understands her/his patient pain and treat the patient and not just the disease.  I work in a hospital and see the doctors do this all the time but their are many out their who real care about the patient. Better Yet Jeannette had the best Ideal.  "Grab him by the collar. My Rheum. always makes sure that I have plenty of pain meds at home espically for the weeks which I ran out one time and of course the Pain was unbearble. When he leave town fore a couple of days for updates on new meds for RA he personally calls me to make sure I have everything. I’m the type of person that waits until the pain is so bad that several times in the middle of night I’ve been in the ER. So my Rheum calls. He never refused pain meds and promises me that he keeps track of how often  i get a refill prescribtion written Michele in Fl

Wellll, a good working dmard beats pain medicine all to heck with RA but I know that they are needed at times.  Which one of those new medicines are you on? Harv

Response:

I have to fight my RA dr to give me a script for hydrocodone.  He is not a believer in arthritis patients needing pain medication.  Personally I hope he gets arthritis some day – sorry had to vent there. My ortho surgeon and my primary, however, do believe in pain medication if used within limits. tanya TACHANKA SIBERIANS "All Four Paws Rolling" Wenatchee, WA

Response:

If need be go to you pcp or doc who may be more willing to understand it is very unusual for addiction to take place when you are using Vicodin for pain. Dawn0 – Hide quoted text — Show quoted text – Going back to my orthopedist soon (spondylolisthesis and arthritis).  He gave me a 30 day supply of Celebrex and hydrocodone.  I think he’ll refill the Celebrex no problem….but if he’s leery about the hydrocodone, what do I do?  *HOW* do I find a doctor that will refill that type of pain medication (probably for a loooooong time)?  What’s the procedure? Thanks.

Response:

*HOW* do I find a doctor that will refill that type of pain medication (probably for a loooooong time)?  What’s the procedure?

Grab him by the collar and say "look doc, if you don’t refill my pain meds, I am not responsible for what I may do to you"!!!! Jeannette

Response:

I have that problem with my RD, he tells me that narcotics are not effective on RA pain.  I tell him that I have RA and can tell him without a doubt that opioids are indeed very effective and help me work through the day.  For the longest time he refused to give me anything stronger than Tylenol #3 and he even hesitates on those.  I finally told him that I was going to get my primary care doctor to take care of my pain medication, the RD seems OK with that, I think because it lets him off the hook if I get hooked.   Honestly though, I’ll take care of any dependance problems when the pain goes away.  Most studies show that if you take opioids for legitimate pain relief you will not become addicted to them in the traditional sense.  You may become physically dependant if you need a lot, but that can usually be taken care of by weaning off under a doctors care. My primary doctor put me on Oxycontin (oxycodone slow release) and gives me 3 months at a time.  I think he was OK with this because I researched all the pain killers around and went to him with a lot of evidence and real reasons why I need this stuff. All I can suggest is that you get as much evidence as possible and bring it to your specialist.  Failing that you may want to try your primary care physician.  I hope that one of them is up to date on the treatment of pain in modern times. Good luck, let us know how it goes. Kurt Going back to my orthopedist soon (spondylolisthesis and arthritis).  He gave me a 30 day supply of Celebrex and hydrocodone.  I think he’ll refill the Celebrex no problem….but if he’s leery about the hydrocodone, what do I do?  *HOW* do I find a doctor that will refill that type of pain medication (probably for a loooooong time)?  What’s the procedure? Thanks.

– To reply by email please remove the two spams out of my return address.

Response:

Hi, I had the same type of problem until I saw a pain management MD. They really are the only people who seem to understand that we are not drug addicts just people who are suffering. It changed my life and my feelings about myself. Good luck. Carole t * Sent from AltaVista http://www.altavista.com Where you can also find related Web Pages, Images, Audios, Videos, News, and Shopping.  Smart is Beautiful

Response:

 turbowiz wrote and asked:   *HOW* do I find a doctor that will refill that type of pain   medication (probably for a loooooong time)?  What’s the procedure?  You pick up the telephone yellow pages and start dialing all the  doctors’ offices ’til you find one who will treat you as YOU want  to be treated based on YOUR medical know-how, not how HE wants to  treat you based on HIS medical education and experience. .. I’m sorry, I didn’t intend to confuse you with facts. ___ Blue Wave/QWK v2.12 — | WarpGate:  Fire Chief 52:1000/200 | The WarpGate Network Internet Gateway El Cajon, CA.

Response:

Sorry to hear that your Dr. doesn’t believe in pain meds.  Personally I would start looking for another DR. and discuss is pain managment with you. You need a DR. that understands her/his patient pain and treat the patient and not just the disease.  I work in a hospital and see the doctors do this all the time but their are many out their who real care about the patient. Better Yet Jeannette had the best Ideal.  "Grab him by the collar. My Rheum. always makes sure that I have plenty of pain meds at home espically for the weeks which I ran out one time and of course the Pain was unbearble. When he leave town fore a couple of days for updates on new meds for RA he personally calls me to make sure I have everything.   I’m the type of person that waits until the pain is so bad that several times in the middle of night I’ve been in the ER. So my Rheum calls. He never refused pain meds and promises me that he keeps track of how often  i get a refill prescribtion written Michele in Fl

Response:

Going back to my orthopedist soon (spondylolisthesis and arthritis).  He gave me a 30 day supply of Celebrex and hydrocodone.  I think he’ll refill the Celebrex no problem….but if he’s leery about the hydrocodone, what do I do?  *HOW* do I find a doctor that will refill that type of pain medication (probably for a loooooong time)?  What’s the procedure? Thanks.

Response:

Pain management

Question:

My doctor is referring me to a pain management doctor for a bulging disc at L4/5.  I also have to go to physical therapy as referred by my neurologist.  My question is what is a pain management doctor?  How do they differ from general practitioners?  Do most patients have good experiences with pain management doctors and their protocols?  What should I expect? Sorry so many questions, Rimmer

Response:

My doctor is referring me to a pain management doctor for a bulging disc at L4/5.  I also have to go to physical therapy as referred by my neurologist.  My question is what is a pain management doctor?  How do they differ from general practitioners?  Do most patients have good experiences with pain management doctors and their protocols?  What should I expect? Sorry so many questions, Rimmer

Pain Management doctors deal with pain every day and the medicines that can help.  They are the most up to date usually on the new stuff and sometimes can take a fresh look.  I’ve had bad experiences with pain management centers and currently an excellent one.  Don’t give up if you aren’t happy with the first. Shop around if you have too, until you feel you’ve done everything you can. The good ones are out there, sometimes they can just be hard to find. Good luck, Tracy "Of all the things I’ve lost, I miss my mind the most!" "I still miss my ex-husband, but my aim is improving." "A friend is the little toy prize in the cereal box of life."

Response:

I am 55 and disabled with arthritis in my shoulders. My lumbar region is totally messed up with 2 surgeries. 1st surgery 1966 Balboa, naval hospital, San Diego, Ca. and 2nd 1971 VA hospital, OKC. I became 100% disabled in 1991 and had to quit work. Social security disability was granted in 1995 and 100% DAV was granted in 1999. The VA doctors make me go to civilian doctors to get quality care. Celebrex does magic on my shoulders but has "0" affect on my back. Lorcet and soma is all that works on my back. Pain is measured on a scale of 1 to 10. I rate a thumb mashed with a hammer at an 8..   When I have medication, my back pain is around 2. When I don’t have medication my back pain is around 5. Without meds I can’t play with my grand kids, go shopping, sit, stand, walk. Our doctor, Dr Boles, passed away Dec 2 this year. I am looking for a doctor in south central Oklahoma or north central Texas that will follow with the same therapy. The prescription is 10/500 lortab 6 per day and soma 350 4 times per day and halcyon 1 1/2 tablets at night. I have MediCare and Blue Cross Blue Shield insurance. Will provide X-rays, radiology reports, Surgery and post surgery reports. Thanks for your time

Response:

Hi Gary! A good place to start looking for a doctor to help you is Skip Baker’s ASAP website:  www.widomaker.com/~skipb/panic.html Another is at www.partnersagainstpain.com Maybe you’ll even be able to find a doctor to put you on long-acting pain meds and give your liver a rest.  3000mg of APAP per day can be a heavy load on a liver! Good luck finding a new doctor.  I know many people, myself included, who regularly worry about how long their docs will live. Take care, Mouse <:3)))))~~ "This invisible man has a place for you full of fire, smoke, burning and torture and he will send you there to choke, scream, die, suffer and burn for the end of time.  But he *loves* you!" ~George Carlin

: I am 55 and disabled with arthritis in my shoulders. : My lumbar region is totally messed up with 2 surgeries. : 1st surgery 1966 Balboa, naval hospital, San Diego, Ca. : and 2nd 1971 VA hospital, OKC. I became 100% disabled : in 1991 and had to quit work. Social security disability : was granted in 1995 and 100% DAV was granted in 1999. : The VA doctors make me go to civilian doctors to : get quality care. : : Celebrex does magic on my shoulders but has "0" affect : on my back. Lorcet and soma is all that works on my : back. : : Pain is measured on a scale of 1 to 10. I rate a thumb : mashed with a hammer at an 8..   When I have medication, : my back pain is around 2. When I don’t have medication my : back pain is around 5. Without meds I can’t play with : my grand kids, go shopping, sit, stand, walk. : : Our doctor, Dr Boles, passed away Dec 2 this year. : I am looking for a doctor in south central Oklahoma : or north central Texas that will follow with the same : therapy. The prescription is 10/500 lortab 6 per day : and soma 350 4 times per day and halcyon 1 1/2 tablets : at night. : : : I have MediCare and Blue Cross Blue Shield insurance. : Will provide X-rays, radiology reports, Surgery and : post surgery reports. : : Thanks for your time : : — Outgoing mail is certified Virus Free. Checked by AVG anti-virus system (http://www.grisoft.com).

Response:

I got referred to Pain Management. What is it all about? What do they do there?

Response:

I got referred to Pain Management. What is it all about? What do they do there?

In an ideal case, pain management care will help you figure out what is causing your pain (often through other outside opinions), what options you have for treating its cause or, more often, treating (managing) your pain symptoms. The goal general is to get a reasonable quality of life without taking undue risks to try and achieve it (e.g., try meds if surgery is not immediately needed). Pain managment docs are often anesthesiologists by training and use a full range of methods to treat pain. These can include spinal injection, oral medications, physical therapy or even more interventional techniques like killing selected nerve paths. In many cases we hear about here, pain management ends up involving opiates as part or even all of the treatment. For a variety of reasons (not all of them strictly medical in nature), opiates are not typically turned to until most other modalities have been unsuccessful. Unfortunately, a number of alleged pain management practices still reserve opiate use for the terminally ill, no matter the difference it can make in returning someone to a life worth living. In the worst cases (rare ones), there are opiate detox centers that masquerade as pain clinics in the belief that they are doing people favors by removing them from even stable, successful opiate-based regimens. In truth, even individual docs in a given office can approach this stuff very differently – there is a full range of attitudes out there. Generally, they will review your medical history, especially what has been tried for controlling your pain. It is important to be honest and fairly blunt about how pain interferes with your life. I know my tendency to not want to complain has more often than not kept me from getting proper treatment. IMO, you should be wary about pushing for any particular treatment too directly at first, unless you have gotten to know the doc and know how to approach such things (e.g., ask straight out or drop hints?). Best of luck. Let us know how things go. RoryDog

Response:

cheriemarie1 I got referred to Pain Management. What is it all about? What do they do there? the minority will give you pain pills. the majority will make you beg and do stupid people tricks to get effective pain relief.

Response:

- Hide quoted text — Show quoted text – I got referred to Pain Management. What is it all about? What do they do there? In an ideal case, pain management care will help you figure out what is causing your pain (often through other outside opinions), what options you have for treating its cause or, more often, treating (managing) your pain symptoms. The goal general is to get a reasonable quality of life without taking undue risks to try and achieve it (e.g., try meds if surgery is not immediately needed). Pain managment docs are often anesthesiologists by training and use a full range of methods to treat pain. These can include spinal injection, oral medications, physical therapy or even more interventional techniques like killing selected nerve paths. In many cases we hear about here, pain management ends up involving opiates as part or even all of the treatment. For a variety of reasons (not all of them strictly medical in nature), opiates are not typically turned to until most other modalities have been unsuccessful. Unfortunately, a number of alleged pain management practices still reserve opiate use for the terminally ill, no matter the difference it can make in returning someone to a life worth living. In the worst cases (rare ones), there are opiate detox centers that masquerade as pain clinics in the belief that they are doing people favors by removing them from even stable, successful opiate-based regimens. In truth, even individual docs in a given office can approach this stuff very differently – there is a full range of attitudes out there. Generally, they will review your medical history, especially what has been tried for controlling your pain. It is important to be honest and fairly blunt about how pain interferes with your life. I know my tendency to not want to complain has more often than not kept me from getting proper treatment. IMO, you should be wary about pushing for any particular treatment too directly at first, unless you have gotten to know the doc and know how to approach such things (e.g., ask straight out or drop hints?). Best of luck. Let us know how things go. RoryDog

IN ADDITION TO RORYDOGS COMMENTS ABOVE YES..have you ever heard the word "OXYPHOBIC"..well..let us HOPE that you aren’t going to a so-called pain clinic that is oxyphobic. I completely lucked out. I have an awesome doctor who trusts what I say, and probably always will until I would give him something NOT to trust me for. Unfortunately, there are many "doctors" who are complete idiots and will not prescribe adequate pain killers even if your head was barely attached and blood was spraying out. CASE IN POINT: My mother (G.O.D. rest her soul), was on her death bed in a hospital in Flint, Michigan. My father made a comment to the IDIOT doctor that "she looks uncomfortable"..he said this, and I quote: "Well..I don’t want to give her something addictive." My sister, who is a firecracker to say the least, heard this and roared across the room, and bitch slapped said "doctor" in the side of his face. It was glorious, we also got a doctor to give her the "death cocktail", a mixture of high-powered opiates, etc. The woman was DYING and he said "it’s addictive". Stupid motherless FUCK. I write the aforementioned only to illustrate how some people who call themselves doctors think. Unfortunately, in the US, we are much more humane to animals that are sick or dying than we are to humans..the HYPOCRATIC OATH..wow. Anyway..good luck cheriemarie1, and remember, you’re a human being and you have the right to NOT BE IN PAIN. So, don’t let the doctor push you around..remember, he’s working for YOU…not the other way around. Open honest lines of communication and please, don’t EVER be afraid to say you’d like another opinion, etc. SydVICO

Response:

what is a Pain Clinic?

Question:

Personally speaking from one pain patient to another. Stay away. If you are getting any treatment that is workable for you, for your pain, meaning you have a Dr. who is willing to Rx the needed pain meds/or the needed treatments, don’t leave to go to a pain clinic. I never heard of them until ‘96 after my last spinal surgery, where instead of blowing my 24,000.00 out of pocket here, I had to go to Rochester Minnesota to the Mayo Clinic to blow the money. I could have stayed home and gone to Europe. I guarantee you, I would have come back feeling better, not withdrawing from what would have to  be represcribed in a month. LISTEN TO YOUR DOCTOR. Love, Jackie – Hide quoted text — Show quoted text – OK, I have heard the term, been told in here to go to one, been told by my pharmacist to go to the one in a local hospital, been told by my doctors _not_ to go to one. What do they do in a Pain Clinic?  Is it physical therapy?  Pain medication?  Someone to talk to (psychology)? Please forgive me if this question is really elementary, but I honestly don’t know what happens in a Pain Clinic. Thanks Robin

Response:

Personally speaking from one pain patient to another. Stay away. If you are getting any treatment that is workable for you, for your pain, meaning you have a Dr. who is willing to Rx the needed pain meds/or the needed treatments, don’t leave to go to a pain clinic. I never heard of them until ‘96 after my last spinal surgery, where instead of blowing my 24,000.00 out of pocket here, I had to go to Rochester Minnesota to the Mayo Clinic to blow the money. I could have stayed home and gone to Europe. I guarantee you, I would have come back feeling better, not withdrawing from what would have to  be represcribed in a month. LISTEN TO YOUR DOCTOR. Love, Jackie

Amen to that.  I spent mucho dollars at Mayo Clinic and in a Pain Clinic locally.  The pain clinic here must have gotten it’s name by the amount of pain they inflicted.  When the cure (if it existed) is worse than the ailment it don’t make sense to pay for it.  I’ve lost track of the amount of money I and my Ins. company has spent on this and all I have from it is a monthly Rx for Ultram which does very little.  Anything stronger than that and I haven’t found a doctor willing to go there.  Continued suffering with lot of pain and a lot less money.

Response:

Call me ‘paranoid’ but I agree with you.  Too much stuff done gone under the bridge to make me believe insurance and government agencies give a crap and I know they would love for me to disappear but what can they do????  I learned how to take care of myself so if I see somebody making a mistake (?) I can stop them and tell them the right way or just do it myself. I just decided to be too mean to let everybody off the hook!!

– Hide quoted text — Show quoted text – I go to the Kaiser Pain Clinic and their philosophy is that no one should have to be in pain.  At first, I wasn’t quite sure about their treatment, but I guess I passed some "test" and can get anything I need.  They keep close tabs on what I take, but that’s okay…I usually can’t even take the amount that’s prescribed. Mercurail, you might want to check it out a little more before you totally discount the option.     Alleygata, thank you for your thoughts, I might still check out the Kaiser Chronic Pain Clinic, even though I too can get a prescription for whatever is required to manage my chronic pain siuation. I went through a few years of the; "It’s all in your head" syndrome, I don’t ever want to re-live the non-treatment and anger during those years. My reputation and credibility have always been solid gold plated. (I did not then drink or smoke, I did not use street drugs, I would only use one pharmacy and one doctor for prescriptions, my doctors always knew I was clean and spotless, gold plated then and now). I think it should not take five years of agony to finally get treatment for an illness that the cause of was fairly easy to locate. I caused their hospital to have a one year probation on the Jaeco (sp) program, I guess that is a pretty big deal, because I got an apology from the hospital and I was taken care of in relation to appropriate chronic pain management. In reality I don’t think it necessary for me to go through the pain clinic routine of having them check me out with a magnifying glass, I already passed all of their test and I am doing all of the same things they would do, such as cold packs, hot packs, biofeedback, etc…  I’m sorry, but I just can not get away from the feeling that they with-held treatment because they thought I might be in so much pain I might have committed suicide. They knew I was in great pain, when I did not commit suicide they would turn the screws a few more notches to see if that might make me go over the cliff. I know there are people who will say a medical plan would never do something to cause the death of a patient who over the years would be a very expensive line item on the old spread sheet, but I am not so sure, I think If hospital administrators thought they would not be caught they would off someone in an instant. Yeah I know, I’ll work on it! but I did not do this to myself…. I had a lot of help.      Terry

Response:

Terry….All I can add is an "AMEN"…you did not do this to yourself alone! We are all on the wrong side of the P&L statement!   Joani

Response:

Hi, I am new to this board.  If you need help in getting free medicine please email me.  There is one program I know of which really works to get free medicine.   Debbie – Hide quoted text — Show quoted text – Terry!  You have put into words the very things I have been fighting for many, many years!!!!! I do believe…I strongly believe that the health care in the US has gone into the toilet, out the sewer and into the oceans!  There is no mercy, justice, compassionate care, in the world today!  The HMO’s are in this for money and money only!  I strongly believe that their sole purpose is to string their patients along until it is too late for successful treatments! Chronic Pain patients are at the very bottom of their list!  They only wish that we would all die…from the illness/injury we are suffering!  That is why we get this terrible run around about treatment….maybe we will kill ourselves. Good for the bottom line…stall on treatments or drugs…good for the bottom line. Wait to get an appointment for a specialist….right…the bottom line!  The Government of this country is in collusion with the HMO’s….this whole country is run on money….more for the rich,,  less help, health care, child care, schooling, you name it…for the rest of us!  The GOP is screaming for a tax cut…do you think you will ever benefit from a tax cut…no way…. Sorry….you just hit a very raw nerve…..I ran a company for 10 years, with a bottom line of $250,000., 37 employees, I paid taxes on taxes….when I became ill I was forced to close the business..I gave every single employee a letter of recommendation, a 2 wk. paid vacation. and one month’s salary to help until they found other work.  I have lost everything…my house, all my money, I am forced to live with my sister and live on $599. a month SSD..this month I turned 65..I don’t know how much I will get now. The kicker?  I have Medicare…for which I PAY a premium each month. granted it is a low one…but I make $12.00 a month too much to qualify for Medicaid!  $12.00!!!! My prescriptions cost me $400.+ each month…I paid, as an employer, dollar for dollar into FICA for each of my employees. I paid taxes on the business…penalty for being successful and honest on my income reports.   But…I now make $12.00 a month to get any help.  I will be on the street very soon.  That is a fact….my sister is tired of "supporting me" ( even after all I did this summer)…..someone tell me where is the justice for the patients that can’t take the meds. because of the price…that can’t get help anywhere? Ask a government worker about their health care plan..it will knock your socks off….our Senators, Congressman, their senior staff get everything salary soon. I know….no politics…no religion…I know….but Terry is right  and I am right.  I am NOT starting a war here, people…please do not get into a long debate about this…this is not why we are here. Period.  But sometimes truth must be told!   Joan

Response:

I go to the Kaiser Pain Clinic and their philosophy is that no one should have to be in pain.  At first, I wasn’t quite sure about their treatment, but I guess I passed some "test" and can get anything I need.  They keep close tabs on what I take, but that’s okay…I usually can’t even take the amount that’s prescribed. Mercurail, you might want to check it out a little more before you totally discount the option.

    Alleygata, thank you for your thoughts, I might still check out the Kaiser Chronic Pain Clinic, even though I too can get a prescription for whatever is required to manage my chronic pain siuation. I went through a few years of the; "It’s all in your head" syndrome, I don’t ever want to re-live the non-treatment and anger during those years. My reputation and credibility have always been solid gold plated. (I did not then drink or smoke, I did not use street drugs, I would only use one pharmacy and one doctor for prescriptions, my doctors always knew I was clean and spotless, gold plated then and now). I think it should not take five years of agony to finally get treatment for an illness that the cause of was fairly easy to locate. I caused their hospital to have a one year probation on the Jaeco (sp) program, I guess that is a pretty big deal, because I got an apology from the hospital and I was taken care of in relation to appropriate chronic pain management. In reality I don’t think it necessary for me to go through the pain clinic routine of having them check me out with a magnifying glass, I already passed all of their test and I am doing all of the same things they would do, such as cold packs, hot packs, biofeedback, etc…  I’m sorry, but I just can not get away from the feeling that they with-held treatment because they thought I might be in so much pain I might have committed suicide. They knew I was in great pain, when I did not commit suicide they would turn the screws a few more notches to see if that might make me go over the cliff. I know there are people who will say a medical plan would never do something to cause the death of a patient who over the years would be a very expensive line item on the old spread sheet, but I am not so sure, I think If hospital administrators thought they would not be caught they would off someone in an instant. Yeah I know, I’ll work on it! but I did not do this to myself…. I had a lot of help.      Terry

Response:

Terry!  You have put into words the very things I have been fighting for many, many years!!!!! this…this is not why we are here. Period.  But sometimes truth must be told!   Joan

     Joani and Joan, Geez, I didn’t mean to stir the bandinni, lets all take our meds and get our pulse rate down to a gallop. Yes! How we are treated by and looked upon by society in general is pretty shameful. I do think though it is possible for the medical system to change for the better, but I think it will take a couple of years to throw the whole damn lumbering thing into reverse. While we are waiting, be sure to vote in every election. Part of the reason things have become the way they are is because lots of people did not vote. Get an absentee ballot and vote. Hey, it couldn’t hurt!      As for trying to qualify for additional benefits that might be had by taking another run through the enrollment process. Just before I became too disabled to do any kind of work, I put in a few months working for the county as a Welfare Eligibility Worker. (I helped welfare mom’s get benefit checks, so they and their kids wouldn’t starve.) Interesting job, too bad I could not hang in there, Chronic pain, and you know the rest     So! I would go to a local senior center and see what resources might be had. At our senior center one can participate in all of their activities. Also, once a week low income folks come in for some free groceries (a couple of grocery bags full) in addition each day the senior center serves a hot meal to any senior who comes in. I have seen what they serve, talked with some of the folks there, the food is very good. If I needed to do so I could go there five days a week and get my main meal of the day, I think there are 50 or 60 seniors who eat there every day. Saves them a bunch of money that can go for other needed things      At the senior centers they have people come by from different agencies, they help fill out tax forms, benefit applications, stuff like wills and such. Ooops, while I’m thinking about it I may cancel my DNR over at the hospital. On the application for Medicaid, some folks don’t realize things that do not need to be claimed…. Many people have a few nice pieces of jewelry, perhaps worth a couple of thousand dollars. Personal Jewelry can be taken off of the application because it can be claimed as a family heirloom. Household goods in general usually are not claimed as an asset, clothing, furnature. Another big item might be tools. Often a family will have several thousand dollars of tools and tool boxes. Those can be taken off as needed to ply ones trade. A person can claim they will need those tools to work as a general hanyman, or a general contractor repairing appliances and such. The idea here is to claim you have the intent to try and make a living using the tools if the disability gets cured enough to allow work. I know The disability may never get better, but everyone has the right to think in a positive way that they might get better. Same thing for an expensive sewing machine. "I claim I will use that sewing equipment to work as a seamstress, I am hopeful my disability might allow me to do that at some time in the future, therefore my sewing machine or tools and tool boxes are exempt from being claimed as an asset. Besides jewelry being exempt as a family heirloom, other items such as silver dinnerware, expensive glassware, other items like that can be claimed as exempt. To be thought of as a true family heirloom, it must be stated that the items were passed from a grandmother, or grandfather or a great grand parent to you, the items will be passed to your children, or the chilfren of a brother or sister, they would be expected to pass the items on to their children. Anyway, It might be worth another try at the medicaid benefits once all the ins and outs of the regulations become known.      Terry

Response:

Hey Joani, My hubby and I were just talking about that today.  You should ask them what your deductible would be.  They tried to drop us because it took so long to get the paper work from all the different places.  And they had records showing that we met that deductible for years, every year.  But finally the lady asked did we want to drop it since the deductible was so high.  I told her no way, that it wouldn’t take me long to meet it.  We have to meet a deductible of almost $8,000 every 6 months before Medicaid kicks in.  We’re both disabled.  We appealed twice (once local and once state level) and of course it did no good.  I have letters from my doctors stating without my TPN I will die but that made no difference either.My home healthcare folks are just taking what Medicare pays and waiving my 20%; otherwise I wouldn’t be writing this cause I would be dead.  Even with Medicaid you can only get 6 prescriptions and I have to use 3 of those for just one of my scripts cause they only allow so much of a drug.  So that cuts me down to 3 other meds.  We had been doing without some of the ones that we could live without.  But we just found out that if we go to the clinic (a branch that is part of our county hospital) and see a doctor there then we can get our prescriptions for $5 each.  Now we won’t have to worry quite so much during the time we’re without Medicaid.  With TPN every night, we meet that stupid deductible in one month, sometimes 6 weeks.  I wish I could be there to argue for you cause Mike and I have been through the whole thing, more than once.  I’ve been disabled with Crohns since ‘78 and Mike’s been disabled with DDD and heart problems for quite a few years too.  Maybe you could get letters from your doctors, start calling the politicians in your area (start with the local ones and work your way up), check with the hospitals to see which has clinics that can help you, ask your doctor about prescription programs where the company making the drugs will provide them for free.  My husband’s doctor fixed that for my husband to get his pain meds and it has been a life saver.  My GI doc saw me for free for almost a year when we started having trouble with Medicaid.  It couldn’t hurt to talk to your doctor about the financial situation.  The least he could do is say ‘oh well’.  Anyway, sorry to ramble but I’d really like you and everybody else to get the treatment they deserve.  I know what a problem it is and thought this info might help.  If you have any questions, just write me.  I hope you can get things worked out cause you don’t need the stress either. By the way – you’re right about most of them just wanting you dead and out of the way.  But for myself, I refuse to die.  I’m already supposed to be dead cause the doctors couldn’t do anything else at that time but I told them ‘forget that’.  Nobody gets off that easy, they’re all stuck with me and I’ll hang around just to BE a pain even when I’m IN pain!!!  ;-))  I told them h**l would freeze over first and that I’m too mean to go that easily.  And all that with a signed DNR. Good luck, litldarlin

– Hide quoted text — Show quoted text – Terry!  You have put into words the very things I have been fighting for many, many years!!!!! I do believe…I strongly believe that the health care in the US has gone into the toilet, out the sewer and into the oceans!  There is no mercy, justice, compassionate care, in the world today!  The HMO’s are in this for money and money only!  I strongly believe that their sole purpose is to string their patients along until it is too late for successful treatments! Chronic Pain patients are at the very bottom of their list!  They only wish that we would all die…from the illness/injury we are suffering!  That is why we get this terrible run around about treatment….maybe we will kill ourselves. Good for the bottom line…stall on treatments or drugs…good for the bottom line. Wait to get an appointment for a specialist….right…the bottom line!  The Government of this country is in collusion with the HMO’s….this whole country is run on money….more for the rich,,  less help, health care, child care, schooling, you name it…for the rest of us!  The GOP is screaming for a tax cut…do you think you will ever benefit from a tax cut…no way…. Sorry….you just hit a very raw nerve…..I ran a company for 10 years, with a bottom line of $250,000., 37 employees, I paid taxes on taxes….when I became ill I was forced to close the business..I gave every single employee a letter of recommendation, a 2 wk. paid vacation. and one month’s salary to help until they found other work.  I have lost everything…my house, all my money, I am forced to live with my sister and live on $599. a month SSD..this month I turned 65..I don’t know how much I will get now. The kicker?  I have Medicare…for which I PAY a premium each month. granted it is a low one…but I make $12.00 a month too much to qualify for Medicaid!  $12.00!!!! My prescriptions cost me $400.+ each month…I paid, as an employer, dollar for dollar into FICA for each of my employees. I paid taxes on the business…penalty for being successful and honest on my income reports.   But…I now make $12.00 a month to get any help.  I will be on the street very soon.  That is a fact….my sister is tired of "supporting me" ( even after all I did this summer)…..someone tell me where is the justice for the patients that can’t take the meds. because of the price…that can’t get help anywhere? Ask a government worker about their health care plan..it will knock your socks off….our Senators, Congressman, their senior staff get everything their salary soon. I know….no politics…no religion…I know….but Terry is right  and I am right.  I am NOT starting a war here, people…please do not get into a long debate about this…this is not why we are here. Period.  But sometimes truth must be told!   Joan

Response:

At this site it explains pain facility classifications. Ted http://www.ampainsoc.org/facility/class.htm

– Hide quoted text — Show quoted text – Path: Robin, my main health care provider ‘Kaiser’ has setup pain management clinics recently. They seem to focus on behavior modifaction. Kaiser wanted me to go to theirs because I’m a Chronic Pain Patient. I wrote a letter to my PCP and stated I would not go, as I have no negative behavior that needed to be modified, and documentation shows I could not benefit from PT. My refusal to go to the pain clinic had no adverse impact on my treatment. . A few months ago the new pain management clinic appeared, fully staffed, one day there was empty office space and the next day a high profile pain management clinic. No health plan or insurance company would setup a high profile treatment center unless there were lots of money to be made.    So! some of us might want to do some online research to see where the money is coming from and in what amounts. I already did my part by writing this reply, now it is time for a nap! Terry Terry If you survive the "Chronic-Pain management program" without imploding there is the "medications management group" to graduate to. ;) This is the one where they stop acting like it’s all in your head and start treating the pain. Interesting how it only took me 2 years to even find out it existed. At this point however they do take care of me. My life is greatly improved. Kaiser can be a lot like dealing with any 800 number. jim

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Terry!  You have put into words the very things I have been fighting for many, many years!!!!! I do believe…I strongly believe that the health care in the US has gone into the toilet, out the sewer and into the oceans!  There is no mercy, justice, compassionate care, in the world today!  The HMO’s are in this for money and money only!  I strongly believe that their sole purpose is to string their patients along until it is too late for successful treatments! Chronic Pain patients are at the very bottom of their list!  They only wish that we would all die…from the illness/injury we are suffering!  That is why we get this terrible run around about treatment….maybe we will kill ourselves. Good for the bottom line…stall on treatments or drugs…good for the bottom line. Wait to get an appointment for a specialist….right…the bottom line!  The Government of this country is in collusion with the HMO’s….this whole country is run on money….more for the rich,,  less help, health care, child care, schooling, you name it…for the rest of us!  The GOP is screaming for a tax cut…do you think you will ever benefit from a tax cut…no way…. Sorry….you just hit a very raw nerve…..I ran a company for 10 years, with a bottom line of $250,000., 37 employees, I paid taxes on taxes….when I became ill I was forced to close the business..I gave every single employee a letter of recommendation, a 2 wk. paid vacation. and one month’s salary to help until they found other work.  I have lost everything…my house, all my money, I am forced to live with my sister and live on $599. a month SSD..this month I turned 65..I don’t know how much I will get now. The kicker?  I have Medicare…for which I PAY a premium each month. granted it is a low one…but I make $12.00 a month too much to qualify for Medicaid!  $12.00!!!! My prescriptions cost me $400.+ each month…I paid, as an employer, dollar for dollar into FICA for each of my employees. I paid taxes on the business…penalty for being successful and honest on my income reports.   But…I now make $12.00 a month to get any help.  I will be on the street very soon.  That is a fact….my sister is tired of "supporting me" ( even after all I did this summer)…..someone tell me where is the justice for the patients that can’t take the meds. because of the price…that can’t get help anywhere? Ask a government worker about their health care plan..it will knock your socks off….our Senators, Congressman, their senior staff get everything salary soon. I know….no politics…no religion…I know….but Terry is right  and I am right.  I am NOT starting a war here, people…please do not get into a long debate about this…this is not why we are here. Period.  But sometimes truth must be told!   Joan

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I go to the Kaiser Pain Clinic and their philosophy is that no one should have to be in pain.  At first, I wasn’t quite sure about their treatment, but I guess I passed some "test" and can get anything I need.  They keep close tabs on what I take, but that’s okay…I usually can’t even take the amount that’s prescribed. Mercurail, you might want to check it out a little more before you totally discount the option. – Hide quoted text — Show quoted text – Path: Robin, my main health care provider ‘Kaiser’ has setup pain management clinics recently. They seem to focus on behavior modifaction. Kaiser wanted me to go to theirs because I’m a Chronic Pain Patient. I wrote a letter to my PCP and stated I would not go, as I have no negative behavior that needed to be modified, and documentation shows I could not benefit from PT. My refusal to go to the pain clinic had no adverse impact on my treatment. . A few months ago the new pain management clinic appeared, fully staffed, one day there was empty office space and the next day a high profile pain management clinic. No health plan or insurance company would setup a high profile treatment center unless there were lots of money to be made.    So! some of us might want to do some online research to see where the money is coming from and in what amounts. I already did my part by writing this reply, now it is time for a nap! Terry Terry If you survive the "Chronic-Pain management program" without imploding there is the "medications management group" to graduate to. ;) This is the one where they stop acting like it’s all in your head and start treating the pain. Interesting how it only took me 2 years to even find out it existed. At this point however they do take care of me. My life is greatly improved. Kaiser can be a lot like dealing with any 800 number. jim

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At this site it explains pain facility classifications. Ted http://www.ampainsoc.org/facility/class.htm

    Ted, thank you for posting this information, I’m sure some here will take a look at that site.     Terry – Hide quoted text — Show quoted text – Path:

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– Hide quoted text — Show quoted text – Robin,             The pain clinic that I go to consists of an assistant and a anestesia doc. Thats all. He/She is there to get you an effective medication salad that will remove most if not all of your discomfort, while not placing you on the moon at the same time.             I got mad at mine recently and bitched them out about not enough relief……the response was "why didnt you say so?" (I got my relief then.)             I read your stuff and you do not belong in one of those "grin and bear it" clinics (which DO exist). Joani talked about the worst ones, of which there are none I know of in CT, where you go inpatient and they control your life. (These are for folks that are addicted to meds and cannot get off of them….ususally called detox centers. Remember, dependence and addiction are two different things.)             I was very surprised what the pain clinic was.  You will be too. If your doc says no and you are having true chronic pain, get rid of your doc and change the damn channel!             Go back and read the humorous "Bible" post I sent you. Its all there.

I love the phrase "medication salad"! I also am SO reassured and glad to know there are practical, intelligent doctors who say things like "why didn’t you say so?" when you hurt.   Andi

Response:

OK, I have heard the term, been told in here to go to one, been told by my pharmacist to go to the one in a local hospital, been told by my doctors _not_ to go to one. What do they do in a Pain Clinic?  Is it physical therapy?  Pain medication?  Someone to talk to (psychology)? Please forgive me if this question is really elementary, but I honestly don’t know what happens in a Pain Clinic. Thanks Robin

     Robin, my main health care provider ‘Kaiser’ has setup pain management clinics recently. They seem to focus on behavior modifaction. Kaiser wanted me to go to theirs because I’m a Chronic Pain Patient. I wrote a letter to my PCP and stated I would not go, as I have no negative behavior that needed to be modified, and documentation shows I could not benefit from PT. My refusal to go to the pain clinic had no adverse impact on my treatment. They did not push it, they have learned over the years not to mess with me ’cause they usually get splashed with what hit the fan.       I think I recall reading on the web (I’m not sure where I saw the information, or how accurate it is) that pain management clinics are being setup all over the U.S. because of new Medicare Medicaid rules which allow pain clinics to charge sixty thousand dollars or was it six thousand dollars to "cure" narcotic or alcohol addicted patients. If true that would help explain why these pain management clinics are suddenly appearing. I know Kaiser had for many years a low profile substance abuse prgram. A few months ago the new pain management clinic appeared, fully staffed, one day there was empty office space and the next day a high profile pain management clinic. No health plan or insurance company would setup a high profile treatment center unless there were lots of money to be made.     So! some of us might want to do some online research to see where the money is coming from and in what amounts. I already did my part by writing this reply, now it is time for a nap!      Terry

Response:

- Hide quoted text — Show quoted text – Path: Robin, my main health care provider ‘Kaiser’ has setup pain management clinics recently. They seem to focus on behavior modifaction. Kaiser wanted me to go to theirs because I’m a Chronic Pain Patient. I wrote a letter to my PCP and stated I would not go, as I have no negative behavior that needed to be modified, and documentation shows I could not benefit from PT. My refusal to go to the pain clinic had no adverse impact on my treatment. . A few months ago the new pain management clinic appeared, fully staffed, one day there was empty office space and the next day a high profile pain management clinic. No health plan or insurance company would setup a high profile treatment center unless there were lots of money to be made.    So! some of us might want to do some online research to see where the money is coming from and in what amounts. I already did my part by writing this reply, now it is time for a nap!

Terry Terry If you survive the "Chronic-Pain management program" without imploding there is the "medications management group" to graduate to. ;) This is the one where they stop acting like it’s all in your head and start treating the pain. Interesting how it only took me 2 years to even find out it existed. At this point however they do take care of me. My life is greatly improved. Kaiser can be a lot like dealing with any 800 number. jim

Response:

– Hide quoted text — Show quoted text – Path: Robin, my main health care provider ‘Kaiser’ has setup pain management clinics recently. They seem to focus on behavior modifaction. Kaiser wanted me to go to theirs because I’m a Chronic Pain Patient. I wrote a letter to my PCP and stated I would not go, as I have no negative behavior that needed to be modified, and documentation shows I could not benefit from PT. My refusal to go to the pain clinic had no adverse impact on my treatment. Terry If you survive the "Chronic-Pain management program" without imploding there is the "medications management group" to graduate to. ;) This is the one where they stop acting like it’s all in your head and start treating the pain. Interesting how it only took me 2 years to even find out it existed. At this point however they do take care of me. My life is greatly improved. Kaiser can be a lot like dealing with any 800 number. jim

     Jim, thanks for the reply. I already had the "it’s all in your head" treatment about ten years ago. My current doc’s are doing pretty good on pain management. I think it is possible the new pain clinics wanted to have every pain patient with Kaiser sent through the clinic — There might be a list within the Kaiser Plan of all pain patients. I suppose it is possible they could require all pain patients to be treated only by the pain clinic doc’s. I know that concept is emerging at Kaiser, all patients who are on a lifetime Coumadin treatment plan have their periodic blood test sent to a central location, where the test results are charted by one person (A doctor Karen Chu). All the records are at her location, if an adjustment of ones dose is needed, the phone message comes from her office.     Anyway, I guess my concern relates to the fact it took more than a couple of painful years to convince Kaiser doc’s my chronic pain was real! I don’t want to go through the physical and emotional pain again of not recieving appropriate pain meds. I refuse to play their games. Oops! I just thought about a Kaiser Psychologist who I locked in an emotional closet about ten years back. Wonder if I should drop by and slide the key under the door? I’ll have to think on it for awhile.     I am very angry with Kaiser about how I was treated on my chronic pain issues. Now! the medical documentation proves the pain really does exist and treatment of the pain using narcotic pain meds is appropriate. I know there are many people out there who are not being treated properly. They are being told their pain, the feeling of bone grinding on bone, and or nerve pain whenever they move is all in their head, they will just have to think good thoughts and the pain that does not exist will not be a problem. In my never again to be humble opinion many doctors and health clinics, and hospitals are ignoring or misdiagnosing legitimate chronic pain patients. I also believe hundreds, perhaps thousands of these patients who can see no end of their agony are commiting suicide each year. I wonder too if it is possible many health plans and perhaps government agencies as well are letting the situation exist as it is because hundreds or thousands of suicides would have a positive impact on their bottom line.      I have a personal story to tell about the bottom line. My 59 year old Aunt died four years ago. For three years she had complained of pain in her hips, and back. She must have had twenty test, nothing was found. Finally she was found to have a hip degeneration and she decided to go for a total hip replacement. The surgery was a success, but she never woke up. We were told she had cancer everywhere in her body, and that is what killed her. My thoughts on this at the time was she had been murdered! I think the hospital where she was a member of their health plan may have decided not to treat her pain, when it became unbearable they consented to surgery, she in the hope she could have relief from her pain wanted to have the surgery. I think it is possible the health plan made a decision to remove her from the plan because treatments for her chronic pain over many years would have been very expensive.  No, I have no proof! But in view of our current society where the drive for increasing profits comes before all else I suspect I could be right.      I have used the words possible, if, and could have been. I don’t want my post to deter anyone from getting needed care. I think it is good for some people to examine all sides of any issue and look at the ‘what’ if possibilities.     Well, I thought about the fellow I left locked in an emotional closet… I have decided to leave him there, if I let him out it might be harmful to other pain patients who have legitimate pain issues.      Terry

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Sorry..I miss spoke!  Work Hardening clinic are very go for injury cases were you CAN return to work!  They are NOT good places for people with chronic pain.  Joani

Response:

Gumby…Yes, I did talk about the worst ones. We MUST be warned about them because they are out there, believe me!  I run a Hot Line for LFA, and you would not believe the stories I have heard over the last ten years…that is about when the "Pain Clinics" came into fashion. Some the  Work Hardening places do a great job. Teaching you how to use your body without further injuries. There are more and more Clinics like the one you are going to now, thank G-D. But…a big but…you have to check them out thoroughly! The ones that have medical people on staff..from the PT/OT people to the Psychiatrist are educated in the field of pain management are really, really good!  The group I go to have literally saved my life! For the first time, ever, and I have been at this terrible game longer than some of you have alive, I am being treated with the proper medications!! I found out after talking with a therapist, (which I did only because I HAD too at first!) has been one of the best things are ever did for myself! We build up walls because of having to live with this pain. Slowly we lose friends, we do less and less "fun" things because of the pain…and we become reclusive. I know, I didn’t want to have to explain every time I had to cancel at the last minute. IMHO we all just get tired of explaining why we can’t do things. I know that I could see in my friends faces that many times they just didn’t believe me.  I have never "looked" sick. Until I was 50, I raised my family, ran our business, entertained many people and raised not only my children/step children, but we took in a lot of "throw away" kids, too. I have lupus…dx’d for sure in 1974..that is why I am on disability. But I have Fibro and a lot of other stuff.  Some of us look sick or injured, but a lot don’t. So when I talked to the therapist all the frustration of being though of as a weiny, lazy woman that just "said she was sick to get out of stuff" that frustration I found was eating my mental health up and had torn it into little bity pieces!  I no longer feel that I am the one at fault. I understand that I did not ask for all this, none of us did! So..after many words….talking to a therapist is one of the best tools we can use! I am so happy that you have found one of the Good Places!!!  Far to many of us have not found that place yet!  Joani

Response:

OK, I have heard the term, been told in here to go to one, been told by my pharmacist to go to the one in a local hospital, been told by my doctors _not_ to go to one. What do they do in a Pain Clinic?  Is it physical therapy?  Pain medication?  Someone to talk to (psychology)? Please forgive me if this question is really elementary, but I honestly don’t know what happens in a Pain Clinic. Thanks Robin

Response:

Robin, there are pain clinics and there are "pain clinics"….you have to be very, very, very careful about going to one! If your doc is telling you "no", it is with good reason. There are "In Patient Clinics", I would check one out six ways from Sunday before I would go to a In Patient one. IMHO…I would not go to one EVER. Why? Because they are mostly in the business of taking you ins. co. or you for your money. You go in, fill out a form. It will state: things like: You will be seen by the doctors on staff only. They will decide your medications. Your reg. doc can not see you or you contact him. They may decide to "take you off your meds, because you are becoming addicted to pain pills. So, no meds. some places will give you something to help you through withdrawal but I have heard of clinics that simply make you go cold turkey! With any clinic, you must ask questions. How do you treat pain? What kind of pain meds do you use? Do you believe in treating with opiates if no other meds will work? What kinds of therapies do you require me to participate in? Meditation?, Biofeedback? Imaging?, breathing exercises? Talking with a therapist? If they answer yes to the above things..it is a Good Idea. Will I be able to leave any time I wish? Damn well better be able to walk out if it isn’t working…there are some "clinics" where they do not let you just leave. They will make you sign a form that says you are leaving without the approval of the  medical staff.  That will come back and bit you..big time! Some "clinics" are "work hardening" clinics…if you will be able to return to full time employment and you are NOT dealing with a chronic, disability, or terminal illness..that is NOT the place for you!!! We can all use the "tools" we can learn….some people just do not agree with me on this…but IMHO ANY tool that works is a good one.  Talking to the psychiatrist is a very, very, good idea!  For anyone that is dealing with the kinds of problems we all have.  It DOES NOT mean you have a mental illness!!! But we all know that we are in mourning for the lives we all lost! I do!!  I miss riding my quarterhorse down the track, doing ‘Buddy pick up, speed and stop, Pole Bending and barrel racing! I feel like I lost a big part of me…we all are missing parts of ourselves…I miss racing the wind against a purple evening sky, the wind against my face…I miss putting my hands into the soft red soil planting peas,carrots, beans, tomatoes, I miss canning peaches, raspberry jam, grape, apple butter… I miss cooking for twenty five people every single weekend Sunday….piles of food. giving my parties for 150 people on New Years Eve…listening to all the children in the pool every night and going skinny dipping with my husband every nite before we went to bed…I don’t know if I could keep going if it wasn’t for my Therapist!  She helps me with coping skills!!!  Because the pain is unrelenting, right? So, after this very long winded, (as usual <VVBG) soliaque….ask questions! Questions, Questions! I would however, save the questions about the pain meds until you have discussed all the other options.  Some Pain Clinics are great, some prey on us! The medical staffing is very important too. There should be a MD,PT,OT,Psychiatrist, and Pain Management person that has a DEA license! Sorry about the long answer…I hope I helped some…it is IMHO ONLY!  You will get a lot of responses to this post!   Joani

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OK, I have heard the term, been told in here to go to one, been told by my pharmacist to go to the one in a local hospital, been told by my doctors _not_ to go to one. What do they do in a Pain Clinic?  Is it physical therapy?  Pain medication?  Someone to talk to (psychology)? Please forgive me if this question is really elementary, but I honestly don’t know what happens in a Pain Clinic. Thanks Robin

The one I almost went to was "multi-disciplinary" but the main focus seemed to me to be getting you to cope. There seemed to be little softness and little sympathy in any of the staff (including physical therapists, occupational therapists, doctors and psychologists). What I mean by that was yes, I understood that everyone there was dealing w/pain, but I spent all day at an "evaluation" and even in the very first meeting, there was no comfortable furniture in the room. Wihtout asking, I took a second chair to put my feet up, but during the day, when somehow I had free time, because someone was late meeting wiht me, there was no place to lie down. They seem to be heavily into making _you_ cope, and not necessarily being emotinoally understanding or supportive.  Now I’m sure others have good things to say, but years back, my one doctor told me there was nothing a pain clinic could do for me, since I was dealing on my own and knew a lot of coping mechanisms. Later he suggested it only because there was nothing else he could find to do for me. I’m not sorry it ended up that I didn’t go into the program. It was very strongly p.t. based, and p.t. doesn’t help everyone. I was just very put off by the sort of chilly attitudes I got from everyone. I don’t remember anyone smiling at me. Andi

Response:

– Hide quoted text — Show quoted text – Robin, there are pain clinics and there are "pain clinics"….you have to be very, very, very careful about going to one! If your doc is telling you "no", it is with good reason. There are "In Patient Clinics", I would check one out six ways from Sunday before I would go to a In Patient one. IMHO…I would not go to one EVER. Why? Because they are mostly in the business of taking you ins. co. or you for your money. You go in, fill out a form. It will state: things like: You will be seen by the doctors on staff only. They will decide your medications. Your reg. doc can not see you or you contact him. They may decide to "take you off your meds, because you are becoming addicted to pain pills. So, no meds. some places will give you something to help you through withdrawal but I have heard of clinics that simply make you go cold turkey! With any clinic, you must ask questions. How do you treat pain? What kind of pain meds do you use? Do you believe in treating with opiates if no other meds will work? What kinds of therapies do you require me to participate in? Meditation?, Biofeedback? Imaging?, breathing exercises? Talking with a therapist? If they answer yes to the above things..it is a Good Idea. Will I be able to leave any time I wish? Damn well better be able to walk out if it isn’t working…there are some "clinics" where they do not let you just leave. They will make you sign a form that says you are leaving without the approval of the  medical staff.  That will come back and bit you..big time! Some "clinics" are "work hardening" clinics…if you will be able to return to full time employment and you are NOT dealing with a chronic, disability, or terminal illness..that is NOT the place for you!!!

Yow! The one I dealt with never had anything like that – in fact, they _encouraged_ you to take medication regularly,and seemed to understand the need for it but I saw NO sign of alternatives you mention, which would have gone a long way for me.  I also got no sense that I could not talk with my doctor. I would have walked OUT in seconds if they had set that rule. The idea of not being allowed to leave?Gimme a break!  And yeah, the focus did seem to be "you’ll get back to work", which makes me wonder sort of "who are they working for?" I mean they are attached to the hospital, but the focus on work, well, I am not thrilled at being defined that way anyway. Andi

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Joani is so right!!  Once when I was getting out of the hospital, they wanted me to go to a pain clinic as in-patient.  I agreed to out-patient only.  I’m so glad cause I got sick and they wouldn’t give me anything or let me leave.  Everybody I talked to there as in-patient was counting the days till they got out.  Said it was worse than being in jail.  Considering I had to sneak out, I felt really sorry for them.  Needless to say, I never went back.  Of course they called and tried to lay some kind of guilt trip on me but I just told them off.  All they wanted was the insurance.  But my husband sees a pain specialist who is an anesthesiologist and he is really great.  He does caudles (?) which involves steroids and big needles and that’s all I want to know about that!! but he handles the pain meds that my husband takes too.  He’s very good and they get along really well. You should be very careful, check the place out and talk to people who have been there if possible.  It has the possibility of being just what you need or of being a living nightmare.  And I don’t think anybody here needs any more nightmares.

– Hide quoted text — Show quoted text – OK, I have heard the term, been told in here to go to one, been told by my pharmacist to go to the one in a local hospital, been told by my doctors _not_ to go to one. What do they do in a Pain Clinic?  Is it physical therapy?  Pain medication?  Someone to talk to (psychology)? Please forgive me if this question is really elementary, but I honestly don’t know what happens in a Pain Clinic. Thanks Robin

Response:

Robin,             The pain clinic that I go to consists of an assistant and a anestesia doc. Thats all. He/She is there to get you an effective medication salad that will remove most if not all of your discomfort, while not placing you on the moon at the same time.             I got mad at mine recently and bitched them out about not enough relief……the response was "why didnt you say so?" (I got my relief then.)             I read your stuff and you do not belong in one of those "grin and bear it" clinics (which DO exist). Joani talked about the worst ones, of which there are none I know of in CT, where you go inpatient and they control your life. (These are for folks that are addicted to meds and cannot get off of them….ususally called detox centers. Remember, dependence and addiction are two different things.)             I was very surprised what the pain clinic was.  You will be too. If your doc says no and you are having true chronic pain, get rid of your doc and change the damn channel!             Go back and read the humorous "Bible" post I sent you. Its all there.

OK, I have heard the term, been told in here to go to one, been told by my pharmacist to go to the one in a local hospital, been told by my doctors _not_ to go to one. What do they do in a Pain Clinic?  Is it physical therapy?  Pain medication?  Someone to talk to (psychology)? Please forgive me if this question is really elementary, but I honestly don’t know what happens in a Pain Clinic. Thanks Robin

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Any pain clinic is just like any doc, some are good and some suck. So, how do you discover which one is good and which one is bad? Here is a list of questions and the "appropriate" answers to expect. These come from a Dr. David Leak who is the founder of a group called Pain Net (www.painnet.com). I strongly encourage anyone seeking treatment for pain to use these questions in conjunction with what those who have been treated at a clinic have to say. The days of going to the doc and simply leaving it all up to them are gone (thank god). We (the consumer) must research the clinic or doc just like we would for any other service or product. There are too many folks out there who call themselves pain specialists or clinics that are not qualified. With the advent of managed care, and the dwindling dollar for some MDs, the addition of "pain management" services increases their income. So, having said all that, here are the questions. Jack Questions YOU Should Ask of People That Are Treating Your Pain and Some of the Answers YOU Should Get When Sent to a Pain Specialist or Center Q. Is this practice dedicated solely to the diagnosis and treatment of pain? A. Answer should be:      Yes, we practice full-time in the practice of pain medicine / management. Q. Are all the staff fully dedicated to the diagnosis and treatment of pain? A. Answer should be:      Yes, except for part-time filing personnel or "generic" ancillary staff ( people who      collect lab specimens, other medical technicians ). Q. How many full time staff are on the team? A. Answer should be:      Minimally a secretary / receptionist, a nurse, a behavioral specialist, and a physician. 3a.) What are their specialties? Q. Do you have part time staff? A. Answer should be:      Yes, or no, but the physician and primary nursing staff should not be part time. 4a.) What are their specialties?      Physical therapy, occupational therapy, phlebotomy, dietary, social work, radiology      technician, and administrative personnel. Q. Did you train specifically in the diagnosis and treatment of pain? A. Answer should be:      Yes!!      * Note economic pressures have caused many physicians to practice in the area of      pain medicine / management without adequate training! Q. How long was your training in pain? A. Answer should be for a physician :      Fellowships ( Fellowship, a period of intense medical specialty training after completion      of residency training ) prior to 1993, six (6 ) months were wide spread, however, from      1993 forward fellowships of one year were more common. Q. Where did you do your training specifically in pain? A. Answer should be:      At a university or with a proctor for an extended period of time (6-36 months).      Week-end orientation courses or short visits with experts do not count as training.      Orientation courses can only attest to physical presence at a course, not to      demonstrated mastery knowledge or skills. Q. What do you use to monitor outcomes? A. Answer should be:      Master Piece Medical, or an equivalent. If a test is ordered: 9a.) What is the purpose of the test? 9b.) What difference will this test make in my treatment? If a consult ( the opinion or evaluation of another specialist ) is requested: 10a.) What type of specialist is being consulted, and why? 10b.) Will the consult make any difference in my treatment? If a procedure is recommended: 11a.) What is the purpose of the procedure ?      i. Diagnostic ( to tell what the problem is )      ii. Therapeutic ( for treatment )      iii. Pre-emptive ( to prevent pain from becoming worse due to a planned surgery )      11b.) Where did you learn this procedure?      11c.) How many of these procedures have you done?      11d.) What is likely to happen if the procedure is not done?

– Hide quoted text — Show quoted text – Joani is so right!!  Once when I was getting out of the hospital, they wanted me to go to a pain clinic as in-patient.  I agreed to out-patient only.  I’m so glad cause I got sick and they wouldn’t give me anything or let me leave.  Everybody I talked to there as in-patient was counting the days till they got out.  Said it was worse than being in jail. Considering I had to sneak out, I felt really sorry for them.  Needless to say, I never went back.  Of course they called and tried to lay some kind of guilt trip on me but I just told them off.  All they wanted was the insurance.  But my husband sees a pain specialist who is an anesthesiologist and he is really great.  He does caudles (?) which involves steroids and big needles and that’s all I want to know about that!! but he handles the pain meds that my husband takes too.  He’s very good and they get along really well. You should be very careful, check the place out and talk to people who have been there if possible.  It has the possibility of being just what you need or of being a living nightmare.  And I don’t think anybody here needs any more nightmares. OK, I have heard the term, been told in here to go to one, been told by my pharmacist to go to the one in a local hospital, been told by my doctors _not_ to go to one. What do they do in a Pain Clinic?  Is it physical therapy?  Pain medication?  Someone to talk to (psychology)? Please forgive me if this question is really elementary, but I honestly don’t know what happens in a Pain Clinic. Thanks Robin

Response:

METHADONE , METHADONE, METHADONE NEW INFO SITE

Question:

I take 10 mg/4x day for total of 40 mg.  I know that 5 mg, even with your other medications, would not touch my pain.  I have been on 40 mg since the first of the year and am doing well.  I am fairly free from the chronic pain I have suffered for years.

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I’m considering Methadone since I can’t tolerate the dosage of Oramorph needed to control the pain.  Can you tell me about it? Thanks – Hide quoted text — Show quoted text – I take 10 mg/4x day for total of 40 mg.  I know that 5 mg, even with your other medications, would not touch my pain.  I have been on 40 mg since the first of the year and am doing well.  I am fairly free from the chronic pain I have suffered for years.

Response:

I’m considering Methadone since I can’t tolerate the dosage of Oramorph needed to control the pain.  Can you tell me about it?

Methadone was developed by those wacky nazis during the war. The allies had cut off their supply of opium and they could not produce morphine. Voila, they developed a product called Dolophine, later called Methadone. It works great for many types of pain and it doesn’t make you stoned. It is also cheap. Jim

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*LOL* Thanks Jim, I think (?)…guess(?) you answered my question.  At least you gave me a good laugh.  You sound upbeat and that’s KEWL. alleygata ^..^ – Hide quoted text — Show quoted text – I’m considering Methadone since I can’t tolerate the dosage of Oramorph needed to control the pain.  Can you tell me about it? Methadone was developed by those wacky nazis during the war. The allies had cut off their supply of opium and they could not produce morphine. Voila, they developed a product called Dolophine, later called Methadone. It works great for many types of pain and it doesn’t make you stoned. It is also cheap. Jim

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Well, I for one am glad to see this thread.  I was just switched from 40 mgs 3 times daily of Oxycontin to 15 mgs two times daily Methadone.  Just got off the phone after calling several pharmacies, finally found the hospital pharmacy does have it, so that is a relief.  When I look for info on the web, keep seeing how it is used for heroin addicts.  Well, duh, knew that but not a lot of info on cp people etc.  Does anyone have any "good" links they can share? I had gotten to the point with Oxy where it didn’t do anything for pain and I would experience withdrawal symptoms way too easily.  Was in the ER two times within 6 weeks with symptoms of weakness, sweating, fainting, etc.  Only thing I can "point" to that was the same each time was missing a dose of the Oxy. Also had terrible insomnia that I am convinced is if not caused by, exasperated by the Oxy.   I am hopeful that Methadone will be much better for me.  On Oxy was still having to take Tylenol # 3 two to three times daily for breakthrough pain. That is NOT it, LOL. Anyone who cares to share information, please do.  I will probably have to wait until tomorrow to get script filled, so won’t start until then. Sincerely, Tracy

Response:

Hi Tracy!      Methadone is WAY more effective for me than Oxy was. It also lasts longer….within the first week I was already "forgetting" doses until hours later…..instead of watching the clock like I did with Oxy.   I was taking 80 mg Oxy 2 x day and now am better taking 30mg Methadone 3x day……it takes the edge off;  something the Oxy wasn’t doing after the first couple weeks.   Good luck with it!  I find it to be a very good pain med….no buzz, no drowsiness. http://www.methadone.org/how.html Peace,  Weezie

|Well, I for one am glad to see this thread.  I was just switched from 40 mgs 3 |times daily of Oxycontin to 15 mgs two times daily Methadone. <snip

Response:

Methadone is a Godsend for patients with severe chronic pain of just about al types. It is the only narcotic available, except for dextromethorphan, that takes care of the dull-achy and sharp-burning pain by working on many pain receptors (mu and NMDA, respectively). It also happens to be long-acting, so it is also less likely to produce too high of a tolerance especially when combined with other medications. It is also dirt-cheap, as compared to the other narcotics. So, check with your medical pain specialist about this, or feel free to write me at Best wishes… Dr. Gatell

– Hide quoted text — Show quoted text – This isn’t about pain but I remember when I got TPN (called hyperal back then?) a long time ago only one nurse knew how to hook it up and I had to learn FAST.  Now I have nurses come to me and ask to do their first solo on me cause I can make sure they do it right.  At times that can be fun; other times I feel so bad I really don’t want to bother.  But either way, I’m glad they want to learn and remember what they learn.  These are the same people that bring my pain meds so the better they are, the better I feel.  There are already too many incompetent people at the hospital or maybe I’ve just been there so much, I end up running into most of them.  At this point, my doctor tells me to bring my own stuff and take care of the things I can do for myself.  It’s less chance of getting my catheter infected too.  If I didn’t, I would do without all meds for sometimes more than a day. litldarlin I agree with you Jefe, it is sad when the medical professional is not up to date on information, especially if the info is pertinent to the area of practice for that individual

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I just started on Methadone only getting 5 mg a day when I was taking 1800mg of neurontin with 300mg Ultram and 75mg of Elavil at bed time.. I know that I had to go into a narcotics contract before the doctor would give me the Methadone but I dunno if it is the dosage or what but I take 5mg of Methadone 2x’s a day and I am in more pain than before stopping the others.. So far it has no aid for me hopefully a higher dosage will help me I guess I have to wait and see but dr told me that there is this.. then on to Morphine and once you go on it .. .it is all downhill from there.. I hate all this personally and do not understand why after having a c-6, c7 anterior disc fusion with titanium I feel so damn horrible I think back I think the pain before surgery was less than now. It seems no one can tell me why I have the pain or what will help or how to proceed.. Also I have a sister in law with DDD and she said her surgeon told her once any disc blows you will automatically have more going cause of the way a person holds there posture from the disc. So It does not give one much hope for being "Normal " again. deb/fl

– Hide quoted text — Show quoted text – Hi, Methadone IS used for pain. I am a health care provider and I have a patient that is allergic to all narcotic pain meds except  methadone. I have not seen the web site mentioned but I know it has other uses than for heroin addicts. My patient is 78 years old and a very straightlaced Lady. Methadone is the only thing she can take without severe allergic reactions. I know, I tried giving her demerol once with horrible results.. This site looks like it is more for the addict. It mentions the {Methodone Treatment} and councelors. Etc. Not really about the use of narcotics for pain!!!                                 JanisD — janisD in SaultSte.Marie  (.